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MDA Makes Strides in DEI
Disability is diversity MDA believes that true diversity cannot be achieved without the presence of those who live with disabilities. So, we are making progress in furthering diversity, equity, and…
Tags: Community, Employment
MDA Care Centers: A National Network of Expert Care
Every year, MDA Care Centers and their expert clinicians serve more than 60,000 people living with neuromuscular diseases. Started in 1953 at a single clinic in New York, the Care…
Tags: Genetic Testing, Healthcare, MDA Care Centers, MDA Clinical and Scientific Conference, MDA Resource Center, MOVR, Resources
MDA Announces Advocacy Collaboration Grants Recipients
We know that no single organization can “do it all” when it comes to improving the lives of the neuromuscular community. In order to fulfill MDA’s mission of empowering the…
Tags: Advocacy Updates, Grants
Quest Podcast: New Year, New Mindset with Jose Flores
We are excited to start a new year talking about new mindsets, especially when it comes to adversity. On our first episode of 2023, Mindy talks mindset with Jose Flores,…
Tags: Quest Podcast
MDA 2023 Clinical and Scientific Conference – Q&A
The MDA 2023 Clinical and Scientific Conference is just around the corner and we hope you are planning to join us! The conference will highlight unprecedented research advancements and clinical…
MDA Ambassador Guest Blog: A Story About Finding My One True LOVE….
Jamie and Amy at Amy’s high school graduation. My husband, Jamie, and I met when I was a freshman in high school and he a sophomore, after being introduced by…
International Day of Women and Girls in Science: MDA’s Spotlight on Katie Frayer
Katie Frayer, Engineering Analyst at Whirlpool Corporation International Day of Women and Girls in Science, February 11, endeavors to acknowledge and celebrate the invaluable role that women and girls play…
Tags: Community, Education, Employment
How the New LGMD Diagnostic Codes Could Benefit the LGMD Community
On October 1st, new diagnostic codes for the limb-girdle muscular dystrophies (LGMDs) became officially available for use by clinicians and researchers marking the first time the LGMDs had diagnostic codes…
Tags: Advocacy Updates, Healthcare
Nutrition on a Budget
Expert tips for healthy eating on a budget in a time of rising food costs and deepening food shortages.
Tags: Featured Content, Nutrition
Clinical Trial Alert: Phase 2 Study of EDG-5506 in Adults or Adolescents with BMD
Researchers at Edgewise Therapeutics are seeking adults and adolescents living with Becker muscular dystrophy (BMD) to participate in a Phase 2 clinical trial (CANYON) to evaluate the safety and efficacy of…
Tags: Clinical Trial Alert