Archives
Quest Podcast: Unpacking Disability Pride- Voices from the MDA Community
In this Quest Podcast episode, we chat with MDA Ambassadors, Payton Rule, Fred Graves and former MDA National Ambassador Amy Shinneman. Payton shares a journey of transformation from self-doubt to…
In Case You Missed It…
Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…
Understanding MDA Advocacy’s Education Policy Efforts
At MDA, we believe that students in the neuromuscular community deserve to pursue their own education, career goals, and dreams just like their peers do. To do this, we know…
Tags: Advocacy Updates, College, Education, Young Adults
Simpler, Safer Transfers: Helpful Tips and Useful Equipment
With limited mobility, transferring from one spot to another is a daily challenge. Find tips and equipment for easy, safe transfers.
Tags: Caregiving, Equipment and Assistive Devices, Featured Content, Personal Care Attendants, Travel
Quest Podcast: Service Dogs, Inc. – Paws with a Purpose
In this Quest Podcast episode, we chat with a former attorney who left her law practice to devote her time to building Service Dogs, Inc. Sheri Soltes founded Service Dogs,…
Tags: Community
Clinical Research Alert: Phase 3 Study of RGX-202 in Boys with DMD
REGENXBIO Inc. is enrolling boys living with Duchenne muscular dystrophy (DMD) to participate in a phase 3 clinical trial to evaluate the safety, tolerability and efficacy of the investigational gene…
Simply Stated: MG Therapeutic Landscape
Myasthenia gravis (MG) is a chronic neuromuscular disease characterized by muscle weakness that worsens after activity and improves after rest. Most people with MG experience one of two forms, ocular…
Tags: Simply Stated
MDA Ambassadors Share Tips for Flying with Power Wheelchairs and Medical Equipment
Looking for tips for travel with a power wheelchair or medical equipment? Experienced travelers with disabilities share their airplane hacks.
MDA Ambassador Guest Blog: Finding Passion & Purpose in Art
Jennifer Lane is a wife and mother of three grown children and lives in Alabama. She is involved in church ministry and is an advocate and Ambassador for the MDA.…
Your Guide to Genetic Testing for Neuromuscular Diseases
Genetic counselors answer frequent questions about genetic testing: How much does genetic testing cost? Should you be tested?