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Blog Post | Get Involved, Health, Inclusion, Independence, Lifestyle, Personal Stories

The Value of Community and Connection through Sports and NMD

Darci Garcia is 44 years old. She is originally from Iowa and has been living in suburban Houston, Texas for the last 17 years. Darci is a wife, mother, retired…

Tags: Ambassador Guest Blog, Ambassadors


Blog Post | Health, Science + Research

Clinical Trial Alert: Phase 3 Study of ALXN1720 in Adults with Generalized Myasthenia Gravis (gMG)

Researchers at Alexion AZ Rare Disease are seeking adults living with generalized myasthenia gravis (gMG) to participate in a phase 3 clinical trial (PREVAIL Study) to evaluate the safety and efficacy…

Tags: Clinical Trial Alert


Blog Post | Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

MDA National Ambassador Blog- Insights by Ira on Summers of Friendship & Growth: Life Lessons from MDA Camp

I remember the magic of MDA Summer Camp like it was yesterday, especially taking a swim with all of my friends on a scorching summer day! It is one of…

Tags: Ambassadors, Caregiving, Community, Insights by Ira, Ira, MDA Summer Camp, Mental Health, Relationships, Staying Active, Summer Camp, Young Adults


Featured Article | Inclusion, Independence, Lifestyle

Building With Universal Design Is Good for Everyone

How building with universal design creates spaces that are inclusive and enjoyable for everyone, and how to find accessible places.

Tags: Community, Featured Content


Featured Article | Inclusion, Lifestyle, Personal Stories

A Guide to Getting Involved in Adaptive Sports

There is an adaptive sport for every ability. Read this guide to get started and find programs, resources, and equipment.

Tags: Ambassadors, Equipment and Assistive Devices, Featured Content, Leah, Resources, Staying Active, Young Adults


Featured Article | Health

Can Neuromuscular Disease Affect Your Bones?

Learn the three factors that contribute to bone loss, low bone density, and osteoporosis for people with neuromuscular diseases.

Tags: Featured Content, Healthcare, Nutrition, Web Exclusive


Featured Article | Lifestyle, Personal Stories

Writing About Adversity Leads to Unexpected Benefits

Chris Anselmo, who lives with limb-girdle muscular dystrophy (LGMD), shares why he started writing about handling adversity.

Tags: From Where I Sit, Mental Health


Featured Article | Lifestyle, Personal Stories

Nature Lover With Myotonic Dystrophy Paints a Room With a View

Heather Nightingale lives with myotonic dystrophy type 1 (DM1) and painted a mural to heal and reconnect with nature in her home.

Tags: Lasting Impression, Staying Active


Featured Article | Get Involved, Health, News

How to Get One-on-One Support From MDA

MDA offers many opportunities to connect with a specialist on our team to get one-on-one support.

Tags: A Look Inside, Community, Equipment and Assistive Devices, Gene Therapy, Healthcare, MDA Care Centers, MDA Connect, MDA Peer Connections, MDA Resource Center


Featured Article | Lifestyle, Personal Stories

Managing Myasthenia Gravis With Grace

Professional dancer Carol Alvarez manages myasthenia gravis (MG) and a career in the performing arts.

Tags: Ambassadors, Quest for Success, Staying Active