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Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Researchers at Teachers College, Columbia University (New York) are seeking children living with spinal muscular atrophy (SMA) who are receiving disease-modifying therapy to participate in a pilot study exploring the integration of…

John Scurto is a 29-year-old MDA Ambassador from Boca Raton, Florida, who lives with spinal muscular atrophy (SMA) and is a power wheelchair user. He holds an MBA and a…

More than 50 years ago, the Rehabilitation Act first outlawed disability discrimination and established a foundation for disability rights.

Myofibrillar myopathies (MFM) are a group of inherited muscle disorders characterized by progressive muscle weakness and the abnormal accumulation of proteins within muscle cells. These disorders have been linked to…

The ACA, or Obamacare, improves access to affordable health insurance for people with preexisting conditions like neuromuscular diseases.

Hello! In this blog, I’m sharing accessible beauty and fashion tips I’ve collected through plenty of trial and error. Beauty and fashion are major forms of self-expression for me, and…

Some events are hard to picture before you attend. You may wonder who will be there, whether the topics will apply to you, or if it is worth carving out…

Researchers at Alexion, AstraZeneca Rare Disease are conducting a clinical study for adults with generalized myasthenia gravis (gMG) who are currently receiving ravulizumab treatment. The study will evaluate whether a…

Rob Roozeboom is the founder of RISE Ministries and the creator of RiseFest, one of the largest Christian music festivals in the Midwest. Living in Iowa with muscular dystrophy, Rob…