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Jamie and Amy at Amy’s high school graduation. My husband, Jamie, and I met when I was a freshman in high school and he a sophomore, after being introduced by…

Katie Frayer, Engineering Analyst at Whirlpool Corporation International Day of Women and Girls in Science, February 11, endeavors to acknowledge and celebrate the invaluable role that women and girls play…

On October 1st, new diagnostic codes for the limb-girdle muscular dystrophies (LGMDs) became officially available for use by clinicians and researchers marking the first time the LGMDs had diagnostic codes…

Expert tips for healthy eating on a budget in a time of rising food costs and deepening food shortages.

Researchers at Edgewise Therapeutics are seeking adults and adolescents living with Becker muscular dystrophy (BMD) to participate in a Phase 2 clinical trial (CANYON) to evaluate the safety and efficacy of…

A look at equity in treatment and access to care for Blacks and other people of color in the neuromuscular disease community.

The last few years have presented small steps in the right direction for a long overdue societal shift in mindset when it comes to inclusion for those living with disabilities.…

Oculopharyngeal muscular dystrophy (OPMD) is a rare, slowly progressive muscle disease that is characterized by weakness of the eyelids (ocular) and throat (pharyngeal) muscles. In some cases, OPMD also causes…

Three signs that you might need a tilt-in-space wheelchair and how to choose the right one for your mobility.

MDA’s ambassadors are pivotal to our mission: empowering people living with neuromuscular disease to live longer, more independent lives. We do that through care, research, and advocacy. Our ambassadors are…