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Mashauna Black Keeps Following Her Passion
Mashauna Black, who lives with limb-girdle muscular dystrophy (LGMD), found a new path to pursue her dream of working in healthcare.
Ready to Work: How People with Disabilities Balance Benefits and Employment
How disability benefits are affected by employment and how to work with eligibility and income restrictions.
Tags: Employment, Featured Content, Insurance, Young Adults
4 Key Ways to Support Siblings of Kids with Neuromuscular Diseases
When a child is diagnosed with a neuromuscular disease, it impacts siblings, too. Here’s how to help them cope and build resilience.
Tap Into Accessibility with These Underused Smartphone Features
These often-overlooked accessibility features and apps can enhance your smartphone experience.
Tags: Featured Content, Technology, Thrive 365
Simply Stated: Updates in Pompe Disease and Other Glycogen Storage Diseases
Glycogen storage diseases (GSDs) are a group of rare inherited conditions that occur when the body is not able to use or store glycogen properly. People with GSDs may experience…
Tags: Simply Stated
MDA’s Development Grants Support Promising Researchers Entering the Neuromuscular Field
MDA’s Development Grants to support early-career scientists are vital to driving innovation in neuromuscular disease research.
Tags: Featured Content, Grants, Research
First Semester in a New York Minute
Jonathan Lengel is an actor, singer, and performer best known for his role as Archie in Netflix’s Broadway Adaptation of 13: the Musical. Jonathan lives with a rare form of…
Tags: Ambassadors, College, College Experience, Community, MDA College Scholarships, Year of Independence, Young Adults
Hoyer Lifts and Beyond: Choosing the Right Lift Device
With so many types of lifts available, how do choose the right one? Here are tips and considerations to find a transfer lift or lift system that works for you.
MDA’s Origin Story: A Grassroots Legacy
As we celebrate MDA’s 75th anniversary, you may be asking, how did this all begin? It’s no surprise that MDA started as a grassroots organization. From the earliest days, our…
Clinical Trial Alert: Phase 2/3 Study of an Investigational Medication in Pediatric Patients with Generalized Myasthenia Gravis
Researchers at Janssen Research & Development, LLC are seeking pediatric patients from 8 to less than 18 years of age who have generalized myasthenia gravis (gMG) with symptoms despite receiving…