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After a year of twists and turns in 2025, MDA and its advocates are even more motivated to raise their voices and create change for the neuromuscular community. Check out…

Gabrielle Runyon is a graduate student in the Master’s Counseling Program at the illustrious Tennessee State University. She is from Louisville, Kentucky. Gabrielle was diagnosed with spinal muscular atrophy (SMA)…

Myotonia congenita (MC) is a rare, inherited neuromuscular condition characterized by muscle stiffness (myotonia) present during infancy or childhood. Unlike some other neuromuscular disorders, MC does not cause progressive muscle…

Kurt Aguilar and his wife, Cathryn Domrose, in Vigo, Spain, before starting on the Camino de Santiago de Compostela. (Photo by Rebecca Taggart) Every year, hundreds of thousands of people…

For over 70 years, MDA’s National Ambassadors have been an intrinsic part of championing for our mission to empower people living with neuromuscular disease and increase care, research, and advocacy…

In this Quest Podcast episode, we chat with public speaker, consultant, and disability advocate, Jax Cowles. Jax shares an honest, thoughtful, and deeply creative conversation about daily life, independence, and…

Before you get behind the wheel, know the steps to take for adaptive driving evaluations, equipment, and training.

Researchers at Biogen are working to better understand spinal muscular atrophy (SMA) and to evaluate a potentially new treatment for babies before they develop any symptoms. The study Newborns with SMA…

Leslie Krongold is 63 years old and lives in Mendocino, California where she keeps busy with several volunteer and DIY activities including peer counseling, facilitating online support groups, and organizing accessible…

To find a good college match, students with disabilities should visit campuses to assess their accessibility and inclusiveness.