Archives
What You Need to Know About Substance Use Disorder
The CDC estimates that 40.3 million individuals in America experienced Substance Use Disorder (SUD) in the year 2020. SUD, also commonly referred to as substance abuse or addiction, is a…
Tags: Community, Healthcare, Mental Health, Resources
2023 MDA Clinical and Scientific Conference Starts Strong
The first day of the 2023 MDA Clinical & Scientific Conference covered FDA approval, gene therapy, ultra-rare diseases, and more.
Tags: Clinical Trials, Drug Development, Featured Content, Gene Therapy, Innovation, MDA Clinical and Scientific Conference, Research
Quest Podcast: The Changing Landscape of Neuromuscular Care
As new treatments, cutting edge research, and a better understanding of genetic sequencing and mutations bring innovative change to the treatment landscape for neuromuscular disease, understanding your options and accessing…
Tags: Drug Development, Gene Therapy, Genetic Testing, Healthcare, Innovation, MDA Care Centers, Quest Podcast, Research, Research Advances
The Good and Bad of Using Public Transit With a Disability
Public transportation can mean independence for people with disabilities if you know how to use it — and how to advocate for accessibility.
Tags: Resources, Thrive 365
Muscular Dystrophy and Dating
These tips from community members and a mental health expert can help you navigate dating and sex with a neuromuscular disease.
MOVR Data Hub Aims to Improve Research and Care
Neuromuscular diseases are a diverse group of rare, mostly genetic conditions. This has made developing treatments challenging. However, investments in rare disease research by private and public agencies, including MDA,…
Quest Podcast: New Year, New Mindset with Jose Flores
We are excited to start a new year talking about new mindsets, especially when it comes to adversity. On our first episode of 2023, Mindy talks mindset with Jose Flores,…
Tags: Quest Podcast
Nutrition on a Budget
Expert tips for healthy eating on a budget in a time of rising food costs and deepening food shortages.
Tags: Featured Content, Nutrition
Access to Neuromuscular Disease Care for Black People and People of Color
A look at equity in treatment and access to care for Blacks and other people of color in the neuromuscular disease community.
Simply Stated: Updates in Oculopharyngeal Muscular Dystrophy (OPMD)
Oculopharyngeal muscular dystrophy (OPMD) is a rare, slowly progressive muscle disease that is characterized by weakness of the eyelids (ocular) and throat (pharyngeal) muscles. In some cases, OPMD also causes…