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Blog Post | Advocacy, Inclusion, Independence

Celebrating Recent Significant Milestones in Disability Rights

Over the past few months, we’ve witnessed two significant milestones in the history of disability rights law. In May, we were invited to attend an announcement marking the finalization of…

Tags: Advocacy Updates


Blog Post | Inclusion, Lifestyle

Splash Into Accessible Swimming This Summer

Summertime often brings to mind sunshine, blue skies, cook-outs, yard games…and swimming! Having fun in the pool is a refreshing way to get exercise, socialize or relax, and cool off…

Tags: Community, Resources, Staying Active


Blog Post | Advocacy, News, Research

Federal Appropriations: MDA and Neuromuscular Disease Community Priorities

Each year, Congress must create and pass legislation to fund the government’s operations and programs. This process is called the federal appropriations process and is a complex and often hard-to-predict…

Tags: Advocacy Updates, Newborn Screening, Research


Blog Post | Personal Stories

A Family Legacy of Philanthropy Shapes Price Chopper/Market 32’s Commitment to Community

Price Chopper/Market 32’s commitment to serving and supporting the neuromuscular disease community is undeniable. Through a variety of fundraising campaigns over the last 39 years, they have raised more than…

Tags: Community, Fundraising, MDA Care Centers


Blog Post | Independence, Lifestyle, Personal Stories

Former Collegiate Athlete Shares How to Stay Positive When Plans Change

To say that life does not always go as planned is an understatement. Unexpected changes during life’s journey often require individuals to make difficult decisions, sacrifices, and adjustments. And due…

Tags: College, Community, Mental Health, Staying Active, Transitions


Blog Post | Health, Science + Research

Treatment Options for Autoimmune Neuromuscular Diseases

Scientists are still trying to find out what causes autoimmune neuromuscular diseases, but breakthroughs are leading to more treatment options than ever.

Tags: Clinical Trials, Drug Development, Featured Content, Innovation, Research, Research Advances


Featured Article | Inclusion, Independence, Lifestyle

Building With Universal Design Is Good for Everyone

How building with universal design creates spaces that are inclusive and enjoyable for everyone, and how to find accessible places.

Tags: Community, Featured Content


Featured Article | Lifestyle, Personal Stories

Managing Myasthenia Gravis With Grace

Professional dancer Carol Alvarez manages myasthenia gravis (MG) and a career in the performing arts.

Tags: Ambassadors, Quest for Success, Staying Active


Featured Article | Science + Research

Can Wearables and Smartphones Make Clinical Trials Better?

New digital health technologies and wearables can improve research and access to clinical trials for people with neuromuscular diseases.

Tags: Clinical Trials, Drug Development, Innovation, MOVR, Research Advances, Technology


Blog Post | Get Involved, Health, Lifestyle, Personal Stories

MDA Guest Ambassador Blog: Focusing in Mental Health

Branden Leimbach is 26 years old. He is a born and raised Nebraskan. Branden was diagnosed with Mitochondrial Myopathy at the young age of 6. He has a degree in…

Tags: Ambassador Guest Blog, Ambassadors, COVID-19, Community, Healthcare, Mental Health, Young Adults