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Featured Article | Independence

Portable Lifts A Real Pick Me Up for Caregivers

Having a lift right where you need it can help caregivers and their loved ones avoid injury and feel more secure

Tags: Caregiving, Equipment and Assistive Devices, Healthcare, Insurance, Resources


Blog Post | Health, Lifestyle, Personal Stories

When the Thinking Parts of the Brain Go Awry in ALS

John Shearer and his wife Brenda learned in November 2010 that he has ALS. The couple, who lives in Woodstock, Ga., were told the disease would cause gradual weakening of John’s…

Tags: Caregiving, Community, Education, Healthcare, Relationships


Featured Article | Independence

Front Middle or Rear Finding the Power Chair Drive System That s Right for You

Whether choosing your first power wheelchair or your next power wheelchair, picking the correct drive system for your needs is one of the first and most important decisions you’ll make.…

Tags: Equipment and Assistive Devices


Blog Post | Health, Research, Science + Research

C9ORF72 Mutation Most Common Cause of Familial ALS, FTD, ALS-FTD

Two independent research teams have identified a mutation in the gene for chromosome 9 open reading frame 72 (C9ORF72) as the most common cause found to date of familial ALS (amyotrophic lateral sclerosis),frontotemporal dementia (FTD)…

Tags: Education, Gene Therapy, Genetic Testing, Healthcare, Innovation, Research, Research Advances


Blog Post | Advocacy, Get Involved, Health, News, Science + Research

National ALS Registry Now Open

After two years of laying the groundwork, the Agency for Toxic Substances and Disease Registry (ATSDR) has opened its National ALS Registry to collect information from people living with ALS. Scientists…

Tags: Clinical Trials, Education, Healthcare, Innovation, Research, Research Advances


Blog Post | Science + Research

ALS: Not Just About Motor Neurons Anymore

Motor neurons are lost in ALS, but new evidence shows they don’t die without significant help from their neighboring cells. These neighbors may be easier to target with therapies than…

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Blog Post | Health, Independence, Lifestyle, Personal Stories

To Cath or Not to Cath?

When ALS weakened Jane Cheng’s mother, her caregivers found it took a great deal of strength to help her transfer on and off the toilet. “I twisted my ankle a few times…

Tags: Caregiving, Healthcare, Resources


Featured Article | Research

ALS Research Poison Dirt

“Toxic desert dust” may be why military personnel serving in the 1990-1991 Gulf War experienced abnormally high rates of ALS, new findings suggest.

Tags: Healthcare, Research


Blog Post | Health, Science + Research

Water-Contamination Link to ALS Tenuous Without More Data

Recently, media outlets reported a possible link between developing ALS and living near Lake Mascoma in Western New Hampshire. The Union Leader in New Hampshire and other news outlets indicated that the…

Tags: Healthcare, Research


Blog Post | Science + Research

ALS: A Vicious Cycle

When ALS-affected nerve cells lose function, their closest neighbors can’t protect them.

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