Archives
Everything You Need to Know About MDA Hill Day 2024
Once again, MDA and its grassroots advocates came together in Washington D.C. and ensured that lawmakers heard their voices during MDA on the Hill. This multi-day event from September 8-10…
Our Affordable Accessible Bathroom Renovation
A writer with Charcot-Marie-Tooth disease (CMT) shares what she learned from her affordable accessible bathroom remodel.
Tags: Featured Content
Next-Generation Exon-Skipping Therapies May Change the DMD Landscape
The next generation of exon skipping-therapies for Duchenne muscular dystrophy promises to be more effective at restoring muscle-building dystrophin protein.
Tags: Antisense Oligonucleotide, Clinical Trials, Drug Development, Exon Skipping, Featured Content, Grants, Research
Overjoyed About Inclusion’s Accessible Controller is Taking Video Gaming to the Next Level
Anthony DeVergillo Anthony DeVergillo is passionate about video games – and inclusion. The 31-year-old from Bedminster, NJ, brought that passion to the creation of Overjoyed About Inclusion, a platform that…
Tags: Community, Innovation, Let's Play, Technology
Remote ALS Research Study Expansion
The MDA MOVR program has paired with Mitsubishi Tanabe Pharma America, Inc. (MTPA) to collaborate on a remote observational research study focusing on amyotrophic lateral sclerosis (ALS). Study Details &…
MDA Kickstart: A New Hope for Ultra-Rare Neuromuscular Disease Treatments
At the Muscular Dystrophy Association (MDA), we’re always striving to break new ground in the fight against neuromuscular diseases. Today, we’re thrilled to share an exciting new initiative that brings…
MDA Ambassador Guest Blog: Increasing Representation of Disabilities in Children’s Literature is My Life’s Goal
Thornton Blease wants to live in a world where horses and dragons roam free, and everyone can reach their fullest potential. He lives with myotonic muscular dystrophy and resides in Stewartsville,…
In Case You Missed It…
Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…
Tags: College, Community, Drug Development, Education, Gene Therapy, In Case You Missed It, Research, Staying Active, Transitions
Good Bad Things Virtual Premiere Event Watch. Donate. Feel.
Movies have always been an escape, and a world of fantasy moviegoers can get lost in. However, movies also have an irrefutable impact on our culture. The music, the clothes,…
My Gene Therapy Journey: The Curran Family
Conner Curran Conner Curran made history when he became the first child to receive gene therapy treatment for Duchenne muscular dystrophy (DMD) in a 2018 Pfizer clinical trial. Clinical trials…