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Featured Article | Health, Personal Stories

The Hidden Power of Self-Care in Caregiving

Four family caregivers share the everyday ways they incorporate self-care into their lives, so they can care for their loved ones.

Tags: Caregiving, Featured Content, Relationships


Featured Article | Inclusion, Lifestyle, Personal Stories

Meet Our 2025 MDA Quest Photo Contest Winners

People living with neuromuscular diseases shared their meaningful moments in the Quest Media photo contest. Here are this year’s winner and three runners-up.

Tags: Community, Lasting Impression, Parenting, Staying Active, Summer Camp


Featured Article | Personal Stories

A Lifetime of Learning: From college to a Career in Disability Advocacy

Naomi Hess pursues a lifetime of education in college and beyond to learn about her interests and progress in her career.

Tags: College, Education, From Where I Sit, Young Adults


Featured Article | Independence, Lifestyle

New Year, New Financial Plan: Tips to Get Your Budget Back On Track

Follow these tips to save money in your budget when you’re balancing health and disability-related expenses.

Tags: Equipment and Assistive Devices, Finance, Thrive 365


Featured Article | Science + Research

Understanding Spinal-Bulbar Muscular Atrophy

Q&A with an expert on spinal-bulbar muscular atrophy (SBMA), or Kennedy’s disease

Tags: Clinical Trials, Drug Development, Genetic Testing, Spotlight


Featured Article | Inclusion, Independence, Personal Stories

From Classroom to Courtroom: How Eric Arnold Navigated Accessibility in His Education and Career

How Eric Arnold, an attorney living with spinal muscular atrophy (SMA), built an accessible career and lives independently.

Tags: College, Education, Employment, Quest for Success


Featured Article | News, Science + Research

Progress Now: Immunotherapy Study Recruiting, Drug Cleared for Expanded Access, and More

Tracking research updates and breakthroughs that help accelerate treatments and cures across MDA diseases

Tags: Clinical Trials, Drug Development, Gene Therapy, Research


Featured Article | Health, Science + Research

Say Yes to Gene Therapy? Factors to Consider When Gene Therapy Is an Option

When you have access to gene therapy for a neuromuscular disease, weigh the risks and benefits for yourself or your child in your decision-making.

Tags: Clinical Trials, Drug Development, Featured Content, Gene Therapy, Healthcare, My Gene Therapy Journey, Research


Featured Article | Independence, Lifestyle

Financial Education and Planning Help You Take Charge of Your Financial Future

From strict Medicaid asset limits to frequent medical expenses to underpublicized public programs, families with disabilities can feel like they are walking a financial tightrope trying to balance it all.…

Tags: Community Education, Featured Content, Finance, Insurance, MDA Resource Center, Resources


Featured Article | Health, Lifestyle

7 Essential Tips for Family Caregivers to Avoid Common Injuries

Learn expert-backed strategies for family caregivers to prevent injuries, protect their well-being, and care for their loved one safely.

Tags: Caregiving, Equipment and Assistive Devices, Featured Content, Relationships, Resources