Archives




Blog Post | Independence

How to Make Vocational Training Affordable

Vocational training, technical education, or a trade school may be even more affordable than you think with these resources and support.

Tags: College, Education, Employment, Featured Content, MDA College Scholarships, Transitions, Young Adults


Blog Post | Health, Independence, Lifestyle, Personal Stories, Tools& Resources

MDA Ambassador Guest Blog: Navigating a Busy Life with a Feeding Tube

Richard Farrell Jr. is 19 years old and lives in Pennsylvania. He was diagnosed with Becker muscular dystrophy (BMD) when he was 5 years old. He loves to repair computers,…

Tags: Ambassador Guest Blog, Ambassadors, Caregiving, Equipment and Assistive Devices, Mental Health, Young Adults


Blog Post | News, Science + Research

2026 MDA Clinical & Scientific Conference Opening Highlights the Power of Collaboration

People from across the neuromuscular field gather to learn and collaborate at the 2026 MDA Clinical & Scientific Conference.

Tags: Community, Featured Content, MDA Clinical and Scientific Conference, Research


Blog Post | Health, Science + Research, Tools& Resources

Clinical Study Alert: Phase 1 Study of MyoPAXon in Boys with DMD

Researchers at the University of Minnesota are seeking boys with Duchenne muscular dystrophy (DMD) to participate in a phase 1 clinical trial to evaluate the safety and efficacy of the investigational…

Tags: Clinical Trial Alert, Clinical Trials


Blog Post | Advocacy, Inclusion, Independence, Lifestyle

In Case You Missed It…

Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tags: Advocacy Updates, Community, Featured Content, Innovation, Quest Podcast, Quest Product Guide


Blog Post | Lifestyle, Personal Stories, Tools& Resources

MDA Ambassador Guest Blog: Redefining How I View Myself

Stephanie Chicas is 32 years old and lives in Alexandria, VA. Stephanie has SELENON congenital muscular dystrophy and uses a ventilator via a tracheostomy. She loves cuddling with her cat,…

Tags: Ambassador Guest Blog, Ambassadors, Community, Mental Health, Young Adults


Blog Post | Health, Science + Research, Tools& Resources

Clinical Research Alert: Phase 2 Study of Rapcabtagene Autoleucel in Individuals with IIM

Researchers at Novartis are working to better understand idiopathic inflammatory myopathies (IIMs) and to evaluate a potential new treatment for individuals living with IIM who have not responded to previous treatments…

Tags: Clinical Trial Alert, Clinical Trials


Blog Post | Advocacy, News, Science + Research

MDA Awards Honors Those Driving Progress in Neuromuscular Research and Care

Meet the 2026 MDA Legacy and Momentum award winners who are making a lasting impact on research and care for the neuromuscular community.

Tags: Conference, Featured Content, Innovation, MDA Clinical and Scientific Conference, Research


Blog Post | Health, Science + Research

Clinical Research Alert: Observational Study in Female Carriers of DMD/BMD and Their Biological Children

Researchers at Natera are seeking female carriers of Duchenne/Becker muscular dystrophy (DMD/BMD) and their affected or unaffected biological children for an observational study (DYADS study). This study will collect blood…

Tags: Clinical Trial Alert, Clinical Trials


Blog Post | News, Science + Research

Research Network Supports Limb-Girdle Muscular Dystrophy Treatment Development

How MDA is supporting a research consortium aimed at boosting clinical trial readiness for developing LGMD treatments.

Tags: Clinical Trials, Drug Development, Featured Content, Gene Therapy, Genetic Testing, Grants, Research