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The Value of Community and Connection through Sports and NMD
Darci Garcia is 44 years old. She is originally from Iowa and has been living in suburban Houston, Texas for the last 17 years. Darci is a wife, mother, retired…
Tags: Ambassador Guest Blog, Ambassadors
Clinical Trial Alert: Phase 3 Study of ALXN1720 in Adults with Generalized Myasthenia Gravis (gMG)
Researchers at Alexion AZ Rare Disease are seeking adults living with generalized myasthenia gravis (gMG) to participate in a phase 3 clinical trial (PREVAIL Study) to evaluate the safety and efficacy…
Tags: Clinical Trial Alert
MDA National Ambassador Blog- Insights by Ira on Summers of Friendship & Growth: Life Lessons from MDA Camp
I remember the magic of MDA Summer Camp like it was yesterday, especially taking a swim with all of my friends on a scorching summer day! It is one of…
Tags: Ambassadors, Caregiving, Community, Insights by Ira, Ira, MDA Summer Camp, Mental Health, Relationships, Staying Active, Summer Camp, Young Adults
Building With Universal Design Is Good for Everyone
How building with universal design creates spaces that are inclusive and enjoyable for everyone, and how to find accessible places.
Tags: Community, Featured Content
A Guide to Getting Involved in Adaptive Sports
There is an adaptive sport for every ability. Read this guide to get started and find programs, resources, and equipment.
Tags: Ambassadors, Equipment and Assistive Devices, Featured Content, Leah, Resources, Staying Active, Young Adults
Can Neuromuscular Disease Affect Your Bones?
Learn the three factors that contribute to bone loss, low bone density, and osteoporosis for people with neuromuscular diseases.
Tags: Featured Content, Healthcare, Nutrition, Web Exclusive
Writing About Adversity Leads to Unexpected Benefits
Chris Anselmo, who lives with limb-girdle muscular dystrophy (LGMD), shares why he started writing about handling adversity.
Tags: From Where I Sit, Mental Health
Nature Lover With Myotonic Dystrophy Paints a Room With a View
Heather Nightingale lives with myotonic dystrophy type 1 (DM1) and painted a mural to heal and reconnect with nature in her home.
Tags: Lasting Impression, Staying Active
How to Get One-on-One Support From MDA
MDA offers many opportunities to connect with a specialist on our team to get one-on-one support.
Tags: A Look Inside, Community, Equipment and Assistive Devices, Gene Therapy, Healthcare, MDA Care Centers, MDA Connect, MDA Peer Connections, MDA Resource Center
Managing Myasthenia Gravis With Grace
Professional dancer Carol Alvarez manages myasthenia gravis (MG) and a career in the performing arts.