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In this episode of Quest Podcast, actor, comedian, and disability advocate Steve Way returns to continue our conversation, this time getting even more personal about his own reliance on home…

On September 29 – 30, 2026, advocates returned to Washington D.C. for a Hill Day specifically geared to those in the MDA Advocacy Captain (MAC) program. From as far away…

Researchers at the University of Florida are seeking non-ambulatory boys living with Duchenne muscular dystrophy (DMD) to participate in a study evaluating advanced imaging techniques. The goal is to determine whether…

Sydney Horak lives in Texas and is diagnosed with spinal muscular atrophy (SMA). She earned a master’s degree in Management Information Systems and bachelor’s degrees in Accounting and Business Honors…

A personal remembrance of a friend, advocate, fundraiser, community builder, and unforgettable force for the ALS community. There are some people you meet who are simply impossible not to like.…

Five historic hotels combine ghost stories with verified accessibility features for travelers with disabilities. Here’s what to know before booking a stay.

Paramyotonia congenita (also known as Von Eulenberg disease) is a rare inherited disorder that causes episodes of muscle weakness, stiffness, or paralysis (inability to move). These episodes typically affect the…

Mo Gerhardt at a Michigan State University football game. Mo Gerhardt is changing the game when it comes to accessible and inclusive fashion. The 48-year-old retired Michigan State University (MSU)…

William Quickel lives in East Tennessee. He was diagnosed with a rare form of limb-girdle muscular dystrophy (LGMD) in 2021, when he was 27 years old. He has shared his…

In this episode of Quest Podcast, we chat with Sue Bruhn, PhD, CEO of the Charcot-Marie-Tooth Association (CMTA); Stephan Züchner, MD, PhD, Chief Genomics Officer at the University of Miami…