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Myofibrillar myopathies (MFM) are a group of inherited muscle disorders characterized by progressive muscle weakness and the abnormal accumulation of proteins within muscle cells. These disorders have been linked to…

The ACA, or Obamacare, improves access to affordable health insurance for people with preexisting conditions like neuromuscular diseases.

Hello! In this blog, I’m sharing accessible beauty and fashion tips I’ve collected through plenty of trial and error. Beauty and fashion are major forms of self-expression for me, and…

Some events are hard to picture before you attend. You may wonder who will be there, whether the topics will apply to you, or if it is worth carving out…

Researchers at Alexion, AstraZeneca Rare Disease are conducting a clinical study for adults with generalized myasthenia gravis (gMG) who are currently receiving ravulizumab treatment. The study will evaluate whether a…

Rob Roozeboom is the founder of RISE Ministries and the creator of RiseFest, one of the largest Christian music festivals in the Midwest. Living in Iowa with muscular dystrophy, Rob…

Skye Anderson lives in North Carolina, and is an advocate living with facioscapulohumeral muscular dystrophy (FSHD). She is passionate about accessibility, spreading awareness, and empowering others with disabilities to use…

For the neuromuscular disease community, the ADA provides protections for people with disabilities to work and participate fully in their communities.

Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tina Vassar lives in Durham, North Carolina with her dog Milo. She is 69 years young and has lived with myasthenia gravis for over 30 years. Like many people living…