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Prior to the start of 2025, I began the usual and customary exercise of establishing professional and personal goals for the new year.  While I have many goals this year,…

Grace LoPiccolo, 21, of St. Louis, Missouri, was diagnosed with CMT-1A at the age of nine. She currently attends Saint Louis University majoring in Bioethics and Health Studies, and  Catholic…

Increasing socialization, cultivating meaningful relationships and friendships, and limiting isolation or loneliness in an increasingly remote world is a desire – and challenge – for many adults. Individuals living with…

In this episode of Quest Podcast, we chat with three pillars of the Duchenne muscular dystrophy community who are here with us on the 10th anniversary of PJ’s protocol. First,…

Cassidy Nilles is 35 years old and lives in Illinois. Cassidy lives with Limb Girdle muscular dystrophy (LGMD) type 2J. She lives with her daughter, Capri, and their maltipoo, Mila,…

Practicing shared decision-making with your healthcare provider helps you steer your care journey with confidence

MDA plays a key role in a new frontier of medicine looking into how to regenerate muscles lost to neuromuscular disease.

How disability benefits are affected by employment and how to work with eligibility and income restrictions.

When a child is diagnosed with a neuromuscular disease, it impacts siblings, too. Here’s how to help them cope and build resilience.

Advocacy for the neuromuscular disease community is just one of the key ways MDA works to support the neuromuscular disease community. To expand our impact and undertake projects of importance…