Archives
Understanding MDA Advocacy’s Education Policy Efforts
At MDA, we believe that students in the neuromuscular community deserve to pursue their own education, career goals, and dreams just like their peers do. To do this, we know…
Tags: Advocacy Updates, College, Education, Young Adults
Clinical Research Alert: Phase 3 Study of RGX-202 in Boys with DMD
REGENXBIO Inc. is enrolling boys living with Duchenne muscular dystrophy (DMD) to participate in a phase 3 clinical trial to evaluate the safety, tolerability and efficacy of the investigational gene…
The Joys (and Lessons) of Fatherhood from MDA Ambassadors
As every father knows, parenthood is an incredible journey filled with joy, challenges, victories, growth, and love. For dads living with a disability, raising children sometimes requires extra patience, resilience,…
Tags: Ambassadors, Community, Parenting, Relationships
WAV Taxis and Rideshares Open Doors for Inclusive Transportation
Wheelchair-accessible vehicles (WAV) through rideshares and taxis fill a critical transportation gap for passengers with disabilities.
Tags: Featured Content, Travel
Understanding the Threats to the ACL – and What It Means for You
In late March, the U.S. Department of Health and Human Services (HHS) announced a ‘dramatic restructuring’ of the Department, including reorganization of the Administration for Community Living (ACL), an agency…
How to Maximize Your College Experience by Advocating for Accommodations and Accessibility
Jaylin Hsu, from San Marino, California, is senior at the University of California, Los Angeles studying Molecular, Cell, & Developmental Biology. Since his freshman year, he has been involved in…
Tags: College, College Experience, Young Adults
MDA Ambassador Guest Blog: What I’ve Learned as a Disability and Wellbeing Researcher
Payton Rule is a Clinical Psychology PhD student at Washington University in St. Louis, where her research focuses on wellbeing among individuals with disabilities. She was diagnosed with Charcot-Marie-Tooth disease…
Simply Stated: Updates in Amyotrophic Lateral Sclerosis (ALS)
Amyotrophic lateral sclerosis (ALS) is a rare, progressive neurodegenerative disease that leads to muscle weakness, loss of physical function, and ultimately death, often within three to five years from symptom onset.…
MDA Ambassador Guest Blog: Spreading Awareness One T-shirt at a Time
Dwayne Wilson is 57 years old. He is originally from Southern California and lived in Spokane, WA. for 20 years until moving back home to Irvine, Ca, in 2017. Dwayne…
Insights by Ira: A Celebration of the Best of MDA Center Care Physicians
Prior to the start of 2025, I began the usual and customary exercise of establishing professional and personal goals for the new year. While I have many goals this year,…
Tags: Ambassadors, Healthcare, Insights by Ira, Ira, MDA Ambassadors, MDA Care Centers, MDA National Ambassador Blog, Resources