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Blog Post | Advocacy, Get Involved, Lifestyle, Personal Stories, Tools& Resources

How to Maximize Your College Experience by Advocating for Accommodations and Accessibility

Jaylin Hsu, from San Marino, California, is senior at the University of California, Los Angeles studying Molecular, Cell, & Developmental Biology. Since his freshman year, he has been involved in…

Tags: College, College Experience, Young Adults


Blog Post | Advocacy, Get Involved, Independence, Lifestyle, Personal Stories, Tools& Resources

MDA Ambassador Guest Blog: What I’ve Learned as a Disability and Wellbeing Researcher

Payton Rule is a Clinical Psychology PhD student at Washington University in St. Louis, where her research focuses on wellbeing among individuals with disabilities. She was diagnosed with Charcot-Marie-Tooth disease…

Tags: Ambassador Guest Blog, Ambassadors, Mental Health, Young Adults


Blog Post | Health, Science + Research, Tools& Resources

Simply Stated: Updates in Amyotrophic Lateral Sclerosis (ALS)

Amyotrophic lateral sclerosis (ALS) is a rare, progressive neurodegenerative disease that leads to muscle weakness, loss of physical function, and ultimately death, often within three to five years from symptom onset.…

Tags: Clinical Trials, Community, Research, Research Advances, Simply Stated


Blog Post | Advocacy, Get Involved, Health, Inclusion, Independence, Lifestyle, Personal Stories

MDA Ambassador Guest Blog: Spreading Awareness One T-shirt at a Time

Dwayne Wilson is 57 years old. He is originally from Southern California and lived in Spokane, WA. for 20 years until moving back home to Irvine, Ca, in 2017. Dwayne…

Tags: Ambassador Guest Blog, Ambassadors, Community


Blog Post | Health, Inclusion, Independence, Lifestyle, Personal Stories

Insights by Ira: A Celebration of the Best of MDA Center Care Physicians

Prior to the start of 2025, I began the usual and customary exercise of establishing professional and personal goals for the new year.  While I have many goals this year,…

Tags: Ambassadors, Healthcare, Insights by Ira, Ira, MDA Ambassadors, MDA Care Centers, MDA National Ambassador Blog, Resources


Blog Post | Get Involved, Health, Inclusion, Independence, Lifestyle, Personal Stories, Tools& Resources

MDA Ambassador Guest Blog: Make Sense? Say Yes!

Grace LoPiccolo, 21, of St. Louis, Missouri, was diagnosed with CMT-1A at the age of nine. She currently attends Saint Louis University majoring in Bioethics and Health Studies, and  Catholic…

Tags: Ambassador Guest Blog, Ambassadors, Community, Relationships, Staying Active, Young Adults


Blog Post | Get Involved, Inclusion, Lifestyle

Five Tips to Increase Socialization this Spring

Increasing socialization, cultivating meaningful relationships and friendships, and limiting isolation or loneliness in an increasingly remote world is a desire – and challenge – for many adults. Individuals living with…

Tags: Community, Mental Health, Relationships, Staying Active


Blog Post | Advocacy, Get Involved, Health, Inclusion, Independence, Lifestyle, Personal Stories, Science + Research, Tools& Resources

Quest Podcast: PJ’s Protocol: A Lifesaving Procedure Fueled by Love

In this episode of Quest Podcast, we chat with three pillars of the Duchenne muscular dystrophy community who are here with us on the 10th anniversary of PJ’s protocol. First,…

Tags: Caregiving, Community, Drug Approval, Drug Development, Healthcare, Innovation, Research


Blog Post | Get Involved, Health, Inclusion, Independence, Lifestyle, Personal Stories, Tools& Resources

MDA Ambassador Guest Blog: Finding My Way to a Sober and Healthy Way of Living

Cassidy Nilles is 35 years old and lives in Illinois. Cassidy lives with Limb Girdle muscular dystrophy (LGMD) type 2J. She lives with her daughter, Capri, and their maltipoo, Mila,…

Tags: Ambassador Guest Blog, Ambassadors, Community, Mental Health, Relationships, Young Adults


Featured Article | Finding a Diagnosis, Health

Why You Should Practice Shared Healthcare Decision-Making

Practicing shared decision-making with your healthcare provider helps you steer your care journey with confidence

Tags: Featured Content, Healthcare, MDA Care Centers