Blog Post | Get Involved, Personal Stories

A Thank You to MDA Volunteers for the Incredible Joy and Hope They Spread

During this season of Thanksgiving, and throughout The Year of the Volunteer, MDA strives to acknowledge and honor the incredible impact our volunteers have on the families we serve. MDA’s…

Tags: Ambassadors, Community, Relationships, Summer Camp, Volunteers, Year of the Volunteer

Blog Post | Advocacy

MDA Advocacy Update: Latest News on Federal Benefit Programs

As we approach the end of another year, the MDA Advocacy Team provides a recap of some of the most significant developments and expected changes with federal financial benefit programs…

Tags: Advocacy Updates, Finance, Insurance, Resources

Featured Article | Independence, Personal Stories

2023 Quest Media Photo Contest Winners

See the winning reader photos from the 2023 Quest Media Photo Contest.

Tags: Community, Lasting Impression, Staying Active, Travel

Featured Article | Personal Stories

My Myotonic Dystrophy Journey

Emily Blume shares her diagnostic journey discovering how she inherited and how to live with myotonic dystrophy (MD).

Tags: From Where I Sit, Genetic Testing

Blog Post | Health

6 Questions to Ask Your Doctor to Get a Diagnosis

When doctors don’t know what you have, ask your healthcare providers these important questions to help them get to a diagnosis.

Tags: Featured Content, Healthcare

Featured Article | Health, Personal Stories, Science + Research

Genetic Testing Can Help Current and Aspiring Parents

Genetic testing and family planning can help parents understand risks of inherited diseases, prepare for them, and take action if they choose to.

Tags: Featured Content, Genetic Testing, Parenting

Featured Article | Health, Lifestyle

Can Genetic Testing Make You Uninsurable?

When considering genetic testing, you should know how protections against genetic discrimination affect health, life, disability, and long-term care insurance.

Tags: Featured Content, Genetic Testing, Insurance, Web Exclusive

Featured Article | Health

What You Need to Know About COVID-19 and Neuromuscular Disease

Updates on COVID-19’s impact on neuromuscular diseases and how to protect yourself against the virus.

Tags: COVID-19, Healthcare, Thrive 365

Featured Article | Science + Research

Q&A: Understanding Metabolic Myopathies

Neurologist Mark Terrelonge, MD, answers common questions about research and treatment for metabolic myopathies.

Tags: Drug Approval, Drug Development, Research, Research Advances, Spotlight

Featured Article | Personal Stories

How a Doctor Turns His Disability Into a Strength

Abhiram Srivatsa, DO, shares how Emery-Dreifuss muscular dystrophy impacted his journey to becoming a doctor.

Tags: Quest for Success