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Blog Post | Get Involved, News

A Message of Gratitude and Momentum: Leadership Changes at MDA

At the Muscular Dystrophy Association (MDA), we’re marking a major moment in our history. Dr. Donald S. Wood, who has led MDA as President and CEO since 2020, has announced…

Tags: MDA Leadership


Blog Post | Advocacy, Get Involved, Lifestyle, Personal Stories, Tools& Resources

How to Maximize Your College Experience by Advocating for Accommodations and Accessibility

Jaylin Hsu, from San Marino, California, is senior at the University of California, Los Angeles studying Molecular, Cell, & Developmental Biology. Since his freshman year, he has been involved in…

Tags: College, College Experience, Young Adults


Blog Post | Independence, Lifestyle, News

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tags: Caregiving, Community, Employment, Healthcare, In Case You Missed It, Travel


Blog Post | Get Involved, Personal Stories

A Fire Fighter’s Lasting Impact on the Fight Against ALS: Bob McAlvey’s Life & Legacy

Monty Nye The mission to find treatment for amyotrophic lateral sclerosis (ALS) hits especially close to home for fire fighters, with research revealing that they are twice as likely to…

Tags: Community, Fill the Boot, Fundraising, Relationships


Blog Post | Advocacy, Inclusion, Independence, Lifestyle, Personal Stories

MDA Ambassador Guest Blog: Balancing Gracefully: A Mother’s Day Reflection from Ms. Wheelchair America

Tamara Blackwell is a faith-filled wife, mother, and advocate who empowers women to rise in purpose through God’s Word and personal testimony. As a leader and encourager, she speaks from…

Tags: Ambassador Guest Blog, Ambassadors, Community, Mental Health, Relationships


Blog Post | Get Involved, Personal Stories

Fire Fighters Go the Distance for MDA

Thomas Beers knew from a very young age that he wanted to be a fire fighter. The now 25-year-old Montana native developed an early admiration for the commitment of service…

Tags: Community, Fill the Boot, Fundraising, Summer Camp, Volunteers


Blog Post | Advocacy, Get Involved, Independence, Lifestyle, Personal Stories, Tools& Resources

MDA Ambassador Guest Blog: What I’ve Learned as a Disability and Wellbeing Researcher

Payton Rule is a Clinical Psychology PhD student at Washington University in St. Louis, where her research focuses on wellbeing among individuals with disabilities. She was diagnosed with Charcot-Marie-Tooth disease…

Tags: Ambassador Guest Blog, Ambassadors, Mental Health, Young Adults


Blog Post | Health, Science + Research, Tools& Resources

Simply Stated: Updates in Amyotrophic Lateral Sclerosis (ALS)

Amyotrophic lateral sclerosis (ALS) is a rare, progressive neurodegenerative disease that leads to muscle weakness, loss of physical function, and ultimately death, often within three to five years from symptom onset.…

Tags: Clinical Trials, Community, Research, Research Advances, Simply Stated


Blog Post | Get Involved, Inclusion, Independence, Lifestyle, Personal Stories, Tools& Resources

MDA Ambassador Guest Blog: How the Power of a Few People (and a Dog) Can Change Your World

David Daw is 56 years old and lives in Kingston New York with his wife of 36 years. They have one daughter and four grandchildren. David was diagnosed with myofibrillar myopathy…

Tags: Ambassador Guest Blog, Ambassadors, MDA Resource Center, Mental Health, Relationships, Resources, Support Group


Blog Post | Advocacy, Tools& Resources

Top 5 Things to Know About MDA’s Efforts to Protect Medicaid

In 2025, MDA’s advocacy team has focused on protecting Medicaid from Congressional budget cuts. We know many in the MDA community have questions about why Medicaid is important, current threats…

Tags: Advocacy Updates, Community, MDA Advocacy