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Neuropathy ataxia and retinitis pigmentosa (NARP) syndrome is a rare, maternally-inherited condition caused by mutations in mitochondrial DNA, affecting the energy-producing structures within cells. The condition typically begins in childhood…

It’s that time of year when we come together to connect, share, learn—while accelerating progress in neuromuscular (NMD) healthcare and scientific progress. This conference is one of the most meaningful…

Funding for the Supplemental Nutrition Assistance Program, which provides food assistance to more than 42 million children and adults across the country – including 4 million people with disabilities –…

October is National Disability Employment Month (NDEAM). In this month’s episode of the Quest podcast, we dive into accessibility and inclusion in the workforce with Russell Shaffer, Executive Vice President…

A chef with a disability adapts her cooking for her abilities, using mobility equipment, accessible tools, and shortcuts.

Faith is 14 years old and lives in Texas. She is a freshman in high school. Faith served as the MDA National Ambassador in 2018 and 2019. She is currently…

Brayden is 17 years old and has been playing wheelchair basketball since he was 8. He is also a wheelchair track and field athlete. Brayden lives with Charcot-Marie-Tooth (CMT) Type…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Anybody who has made a monetary donation to support MDA’s mission knows well that their dollars go a long way to change the lives of those living with neuromuscular disease.…

Owen Kent is the co-founder and Chief Marketing Officer of Assistive Technology Development (ATDev), a startup creating innovative mobility devices that empower people to live independently and confidently. As a…