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A young Jon Coppinger Jon Coppinger’s commitment to serving others and raising funds for the neuromuscular disease community began more than four decades ago. The now 51-year-old, the Cleveland, Tennessee…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

The start of a new year often leads people to reflect on the accomplishments and challenges of the past year – as well as look forward to a fresh start…

From major wins to improve air travel for people living with disabilities to ensuring the neuromuscular community had all the resources needed to vote in this year’s election, 2024 was…

Since its founding 75 years ago, the Muscular Dystrophy Association has funded over $1 billion in neuromuscular disease research leading to life-saving treatments. This year, the MDA granted nearly $5.5…

The rare genetic disorder Duchenne muscular dystrophy (DMD) occurs in approximately 1 in every 3,500 to 5,000 male births. Boys affected by DMD experience progressive degeneration and weakness of the…

Sundae Duyssen is 18 years old and lives in Western New York with her family, on their 800 acre cash crop farm.  She was diagnosed with congenital muscular dystrophy around…

Paul Melmeyer, MDA’s Executive Vice President, Public Policy & Advocacy The 2025 MDA Clinical & Scientific Conference will be held March 16-19, 2025, at the Hilton Anatole in Dallas, Texas.…

Adults and children living with neuromuscular disease can experience medical trauma, but there are ways to cope.

Dear Friends, What an honor it has been to be one of MDA’s National Ambassadors! I will never forget all the amazing connections and friendships I have made along this…