Archives

Losing a loved one can be overwhelming. That’s why it’s important to know how to manage the emotions of grief.

Lilly F. is a 15-year-old rising junior from New York.  Lilly was diagnosed with CMT1a when she was 4 years old.  With no approved treatments for CMT, Lilly follows a…

August Johnson, more commonly known as A.J., was diagnosed with spinal muscular atrophy (SMA) when he was nine months old. He recently graduated from high school and will be attending…

Summer has finally arrived! Schools are out, parks and beaches are in. The majority of us wear a more summer-appropriate style, while others feel the need to cover what makes…

MDA Engage Symposiums returned in 2023 offering the neuromuscular disease community an opportunity to connect with one another in person and learn directly from expert clinicians about topics related to…

Jada and Bryan Bafus The Bafus family’s YouTube Channel started as a means to provide updates with close friends and family regarding their two sons’ Duchenne muscular dystrophy (DMD)), but…

In this Quest Podcast episode, we chat with the director, executive producer, and leading character of the movie Good Bad Things: Shane Stanger, Steve Way, and Danny Kurtzman respectively. This…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tips, tricks, tools, and products from experts and members of the neuromuscular disease community to help you live independently with a disability.

Rigo is an artist who studied at the Art Institute of Dallas. Although he has dealt with many challenges due to living with a neuromuscular disease, he likes to focus…