Archives
The Hidden Power of Self-Care in Caregiving
Four family caregivers share the everyday ways they incorporate self-care into their lives, so they can care for their loved ones.
Tags: Caregiving, Featured Content, Relationships
Meet Our 2025 MDA Quest Photo Contest Winners
People living with neuromuscular diseases shared their meaningful moments in the Quest Media photo contest. Here are this year’s winner and three runners-up.
A Lifetime of Learning: From college to a Career in Disability Advocacy
Naomi Hess pursues a lifetime of education in college and beyond to learn about her interests and progress in her career.
Tags: College, Education, From Where I Sit, Young Adults
New Year, New Financial Plan: Tips to Get Your Budget Back On Track
Follow these tips to save money in your budget when you’re balancing health and disability-related expenses.
Understanding Spinal-Bulbar Muscular Atrophy
Q&A with an expert on spinal-bulbar muscular atrophy (SBMA), or Kennedy’s disease
From Classroom to Courtroom: How Eric Arnold Navigated Accessibility in His Education and Career
How Eric Arnold, an attorney living with spinal muscular atrophy (SMA), built an accessible career and lives independently.
Tags: College, Education, Employment, Quest for Success
Progress Now: Immunotherapy Study Recruiting, Drug Cleared for Expanded Access, and More
Tracking research updates and breakthroughs that help accelerate treatments and cures across MDA diseases
Say Yes to Gene Therapy? Factors to Consider When Gene Therapy Is an Option
When you have access to gene therapy for a neuromuscular disease, weigh the risks and benefits for yourself or your child in your decision-making.
Tags: Clinical Trials, Drug Development, Featured Content, Gene Therapy, Healthcare, My Gene Therapy Journey, Research
Financial Education and Planning Help You Take Charge of Your Financial Future
From strict Medicaid asset limits to frequent medical expenses to underpublicized public programs, families with disabilities can feel like they are walking a financial tightrope trying to balance it all.…
7 Essential Tips for Family Caregivers to Avoid Common Injuries
Learn expert-backed strategies for family caregivers to prevent injuries, protect their well-being, and care for their loved one safely.