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Life experiences and a positive attitude taught Ken Yorgan not to underestimate himself.

MDA’s advocacy team ensures the neuromuscular disease community is heard in Washington

Learn from personal stories how to overcome embarrassment with asking for help in daily life.

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Learn how to develop your child’s ability to make friends in school

MDA advocates returned to Washington to fight for accessible air travel

Jonathan Piacentino was diagnosed with DMD in 1998. Learn how he’s navigating life after college.

When you live with rare a neuromuscular disease, you should know what steps to take in a medical emergency with first responders and in the hospital.

Too many people living with a neuromuscular disease (NMD) have difficulty obtaining an accurate diagnosis. This “diagnostic odyssey” can take years or decades to resolve and leads to frustration and…

For those living with a physical disability, it is not uncommon to encounter barriers or challenges in the pursuit for independence, education, and employment. Accessing appropriate and effective programs and…