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In this Quest Podcast episode, we chat with public speaker, consultant, and disability advocate, Jax Cowles. Jax shares an honest, thoughtful, and deeply creative conversation about daily life, independence, and…

Before you get behind the wheel, know the steps to take for adaptive driving evaluations, equipment, and training.

Researchers at Biogen are working to better understand spinal muscular atrophy (SMA) and to evaluate a potentially new treatment for babies before they develop any symptoms. The study Newborns with SMA…

Leslie Krongold is 63 years old and lives in Mendocino, California where she keeps busy with several volunteer and DIY activities including peer counseling, facilitating online support groups, and organizing accessible…

To find a good college match, students with disabilities should visit campuses to assess their accessibility and inclusiveness.

Each year, the MDA Clinical & Scientific Conference brings together clinicians, researchers, industry partners, and community members to share knowledge, spark innovation, and move the field of neuromuscular disease forward. Alongside…

Rebecca Gregg has limb-girdle muscular dystrophy (LGMD2B), is a board member of the LGMD Awareness Foundation, and is an MDA Ambassador. She lives in Edmond, OK, with her husband, David,…

Katie Brooks is a mom of two incredible little boys, Dominic and Daniel. She was born and raised in Austin, TX and moved to Atchison, KS to attend college at Benedictine…

A recent 60 Minutes segment examining the cost of gene therapy put a national spotlight on a question families living with rare disease confront every day: how can lifesaving medical…

Clinical trials are key to advancing research for neuromuscular disease treatment. Here’s what you need to know why to get involved and how to enroll.