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Researchers at Ohio State University are seeking adults living with spinal muscular atrophy (SMA) to participate in a 12-month natural history study. The objective of this observational study is to look at…

Researchers at Virginia Commonwealth University are seeking boys living with Duchenne muscular dystrophy (DMD), as well their biological mothers who may or may not carry DMD-causing genetic variants, to participate in a…

As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to share our 2022 blog series: “Quest for Success”. Success looks…

Magic Wheelchair has been making custom, adaptable wheelchair costumes for seven years, having provided one-of-a-kind costumes to over 300 individuals living with a disability.  Just in time for Halloween, the…

New federal funding is available to help make public transportation more accessible. Here’s how it can make a difference.

These 10 tips help family caregivers manage stress and avoid burnout.

Congenital muscular dystrophy (CMD) refers to a group of genetic muscle diseases that become apparent within the first two years after birth. CMDs belong to the larger group of disorders…

After a three-year hiatus, advocates went back to Capitol Hill, but this time virtually. On September 28th and 29th,  families from across the country raised their voices and urged lawmakers…

Researchers at Horizon Therapeutics are seeking adults living with myasthenia gravis (MG) to participate in a phase 3 clinical trial to evaluate the safety and efficacy inebilizumab to treat MG. Inebilizumab…

For those living with a disability who are looking to join or remain in the workforce, the MDA Resource Center offers valuable tips for finding a job that plays to…