Archives
Clinical Research Alert: Phase 3 Study of RGX-202 in Boys with DMD
REGENXBIO Inc. is enrolling boys living with Duchenne muscular dystrophy (DMD) to participate in a phase 3 clinical trial to evaluate the safety, tolerability and efficacy of the investigational gene…
Simply Stated: MG Therapeutic Landscape
Myasthenia gravis (MG) is a chronic neuromuscular disease characterized by muscle weakness that worsens after activity and improves after rest. Most people with MG experience one of two forms, ocular…
Tags: Simply Stated
MDA Ambassadors Share Tips for Flying with Power Wheelchairs and Medical Equipment
Looking for tips for travel with a power wheelchair or medical equipment? Experienced travelers with disabilities share their airplane hacks.
MDA Ambassador Guest Blog: Finding Passion & Purpose in Art
Jennifer Lane is a wife and mother of three grown children and lives in Alabama. She is involved in church ministry and is an advocate and Ambassador for the MDA.…
Your Guide to Genetic Testing for Neuromuscular Diseases
Genetic counselors answer frequent questions about genetic testing: How much does genetic testing cost? Should you be tested?
Insights by Ira: Let’s Get Active This Summer!
It’s the most wonderful time of the year! The holiday’s season already? No! Summertime! That’s right! The time of year when the days are long and hot, the nights are…
Tags: Ambassadors, Community, Insights by Ira, Ira, MDA Ambassadors, MDA National Ambassador Blog, Relationships
MDA Ambassador Guest Blog: How Making an Impact Renewed My Purpose After FSHD Diagnosis
Ranae Beeker, who is in her late 60s, has found her greatest joy in her roles as a mother to Alethea and Gavin, and as a Gramma to Eilif and…
The Joys (and Lessons) of Fatherhood from MDA Ambassadors
As every father knows, parenthood is an incredible journey filled with joy, challenges, victories, growth, and love. For dads living with a disability, raising children sometimes requires extra patience, resilience,…
Tags: Ambassadors, Community, Parenting, Relationships
In Case You Missed It…
Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…
Tags: Ambassadors, Community, Healthcare, In Case You Missed It, Mental Health, Staying Active, Travel
Quest Podcast: Invisible People: Making the Rare Seen
In this Quest Podcast episode, we chat with a former pharmacist turned singer/songwriter who lives with Generalized Myasthenia Gravis. Dania Quill has devoted her time and expertise to create inclusive…