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Blog Post | Research, Science + Research

Simply Stated: Updates in Primary Mitochondrial Diseases

Mitochondria, often called the “powerhouses of the cell,” generate much of the energy that our bodies need to function. When mitochondria fail, organs that require high levels of energy, like…

Tags: Clinical Trials, Healthcare, Research, Simply Stated


Blog Post | Advocacy, Get Involved, Inclusion, Independence, Lifestyle, Personal Stories, Tools& Resources

MDA Ambassador Guest Blog: Breaking the Chains of Stigma in My Arab Community

Samaher (Sam) Abuzahriyeh is 33 years old and lives in Millbrae, CA. She was diagnosed with limb-girdle muscular dystrophy (LGMD) at age 6 and began using a power wheelchair at…

Tags: Ambassador Guest Blog, Ambassadors, Community, Mental Health, Relationships, Young Adults


Blog Post | Independence, Lifestyle

Quick Guide: Understanding Programs and Benefits for People with Disabilities

Here are the programs and benefits you should know about to ease the financial burden of living with a disability and build economic security.

Tags: Featured Content, Finance, Insurance, Resource


Blog Post | Independence, Lifestyle, Tools& Resources

Tis the Season for Holiday Hacks and Tips

For some, the holiday season means the hustle and bustle of hosting, traveling, gift giving, and gatherings. For others, the end of the year is a time to slow down,…

Tags: Ambassadors, Community, Resources


Blog Post | Advocacy, Health, Lifestyle, News, Tools& Resources

5 Things Advocates Should Know: The Alleviating Barriers for Caregivers Act

November is National Family Caregivers Month, and it is important to MDA to uplift the importance of family caregivers in the neuromuscular community. Due to decades of underinvestment in paid…

Tags: Advocacy Updates, Caregiving, Healthcare


Featured Article | Health, Personal Stories

The Hidden Power of Self-Care in Caregiving

Four family caregivers share the everyday ways they incorporate self-care into their lives, so they can care for their loved ones.

Tags: Caregiving, Featured Content, Relationships, Web Exclusive


Featured Article | Independence, Lifestyle

New Year, New Financial Plan: Tips to Get Your Budget Back On Track

Follow these tips to save money in your budget when you’re balancing health and disability-related expenses.

Tags: Equipment and Assistive Devices, Finance, Thrive 365


Featured Article | News, Science + Research

Progress Now: Immunotherapy Study Recruiting, Drug Cleared for Expanded Access, and More

Tracking research updates and breakthroughs that help accelerate treatments and cures across MDA diseases

Tags: Clinical Trials, Drug Development, Gene Therapy, Research


Featured Article | Health, Science + Research

Say Yes to Gene Therapy? Factors to Consider When Gene Therapy Is an Option

When you have access to gene therapy for a neuromuscular disease, weigh the risks and benefits for yourself or your child in your decision-making.

Tags: Clinical Trials, Drug Development, Featured Content, Gene Therapy, Healthcare, My Gene Therapy Journey, Research


Featured Article | Independence, Lifestyle

Financial Education and Planning Help You Take Charge of Your Financial Future

From strict Medicaid asset limits to frequent medical expenses to underpublicized public programs, families with disabilities can feel like they are walking a financial tightrope trying to balance it all.…

Tags: Community Education, Featured Content, Finance, Insurance, MDA Resource Center, Resources