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Blog Post | Advocacy, Get Involved, Inclusion, Independence, Lifestyle, Personal Stories, Tools& Resources

Quest Podcast: Unpacking Disability Pride- Voices from the MDA Community

In this Quest Podcast episode, we chat with MDA Ambassadors, Payton Rule, Fred Graves and former MDA National Ambassador Amy Shinneman. Payton shares a journey of transformation from self-doubt to…

Tags: Ambassadors, Community, Education, Mental Health, Relationships, Young Adults


Blog Post | Health, Independence, Lifestyle, Personal Stories, Science + Research

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tags: Community, Genetic Testing, Healthcare, In Case You Missed It, Research, Travel


Blog Post | Advocacy, Inclusion, Independence, Lifestyle, Tools& Resources

Understanding MDA Advocacy’s Education Policy Efforts

At MDA, we believe that students in the neuromuscular community deserve to pursue their own education, career goals, and dreams just like their peers do. To do this, we know…

Tags: Advocacy Updates, College, Education, Young Adults


Blog Post | Health, Independence, Lifestyle

Simpler, Safer Transfers: Helpful Tips and Useful Equipment

With limited mobility, transferring from one spot to another is a daily challenge. Find tips and equipment for easy, safe transfers.

Tags: Caregiving, Equipment and Assistive Devices, Featured Content, Personal Care Attendants, Travel


Blog Post | Advocacy, Get Involved, Independence, Lifestyle, Personal Stories, Tools& Resources

Quest Podcast: Service Dogs, Inc. – Paws with a Purpose

In this Quest Podcast episode, we chat with a former attorney who left her law practice to devote her time to building Service Dogs, Inc. Sheri Soltes founded Service Dogs,…

Tags: Community


Blog Post | Health, Science + Research, Tools& Resources

Clinical Research Alert: Phase 3 Study of RGX-202 in Boys with DMD

REGENXBIO Inc. is enrolling boys living with Duchenne muscular dystrophy (DMD) to participate in a phase 3 clinical trial to evaluate the safety, tolerability and efficacy of the investigational gene…

Tags: Clinical Trial Alert, Clinical Trials


Blog Post | Health, Science + Research, Tools& Resources

Simply Stated: MG Therapeutic Landscape

Myasthenia gravis (MG) is a chronic neuromuscular disease characterized by muscle weakness that worsens after activity and improves after rest. Most people with MG experience one of two forms, ocular…

Tags: Simply Stated


Blog Post | Independence, Lifestyle

MDA Ambassadors Share Tips for Flying with Power Wheelchairs and Medical Equipment

Looking for tips for travel with a power wheelchair or medical equipment? Experienced travelers with disabilities share their airplane hacks.

Tags: Accessible Air Travel, Ambassadors, Featured Content, Travel


Blog Post | Advocacy, Lifestyle, Personal Stories, Tools& Resources

MDA Ambassador Guest Blog: Finding Passion & Purpose in Art

Jennifer Lane is a wife and mother of three grown children and lives in Alabama. She is involved in church ministry and is an advocate and Ambassador for the MDA.…

Tags: Ambassador Guest Blog, Ambassadors, Community, Relationships


Blog Post | Finding a Diagnosis, Health

Your Guide to Genetic Testing for Neuromuscular Diseases

Genetic counselors answer frequent questions about genetic testing: How much does genetic testing cost? Should you be tested?

Tags: Clinical Trials, Featured Content, Gene Therapy, Genetic Testing, Healthcare, Insurance