Archives

Advocacy for the neuromuscular disease community is just one of the key ways MDA works to support the neuromuscular disease community. To expand our impact and undertake projects of importance…

Gabrielle Runyon is a 22-year-old Kentucky native who currently goes to the illustrious Tennessee State University. She is obtaining her master’s in counseling with a concentration in clinical mental health.…

In this Quest Podcast episode, we chat with a certified Life Coach who lives with spinal muscular atrophy. Amber Bosselman has devoted her career to providing living skills for individuals…

With a new Congress and Administration in office, it’s safe to say that 2025 is going be a year full of change. But what remains consistent is MDA’s commitment to…

Richard Fry is an aspiring writer and poet. He is first and foremost a musician. Through writing and folk music, Richard strives to inspire admiration for the innate beauty of…

From major wins to improve air travel for people living with disabilities to ensuring the neuromuscular community had all the resources needed to vote in this year’s election, 2024 was…

Paul Melmeyer, MDA’s Executive Vice President, Public Policy & Advocacy The 2025 MDA Clinical & Scientific Conference will be held March 16-19, 2025, at the Hilton Anatole in Dallas, Texas.…

Adults and children living with neuromuscular disease can experience medical trauma, but there are ways to cope.

Sorayda Rivera is a 37-year-old, first-generation Mexican American woman from Texas living with spinal muscular atrophy (SMA) type 3. Diagnosed at age three, Sorayda has defied expectations, building a life…

Ally Pack-Adair is 21 years old. She lives in Arizona and was diagnosed with a mitochondrial disease when she was a few weeks old. Ally enjoys arts and crafts, reading,…