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At MDA, we believe that students in the neuromuscular community deserve to pursue their own education, career goals, and dreams just like their peers do. To do this, we know…

REGENXBIO Inc. is enrolling boys living with Duchenne muscular dystrophy (DMD) to participate in a phase 3 clinical trial to evaluate the safety, tolerability and efficacy of the investigational gene…

As every father knows, parenthood is an incredible journey filled with joy, challenges, victories, growth, and love. For dads living with a disability, raising children sometimes requires extra patience, resilience,…

Wheelchair-accessible vehicles (WAV) through rideshares and taxis fill a critical transportation gap for passengers with disabilities.

In late March, the U.S. Department of Health and Human Services (HHS) announced a ‘dramatic restructuring’ of the Department, including reorganization of the Administration for Community Living (ACL), an agency…

Jaylin Hsu, from San Marino, California, is senior at the University of California, Los Angeles studying Molecular, Cell, & Developmental Biology. Since his freshman year, he has been involved in…

Payton Rule is a Clinical Psychology PhD student at Washington University in St. Louis, where her research focuses on wellbeing among individuals with disabilities. She was diagnosed with Charcot-Marie-Tooth disease…

Amyotrophic lateral sclerosis (ALS) is a rare, progressive neurodegenerative disease that leads to muscle weakness, loss of physical function, and ultimately death, often within three to five years from symptom onset.…

Dwayne Wilson is 57 years old. He is originally from Southern California and lived in Spokane, WA. for 20 years until moving back home to Irvine, Ca, in 2017. Dwayne…

Prior to the start of 2025, I began the usual and customary exercise of establishing professional and personal goals for the new year.  While I have many goals this year,…