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Blog Post | Health, Science + Research, Tools& Resources

Clinical Research Alert: Phase 3 Study of RGX-202 in Boys with DMD

REGENXBIO Inc. is enrolling boys living with Duchenne muscular dystrophy (DMD) to participate in a phase 3 clinical trial to evaluate the safety, tolerability and efficacy of the investigational gene…

Tags: Clinical Trial Alert, Clinical Trials


Blog Post | Health, Science + Research, Tools& Resources

Simply Stated: MG Therapeutic Landscape

Myasthenia gravis (MG) is a chronic neuromuscular disease characterized by muscle weakness that worsens after activity and improves after rest. Most people with MG experience one of two forms, ocular…

Tags: Simply Stated


Blog Post | Independence, Lifestyle

MDA Ambassadors Share Tips for Flying with Power Wheelchairs and Medical Equipment

Looking for tips for travel with a power wheelchair or medical equipment? Experienced travelers with disabilities share their airplane hacks.

Tags: Accessible Air Travel, Ambassadors, Featured Content, Travel


Blog Post | Advocacy, Lifestyle, Personal Stories, Tools& Resources

MDA Ambassador Guest Blog: Finding Passion & Purpose in Art

Jennifer Lane is a wife and mother of three grown children and lives in Alabama. She is involved in church ministry and is an advocate and Ambassador for the MDA.…

Tags: Ambassador Guest Blog, Ambassadors, Community, Relationships


Blog Post | Finding a Diagnosis, Health

Your Guide to Genetic Testing for Neuromuscular Diseases

Genetic counselors answer frequent questions about genetic testing: How much does genetic testing cost? Should you be tested?

Tags: Clinical Trials, Featured Content, Gene Therapy, Genetic Testing, Healthcare, Insurance


Blog Post | Advocacy, Get Involved, Lifestyle, Personal Stories, Tools& Resources

Insights by Ira: Let’s Get Active This Summer!

It’s the most wonderful time of the year! The holiday’s season already? No! Summertime! That’s right! The time of year when the days are long and hot, the nights are…

Tags: Ambassadors, Community, Insights by Ira, Ira, MDA Ambassadors, MDA National Ambassador Blog, Relationships


Blog Post | Advocacy, Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

MDA Ambassador Guest Blog: How Making an Impact Renewed My Purpose After FSHD Diagnosis

Ranae Beeker, who is in her late 60s, has found her greatest joy in her roles as a mother to Alethea and Gavin, and as a Gramma to Eilif and…

Tags: Ambassador Guest Blog, Ambassadors, Caregiving, Community, Mental Health, Relationships


Blog Post | Lifestyle, Personal Stories

The Joys (and Lessons) of Fatherhood from MDA Ambassadors

As every father knows, parenthood is an incredible journey filled with joy, challenges, victories, growth, and love. For dads living with a disability, raising children sometimes requires extra patience, resilience,…

Tags: Ambassadors, Community, Parenting, Relationships


Blog Post | Independence, Lifestyle

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tags: Ambassadors, Community, Healthcare, In Case You Missed It, Mental Health, Staying Active, Travel


Blog Post | Advocacy, Finding a Diagnosis, Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

Quest Podcast: Invisible People: Making the Rare Seen

In this Quest Podcast episode, we chat with a former pharmacist turned singer/songwriter who lives with Generalized Myasthenia Gravis. Dania Quill has devoted her time and expertise to create inclusive…

Tags: Community, Employment, Mental Health, Relationships, Staying Active, Young Adults