Archives
Simply Stated: Updates in Primary Mitochondrial Diseases
Mitochondria, often called the “powerhouses of the cell,” generate much of the energy that our bodies need to function. When mitochondria fail, organs that require high levels of energy, like…
Tags: Clinical Trials, Healthcare, Research, Simply Stated
MDA Ambassador Guest Blog: Breaking the Chains of Stigma in My Arab Community
Samaher (Sam) Abuzahriyeh is 33 years old and lives in Millbrae, CA. She was diagnosed with limb-girdle muscular dystrophy (LGMD) at age 6 and began using a power wheelchair at…
Quick Guide: Understanding Programs and Benefits for People with Disabilities
Here are the programs and benefits you should know about to ease the financial burden of living with a disability and build economic security.
Tags: Featured Content, Finance, Insurance, Resource
Tis the Season for Holiday Hacks and Tips
For some, the holiday season means the hustle and bustle of hosting, traveling, gift giving, and gatherings. For others, the end of the year is a time to slow down,…
Tags: Ambassadors, Community, Resources
5 Things Advocates Should Know: The Alleviating Barriers for Caregivers Act
November is National Family Caregivers Month, and it is important to MDA to uplift the importance of family caregivers in the neuromuscular community. Due to decades of underinvestment in paid…
Tags: Advocacy Updates, Caregiving, Healthcare
The Hidden Power of Self-Care in Caregiving
Four family caregivers share the everyday ways they incorporate self-care into their lives, so they can care for their loved ones.
New Year, New Financial Plan: Tips to Get Your Budget Back On Track
Follow these tips to save money in your budget when you’re balancing health and disability-related expenses.
Progress Now: Immunotherapy Study Recruiting, Drug Cleared for Expanded Access, and More
Tracking research updates and breakthroughs that help accelerate treatments and cures across MDA diseases
Say Yes to Gene Therapy? Factors to Consider When Gene Therapy Is an Option
When you have access to gene therapy for a neuromuscular disease, weigh the risks and benefits for yourself or your child in your decision-making.
Tags: Clinical Trials, Drug Development, Featured Content, Gene Therapy, Healthcare, My Gene Therapy Journey, Research
Financial Education and Planning Help You Take Charge of Your Financial Future
From strict Medicaid asset limits to frequent medical expenses to underpublicized public programs, families with disabilities can feel like they are walking a financial tightrope trying to balance it all.…