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Our Editor-In-Chief, Mindy Henderson, and our MDA Ambassadors shared some of their favorite products, then looked high and low to curate even more fantastic items that celebrate universal use. Some…

Learn how international organizations advocate for neuromuscular diseases around the world.

Ira Walker knows that living independently with a disability takes planning, hard work, determination… and a bit of creativity. The 37-year-old human resources (HR) professional was born with spinal muscular…

How neuromuscular disease affects target health numbers: blood pressure, blood sugar, cholesterol, and BMI.

As the need for increased diversity in STEM education and careers gains more attention, the Smithsonian Science Education Center (SSEC) is leading the way in making meaningful change in our…

Chris Anselmo, MDA’s Director of Market Intelligence Thanksgiving has always been a time of reflection for me. It is a time to come up for air and take stock of…

Researchers in the Division of Pediatric Neurology at the University of Iowa are seeking people at least four years of age who are living with spinal muscular atrophy (SMA), as well as…

Bethlem myopathy, also called Bethlem muscular dystrophy, is a rare disease affecting skeletal muscles and connective tissue. Considered a type of congenital muscular dystrophy, it was initially recognized in the…

Thank you to everybody who entered the 2022 Quest Reader Photo Contest. We received so many great photos from all around the neuromuscular disease community and are excited to share…

I was once on the go all the time, but in recent years, I have found myself slowing down and trying to pace myself. I do not push the limits…