Archives
A Thank You to MDA Volunteers for the Incredible Joy and Hope They Spread
During this season of Thanksgiving, and throughout The Year of the Volunteer, MDA strives to acknowledge and honor the incredible impact our volunteers have on the families we serve. MDA’s…
MDA Advocacy Update: Latest News on Federal Benefit Programs
As we approach the end of another year, the MDA Advocacy Team provides a recap of some of the most significant developments and expected changes with federal financial benefit programs…
Tags: Advocacy Updates, Finance, Insurance, Resources
2023 Quest Media Photo Contest Winners
See the winning reader photos from the 2023 Quest Media Photo Contest.
Tags: Community, Lasting Impression, Staying Active, Travel
My Myotonic Dystrophy Journey
Emily Blume shares her diagnostic journey discovering how she inherited and how to live with myotonic dystrophy (MD).
Tags: From Where I Sit, Genetic Testing
6 Questions to Ask Your Doctor to Get a Diagnosis
When doctors don’t know what you have, ask your healthcare providers these important questions to help them get to a diagnosis.
Tags: Featured Content, Healthcare
Genetic Testing Can Help Current and Aspiring Parents
Genetic testing and family planning can help parents understand risks of inherited diseases, prepare for them, and take action if they choose to.
Tags: Featured Content, Genetic Testing, Parenting
Can Genetic Testing Make You Uninsurable?
When considering genetic testing, you should know how protections against genetic discrimination affect health, life, disability, and long-term care insurance.
What You Need to Know About COVID-19 and Neuromuscular Disease
Updates on COVID-19’s impact on neuromuscular diseases and how to protect yourself against the virus.
Tags: COVID-19, Healthcare, Thrive 365
Q&A: Understanding Metabolic Myopathies
Neurologist Mark Terrelonge, MD, answers common questions about research and treatment for metabolic myopathies.
How a Doctor Turns His Disability Into a Strength
Abhiram Srivatsa, DO, shares how Emery-Dreifuss muscular dystrophy impacted his journey to becoming a doctor.
Tags: Quest for Success