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Blog Post | Advocacy, Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

MDA Ambassador Guest Blog: How Making an Impact Renewed My Purpose After FSHD Diagnosis

Ranae Beeker, who is in her late 60s, has found her greatest joy in her roles as a mother to Alethea and Gavin, and as a Gramma to Eilif and…

Tags: Ambassador Guest Blog, Ambassadors, Caregiving, Community, Mental Health, Relationships


Blog Post | Lifestyle, Personal Stories

The Joys (and Lessons) of Fatherhood from MDA Ambassadors

As every father knows, parenthood is an incredible journey filled with joy, challenges, victories, growth, and love. For dads living with a disability, raising children sometimes requires extra patience, resilience,…

Tags: Ambassadors, Community, Parenting, Relationships


Blog Post | Independence, Lifestyle

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tags: Ambassadors, Community, Healthcare, In Case You Missed It, Mental Health, Staying Active, Travel


Blog Post | Advocacy, Finding a Diagnosis, Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

Quest Podcast: Invisible People: Making the Rare Seen

In this Quest Podcast episode, we chat with a former pharmacist turned singer/songwriter who lives with Generalized Myasthenia Gravis. Dania Quill has devoted her time and expertise to create inclusive…

Tags: Community, Employment, Mental Health, Relationships, Staying Active, Young Adults


Blog Post | Get Involved, Health, Inclusion, Independence, Lifestyle, Personal Stories, Tools& Resources

MDA Ambassador Guest Blog: How My MG Journey Has Shaped Who I Am Today

Courtney B. is a passionate advocate for living life to the fullest despite the challenges that come with chronic illness. A high school senior from Indiana, she is an early…

Tags: Ambassador Guest Blog, Ambassadors, College, Community, Mental Health, Relationships, Staying Active, Summer Camp, Year of Independence, Young Adults


Featured Article | Advocacy, Inclusion, Independence

Accessible Air Travel Is Ready for Takeoff. Can It Avoid Turbulence?

Updates on recent policy and rule changes to make air travel safer and more accessible for people with disabilities.

Tags: Accessible Air Travel, Featured Content, Travel, Web Exclusive


Blog Post | Lifestyle, Personal Stories, Tools& Resources

My Father’s Journey with ALS

Father’s Day can be a beautiful celebration — but also a tender time for many. For those whose fathers are no longer with us, this day may carry sorrow along…

Tags: Caregiving, Community, MDA Care Centers, Mental Health, Relationships


Blog Post | Finding a Diagnosis, Health, Science + Research, Tools& Resources

Simply Stated: Updates in Ryanodine Receptor 1-Related Disorders (RYR-1-RD)

RYR-1-Related Disorders (RYR-1-RD) are a group of rare, inherited muscle disorders caused by variants in the RYR1 gene. This gene encodes the ryanodine receptor type-1 (RyR1) protein, which is important for…

Tags: Clinical Trials, Gene Therapy, MDA Resource Center, Simply Stated


Blog Post | Health, Independence

Speech Devices Improve Communication When ALS Affects the Voice

Communication devices are crucial technology for people with ALS, or Lou Gehrig’s disease, when their speech declines.

Tags: Equipment and Assistive Devices, Featured Content, Technology


Featured Article | Inclusion, Lifestyle

Accessible Travel on a Budget: Smart Tips for Exploring Affordably

Travel with a disability doesn’t have to be expensive. Follow this guide to discover accessible, budget-friendly adventures worldwide.

Tags: Accessible Air Travel, Featured Content, Thrive 365, Travel