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Living in Pennsylvania with her son, Victoria is an active volunteer with the Speak Foundation and LGMD News magazine as an Assistant Editor. She educates occupational and physical therapists, along…

Saida Mahoney is a college student from Oakland, CA, where she is majoring in performing arts. She is a dedicated advocate and activist for people living with disabilities. Saida enjoys…

Chase the Entertainer “My name is Chase the Entertainer. I’m a mentally ill, physically disabled, Native American, professional magician, and I only look like one of those things.” This is…

Lyza Weisman (23) was diagnosed at 13 months old with spinal muscular atrophy (SMA). She was raised in the deep mountains of Colorado before attending Loyola Marymount University in Los Angeles for her…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Researchers at NS Pharma are seeking boys with Duchenne muscular dystrophy (DMD) amenable to exon 44 skipping therapy to participate in a phase 2 clinical study (clinicaltrials.gov ID: NCT05996003) of their…

This year has been an eventful year for newborn screening in neuromuscular disease, with potential further progress on the near horizon. We began 2025 with all 50 states screening for…

For many families with kids, the end of summer includes preparations for heading back to school for a new year of growth, learning, and activities. On top of school supplies,…

Researchers at Solid Biosciences are seeking boys with Duchenne muscular dystrophy (DMD) to participate in a phase 1/2 clinical trial (INSPIRE DUCHENNE) to evaluate the safety and efficacy of the investigational…

Find answers to the five most common corticosteroid questions as well as other considerations if you’re prescribed them to treat a neuromuscular disease.