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Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Voting is more than a civic responsibility. It is a declaration of presence, power, and participation. The decisions made by elected officials touch nearly every aspect of our lives—from access…

Kareem Azzazi is a 38-year-old content creator from Minnesota living with Duchenne Muscular Dystrophy. He uses eye-tracking technology to write, stream, play games, and create content online as TheSaturverse. Kareem…

Donnie Demers performing at the Global Green Pre-Oscar Gala (Photo from Donnie’s Facebook page) When looking at the list of accomplishments and accolades that musician and multi-platinum selling song-writer Donnie…

How the Air Carrier Access Act (ACAA) gives people with disabilities the right to air travel and protects people who fly with wheelchairs and scooters.

Questions about equipment, transfers, positioning, and telehealth can help women with neuromuscular diseases find accessible OB/GYN care that fits well.

Neurologist Perry Shieh, MD, PhD, answers questions about myotubular myopathy, its symptoms, diagnosis, and the search for safer gene therapy.

Civil rights attorney and musician Ed Barocas shares how disability advocacy, creativity, and embracing mobility equipment shaped his success.

Explore enrolling clinical trials for ALS, DMD, Friedreich ataxia, myasthenia gravis, myotonic dystrophy, and Pompe disease.

MDA funding supports researchers at different career stages as they explore better gene therapies and possible treatments for neuromuscular diseases.