Archives
Get Outside: Tips for Accessible Outdoor Activities
As the weather warms and the days lengthen, there are many different ways to get outside and enjoy the great outdoors. It’s the season of picnics, concerts, park days, and…
Tags: Community, Resources, Staying Active
Episode 40- Unlocking Access and Inspiring Action with Sophie Morgan
In this Quest Podcast episode, we chat with world-renowned advocate, entrepreneur, TV personality and producer, Sophie Morgan. She devotes her time and expertise to create inclusive spaces for those with…
How to Cope When Your Child Is Diagnosed
Tips to cope and live with hope when your child is diagnosed with muscular dystrophy or any neuromuscular disease.
Tags: Community, Community Education, Featured Content, MDA Care Centers, MDA Resource Center, Mental Health, Parenting, Resources
Special Olympic Silver-Medalist Shines Bright in Her Community
Summer Nagele with one of her many Special Olympics medals. Summer Nagele is intent on sharing her gifts and talents with the world. The 19-year-old activist, advocate, and athlete has…
Tags: Community, Fundraising, Staying Active, Young Adults
Coping With a Difficult Diagnosis: Your Emotions Are Normal
You’re not alone when coping with a diagnosis of muscular dystrophy or neuromuscular disease. Here are tips for handling your feelings and finding resources to live well.
Tags: Community, Community Education, Featured Content, MDA Care Centers, MDA Peer Connections, MDA Resource Center, Mental Health, Resources
MDA Ambassador Guest Blog: The Sailing of a Lifetime
Living in Pennsylvania with her son, Victoria is an active volunteer with her local newspaper, parent-teacher organization, and LGMD News magazine as an Assistant Editor. Her social media accounts are a…
Tags: Ambassador Guest Blog, Ambassadors
MDA National Ambassador Blog-Letters From Leah: I Love Me!
In today’s fast paced world, we often forget to take care of ourselves. We focus so much on helping others that we often tend to put our own feelings and…
Tags: Ambassadors, Leah, Letters From Leah, Mental Health
In Case You Missed It…
Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…
Tags: Accessible Air Travel, Drug Approval, In Case You Missed It, Innovation, Research, Research Advances
Clinical Study Alert: Phase 2 Study of Vamorolone in Adults with BMD
Researchers at the University of Pittsburgh are seeking adults living with Becker muscular dystrophy (BMD) to participate in a phase 2 double-blind, placebo-controlled study to evaluate the safety and efficacy of…
MDA Ambassador Guest Blog: Embracing Adventure (with a Little Help from My Friends)
Travis Rasmussen is 30 years old. He lives in Wisconsin, but will soon move to Virginia to live with his brother, Tyler. Travis was diagnosed with spinal muscular atrophy (SMA)…
Tags: Ambassador Guest Blog, Ambassadors