Archives
A Message of Gratitude and Momentum: Leadership Changes at MDA
At the Muscular Dystrophy Association (MDA), we’re marking a major moment in our history. Dr. Donald S. Wood, who has led MDA as President and CEO since 2020, has announced…
Tags: MDA Leadership
How to Maximize Your College Experience by Advocating for Accommodations and Accessibility
Jaylin Hsu, from San Marino, California, is senior at the University of California, Los Angeles studying Molecular, Cell, & Developmental Biology. Since his freshman year, he has been involved in…
Tags: College, College Experience, Young Adults
In Case You Missed It…
Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…
A Fire Fighter’s Lasting Impact on the Fight Against ALS: Bob McAlvey’s Life & Legacy
Monty Nye The mission to find treatment for amyotrophic lateral sclerosis (ALS) hits especially close to home for fire fighters, with research revealing that they are twice as likely to…
Tags: Community, Fill the Boot, Fundraising, Relationships
MDA Ambassador Guest Blog: Balancing Gracefully: A Mother’s Day Reflection from Ms. Wheelchair America
Tamara Blackwell is a faith-filled wife, mother, and advocate who empowers women to rise in purpose through God’s Word and personal testimony. As a leader and encourager, she speaks from…
Fire Fighters Go the Distance for MDA
Thomas Beers knew from a very young age that he wanted to be a fire fighter. The now 25-year-old Montana native developed an early admiration for the commitment of service…
Tags: Community, Fill the Boot, Fundraising, Summer Camp, Volunteers
MDA Ambassador Guest Blog: What I’ve Learned as a Disability and Wellbeing Researcher
Payton Rule is a Clinical Psychology PhD student at Washington University in St. Louis, where her research focuses on wellbeing among individuals with disabilities. She was diagnosed with Charcot-Marie-Tooth disease…
Simply Stated: Updates in Amyotrophic Lateral Sclerosis (ALS)
Amyotrophic lateral sclerosis (ALS) is a rare, progressive neurodegenerative disease that leads to muscle weakness, loss of physical function, and ultimately death, often within three to five years from symptom onset.…
MDA Ambassador Guest Blog: How the Power of a Few People (and a Dog) Can Change Your World
David Daw is 56 years old and lives in Kingston New York with his wife of 36 years. They have one daughter and four grandchildren. David was diagnosed with myofibrillar myopathy…
Tags: Ambassador Guest Blog, Ambassadors, MDA Resource Center, Mental Health, Relationships, Resources, Support Group
Top 5 Things to Know About MDA’s Efforts to Protect Medicaid
In 2025, MDA’s advocacy team has focused on protecting Medicaid from Congressional budget cuts. We know many in the MDA community have questions about why Medicaid is important, current threats…
Tags: Advocacy Updates, Community, MDA Advocacy