Archives
MDA Ambassador Guest Blog: The Intersectionality of Identities as a Black Woman Living with a Disability
Gabrielle Runyon is a 22-year-old Kentucky native who currently goes to the illustrious Tennessee State University. She is obtaining her master’s in counseling with a concentration in clinical mental health.…
Tags: Ambassador Guest Blog, Ambassadors, College, Community, Education, Relationships, Young Adults
Quest Podcast: Living with intention and creating a more beautiful life with Amber Bosselman
In this Quest Podcast episode, we chat with a certified Life Coach who lives with Spinal Muscular Atrophy. Amber Bosselman has devoted her career to providing living skills for individuals…
Tags: Caregiving, Community, Mental Health, Relationships
The Complex Beauty of the Unexpected
Abby Dreyer is an honors student at Eastern Connecticut State University who lives with spinal muscular atrophy (SMA). She enjoys learning other languages, trying new things, writing, watching movies, and staying…
Tags: Ambassadors, Caregiving, College, Community, Education, Mental Health, Relationships, Year of Independence, Young Adults
Simply Stated: RNA-Based Therapies in Development for Myotonic Dystrophy
Myotonic dystrophy (DM) is a type of muscular dystrophy that affects about 1 in 8,000 people worldwide. DM is characterized by progressive muscle loss and weakness, but can also affect…
Tags: Clinical Trials, Drug Development, Education, Gene Therapy, Healthcare, Innovation, Research Advances, Resources, Simply Stated
Championing for Change: MDA’s 2025 Advocacy Agenda
With a new Congress and Administration in office, it’s safe to say that 2025 is going be a year full of change. But what remains consistent is MDA’s commitment to…
Getting to Know Your 2025 MDA National Ambassadors
MDA’s Ambassadors are pivotal to our mission: empowering people living with neuromuscular disease to live longer, more independent lives. We strive for our mission through care, research, and advocacy. Our…
Tags: Ambassadors, Community, Ira, Lily, MDA Ambassador Program, MDA Ambassadors, National Ambassadors, Relationships, Young Adults
Breaking Barriers in Higher Education: My Journey as a Student with Muscular Dystrophy
Serena Desiderio, from Gilbert, Arizona, is a senior at the University of Arizona studying Physiology and Medical Sciences with an emphasis in Exercise Physiology and a minor in Psychology. Diagnosed…
Tags: College, Community, Education, Mental Health, Relationships, Year of Independence, Young Adults
MDA Ambassador Guest Blog: Music is the Best Medicine
Richard Fry is an aspiring writer and poet. He is first and foremost a musician. Through writing and folk music, Richard strives to inspire admiration for the innate beauty of…
Everything You Need to Know About the DOT Ruling on Accessible Air Travel
At the end of 2024, the Department of Transportation (DOT) released a final rule aimed at improving the air travel experience of wheelchair users. This rule enacted major changes that…
MDA Ambassador Guest Blog: Unexpectedly Finding Nakama
34-year-old Megan Jennings was diagnosed with SMA at the age of 18 months and was raised to never let her diagnosis hold her back. Megan has a bachelor’s degree in…