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Kathryn Arvidson champions accessible mental health treatment for people with disabilities.  Kathryn was diagnosed as a child with a rare degenerative neuromuscular disorder, Pompe disease, that impacts her mobility and…

In this Quest Podcast episode, we chat with Emmy Award-winning filmmaker and disability advocate Samuel Habib and his father and longtime collaborator Dan Habib, the creative duo behind the extraordinary…

Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

K.L. Cleeton is an entrepreneur, writer, and advocate living with Spinal Muscular Atrophy in rural Illinois. He writes about disability, identity, and the systems that shape how we live at…

Jenna Ryerson is a 26-year-old, Missouri-based writer and creative person with a passion for exploring both the practical and the mystical sides of life. With Midwest roots and a naturally…

Mindy Henderson, MDA’s Vice President of Disability Outreach & Empowerment & Editor-in-Chief of Quest Media Today I write to you with a full heart—because there is news that feels nothing…

Chronic inflammatory demyelinating polyneuropathy (CIDP) is a rare neurological disorder in which the immune system mistakenly attacks the protective covering of peripheral nerves. This damage disrupts nerve signaling and can…

Living with a rare disease means navigating a healthcare system that often feels fragmented and overwhelming. For many of us, finding a doctor who truly understands our condition is essential.…

In this Quest Podcast episode, we chat with advocate, social media influencer, and President of the Periodic Paralysis Association (PPA), Cienna Ditri, who lives with periodic paralysis. Cienna shares her…

When Tyler Long was diagnosed with facioscapulohumeral muscular dystrophy (FSHD) during his senior year of high school, doctors advised him that this diagnosis meant that he should plan his future…