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Charlotte is 11 years old and lives with LGMD2C, which was diagnosed when she was two and a half. When she grows up, Charlotte wants to get a law degree…

The 2026 MDA Clinical & Scientific Conference is quickly approaching. Taking place March 8-11, 2026, at the Hilton Orlando in Orlando Florida, this year’s conference will explore the latest research…

Jeff Thomas resides in beautiful Boise, Idaho with his partner in crime, Christine, and their precious fur-babies, Tito, Flora, and Fred.  Their love and support motivate him in the fight…

In January, nine states led by Texas revised their challenge to Section 504 of the Rehabilitation Act and the integration mandate required by both Section 504 and the Americans with Disabilities Act…

International Women and Girls in Science Day, February 11, endeavors to acknowledge and celebrate the invaluable role that women and girls play in accelerating change and discovery in the professional…

Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

After a year of twists and turns in 2025, MDA and its advocates are even more motivated to raise their voices and create change for the neuromuscular community. Check out…

Gabrielle Runyon is a graduate student in the Master’s Counseling Program at the illustrious Tennessee State University. She is from Louisville, Kentucky. Gabrielle was diagnosed with spinal muscular atrophy (SMA)…

Myotonia congenita (MC) is a rare, inherited neuromuscular condition characterized by muscle stiffness (myotonia) present during infancy or childhood. Unlike some other neuromuscular disorders, MC does not cause progressive muscle…

Kurt Aguilar and his wife, Cathryn Domrose, in Vigo, Spain, before starting on the Camino de Santiago de Compostela. (Photo by Rebecca Taggart) Every year, hundreds of thousands of people…