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Every March, the leading clinicians and researchers in the field of neuromuscular disease join industry partners, advocacy organizations, and community members at the MDA Clinical & Scientific Conference to share…

In this episode of the Quest Podcast, we chat with Kiersten Riggs, a 24-year-old rare disease advocate from Tulsa, Oklahoma, who was a varsity cheerleader when her family first heard…

MDA’s mission to empower people living with neuromuscular disease to live longer, more independent lives is pursued through a variety of influential and meaningful endeavors. From accelerating research and advancing…

The MDA Quest Media Product Guide is designed to help you find the products you need to live a more independent, stylish, fun, and all-around great life. All the products…

Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

In this episode of Quest Podcast, actor, comedian, and disability advocate Steve Way returns to continue our conversation, this time getting even more personal about his own reliance on home…

On September 29 – 30, 2026, advocates returned to Washington D.C. for a Hill Day specifically geared to those in the MDA Advocacy Captain (MAC) program. From as far away…

Researchers at the University of Florida are seeking non-ambulatory boys living with Duchenne muscular dystrophy (DMD) to participate in a study evaluating advanced imaging techniques. The goal is to determine whether…

Sydney Horak lives in Texas and is diagnosed with spinal muscular atrophy (SMA). She earned a master’s degree in Management Information Systems and bachelor’s degrees in Accounting and Business Honors…

A personal remembrance of a friend, advocate, fundraiser, community builder, and unforgettable force for the ALS community. There are some people you meet who are simply impossible not to like.…