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Blog Post | Advocacy, Inclusion, Independence, Lifestyle, Tools& Resources

Understanding MDA Advocacy’s Education Policy Efforts

At MDA, we believe that students in the neuromuscular community deserve to pursue their own education, career goals, and dreams just like their peers do. To do this, we know…

Tags: Advocacy Updates, College, Education, Young Adults


Blog Post | Health, Science + Research, Tools& Resources

Clinical Research Alert: Phase 3 Study of RGX-202 in Boys with DMD

REGENXBIO Inc. is enrolling boys living with Duchenne muscular dystrophy (DMD) to participate in a phase 3 clinical trial to evaluate the safety, tolerability and efficacy of the investigational gene…

Tags: Clinical Trial Alert, Clinical Trials


Blog Post | Lifestyle, Personal Stories

The Joys (and Lessons) of Fatherhood from MDA Ambassadors

As every father knows, parenthood is an incredible journey filled with joy, challenges, victories, growth, and love. For dads living with a disability, raising children sometimes requires extra patience, resilience,…

Tags: Ambassadors, Community, Parenting, Relationships


Featured Article | Advocacy, Independence, Lifestyle

WAV Taxis and Rideshares Open Doors for Inclusive Transportation

Wheelchair-accessible vehicles (WAV) through rideshares and taxis fill a critical transportation gap for passengers with disabilities.

Tags: Featured Content, Travel


Blog Post | Advocacy, Get Involved, Health, Independence, News, Tools& Resources

Understanding the Threats to the ACL – and What It Means for You

In late March, the U.S. Department of Health and Human Services (HHS) announced a ‘dramatic restructuring’ of the Department, including reorganization of the Administration for Community Living (ACL), an agency…

Tags: Advocacy Updates, Caregiving, Community, Healthcare, MDA Advocacy, Resources


Blog Post | Advocacy, Get Involved, Lifestyle, Personal Stories, Tools& Resources

How to Maximize Your College Experience by Advocating for Accommodations and Accessibility

Jaylin Hsu, from San Marino, California, is senior at the University of California, Los Angeles studying Molecular, Cell, & Developmental Biology. Since his freshman year, he has been involved in…

Tags: College, College Experience, Young Adults


Blog Post | Advocacy, Get Involved, Independence, Lifestyle, Personal Stories, Tools& Resources

MDA Ambassador Guest Blog: What I’ve Learned as a Disability and Wellbeing Researcher

Payton Rule is a Clinical Psychology PhD student at Washington University in St. Louis, where her research focuses on wellbeing among individuals with disabilities. She was diagnosed with Charcot-Marie-Tooth disease…

Tags: Ambassador Guest Blog, Ambassadors, Mental Health, Young Adults


Blog Post | Health, Science + Research, Tools& Resources

Simply Stated: Updates in Amyotrophic Lateral Sclerosis (ALS)

Amyotrophic lateral sclerosis (ALS) is a rare, progressive neurodegenerative disease that leads to muscle weakness, loss of physical function, and ultimately death, often within three to five years from symptom onset.…

Tags: Clinical Trials, Community, Research, Research Advances, Simply Stated


Blog Post | Advocacy, Get Involved, Health, Inclusion, Independence, Lifestyle, Personal Stories

MDA Ambassador Guest Blog: Spreading Awareness One T-shirt at a Time

Dwayne Wilson is 57 years old. He is originally from Southern California and lived in Spokane, WA. for 20 years until moving back home to Irvine, Ca, in 2017. Dwayne…

Tags: Ambassador Guest Blog, Ambassadors, Community


Blog Post | Health, Inclusion, Independence, Lifestyle, Personal Stories

Insights by Ira: A Celebration of the Best of MDA Center Care Physicians

Prior to the start of 2025, I began the usual and customary exercise of establishing professional and personal goals for the new year.  While I have many goals this year,…

Tags: Ambassadors, Healthcare, Insights by Ira, Ira, MDA Ambassadors, MDA Care Centers, MDA National Ambassador Blog, Resources