Archives

At the Muscular Dystrophy Association (MDA), we’re marking a major moment in our history. Dr. Donald S. Wood, who has led MDA as President and CEO since 2020, has announced…

Jaylin Hsu, from San Marino, California, is senior at the University of California, Los Angeles studying Molecular, Cell, & Developmental Biology. Since his freshman year, he has been involved in…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Monty Nye The mission to find treatment for amyotrophic lateral sclerosis (ALS) hits especially close to home for fire fighters, with research revealing that they are twice as likely to…

Tamara Blackwell is a faith-filled wife, mother, and advocate who empowers women to rise in purpose through God’s Word and personal testimony. As a leader and encourager, she speaks from…

Thomas Beers knew from a very young age that he wanted to be a fire fighter. The now 25-year-old Montana native developed an early admiration for the commitment of service…

Payton Rule is a Clinical Psychology PhD student at Washington University in St. Louis, where her research focuses on wellbeing among individuals with disabilities. She was diagnosed with Charcot-Marie-Tooth disease…

Amyotrophic lateral sclerosis (ALS) is a rare, progressive neurodegenerative disease that leads to muscle weakness, loss of physical function, and ultimately death, often within three to five years from symptom onset.…

David Daw is 56 years old and lives in Kingston New York with his wife of 36 years. They have one daughter and four grandchildren. David was diagnosed with myofibrillar myopathy…

In 2025, MDA’s advocacy team has focused on protecting Medicaid from Congressional budget cuts. We know many in the MDA community have questions about why Medicaid is important, current threats…