Archives
Five Tips to Increase Socialization this Spring
Increasing socialization, cultivating meaningful relationships and friendships, and limiting isolation or loneliness in an increasingly remote world is a desire – and challenge – for many adults. Individuals living with…
Quest Podcast: PJ’s Protocol: A Lifesaving Procedure Fueled by Love
In this episode of Quest Podcast, we chat with three pillars of the Duchenne muscular dystrophy community who are here with us on the 10th anniversary of PJ’s protocol. First,…
MDA Ambassador Guest Blog: Finding My Way to a Sober and Healthy Way of Living
Cassidy Nilles is 35 years old and lives in Illinois. Cassidy lives with Limb Girdle muscular dystrophy (LGMD) type 2J. She lives with her daughter, Capri, and their maltipoo, Mila,…
Why You Should Practice Shared Healthcare Decision-Making
Practicing shared decision-making with your healthcare provider helps you steer your care journey with confidence
Stem Cell Innovations Drive Advances in Muscle Regeneration
MDA plays a key role in a new frontier of medicine looking into how to regenerate muscles lost to neuromuscular disease.
Tags: Clinical Trials, Featured Content, Innovation, MDA Clinical and Scientific Conference, Research, Research Advances
Ready to Work: How People with Disabilities Balance Benefits and Employment
How disability benefits are affected by employment and how to work with eligibility and income restrictions.
Tags: Employment, Featured Content, Insurance, Young Adults
4 Key Ways to Support Siblings of Kids with Neuromuscular Diseases
When a child is diagnosed with a neuromuscular disease, it impacts siblings, too. Here’s how to help them cope and build resilience.
2024 MDA Advocacy Collaboration Grantees are Working Towards Change
Advocacy for the neuromuscular disease community is just one of the key ways MDA works to support the neuromuscular disease community. To expand our impact and undertake projects of importance…
Tags: Advocacy Updates, MDA Advocacy
MDA Ambassador Guest Blog: The Intersectionality of Identities as a Black Woman Living with a Disability
Gabrielle Runyon is a 22-year-old Kentucky native who currently goes to the illustrious Tennessee State University. She is obtaining her master’s in counseling with a concentration in clinical mental health.…
Tags: Ambassador Guest Blog, Ambassadors, College, College Experience, Community, Education, Relationships, Young Adults
Quest Podcast: Living with Intention and Creating a More Beautiful Life
In this Quest Podcast episode, we chat with a certified Life Coach who lives with spinal muscular atrophy. Amber Bosselman has devoted her career to providing living skills for individuals…
Tags: Caregiving, Community, Mental Health, Relationships