Archives

During this season of Thanksgiving, and throughout The Year of the Volunteer, MDA strives to acknowledge and honor the incredible impact our volunteers have on the families we serve. MDA’s…

As we approach the end of another year, the MDA Advocacy Team provides a recap of some of the most significant developments and expected changes with federal financial benefit programs…

See the winning reader photos from the 2023 Quest Media Photo Contest.

Emily Blume shares her diagnostic journey discovering how she inherited and how to live with myotonic dystrophy (MD).

When doctors don’t know what you have, ask your healthcare providers these important questions to help them get to a diagnosis.

Genetic testing and family planning can help parents understand risks of inherited diseases, prepare for them, and take action if they choose to.

When considering genetic testing, you should know how protections against genetic discrimination affect health, life, disability, and long-term care insurance.

Updates on COVID-19’s impact on neuromuscular diseases and how to protect yourself against the virus.

Neurologist Mark Terrelonge, MD, answers common questions about research and treatment for metabolic myopathies.

Abhiram Srivatsa, DO, shares how Emery-Dreifuss muscular dystrophy impacted his journey to becoming a doctor.