Archives

Tracking research updates and breakthroughs that help accelerate treatments and cures across MDA diseases.

Learn about MDA’s community programs that support and empower people in every stage of life with a neuromuscular disease.

Darlene, who was diagnosed with spinal muscular atrophy (SMA) type 3 at age 19, just turned 55 years old. She has spent her life proving that challenges do not define…

Mike Huddleston is 62 years old. He is originally from California and now lives in Maryland.  Mike was diagnosed with spinal muscular atrophy (SMA) Type 3 at the age of 16.…

At MDA, we believe that students in the neuromuscular community deserve to pursue their own education, career goals, and dreams just like their peers do. To do this, we know…

REGENXBIO Inc. is enrolling boys living with Duchenne muscular dystrophy (DMD) to participate in a phase 3 clinical trial to evaluate the safety, tolerability and efficacy of the investigational gene…

As every father knows, parenthood is an incredible journey filled with joy, challenges, victories, growth, and love. For dads living with a disability, raising children sometimes requires extra patience, resilience,…

Wheelchair-accessible vehicles (WAV) through rideshares and taxis fill a critical transportation gap for passengers with disabilities.

In late March, the U.S. Department of Health and Human Services (HHS) announced a ‘dramatic restructuring’ of the Department, including reorganization of the Administration for Community Living (ACL), an agency…

Jaylin Hsu, from San Marino, California, is senior at the University of California, Los Angeles studying Molecular, Cell, & Developmental Biology. Since his freshman year, he has been involved in…