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MDA Guest Ambassador Blog: How MDA Summer Camp Shaped Me
Juliette is 17 years old and lives in Florida. She is a senior in high school and will be attending FAU next fall to begin her career in social work.…
Tags: Ambassador Guest Blog, Ambassadors, College, Community, Relationships, Staying Active, Young Adults
Simply Stated: Updates in LAMA2 Muscular Dystrophy
LAMA2-related muscular dystrophy (LAMA2-RD) is a rare neuromuscular condition characterized by proximal (close to the body center), axial (head and trunk), and facial weakness, elevated creatine kinase (CK), central and…
Tags: Clinical Trials, Healthcare, Simply Stated
Episode 38: Love Made Simple with Alexa and Jacqueline Child of DateAbility
In this Quest Podcast episode, we chat with the founders of DateAbility, a dating application geared towards individuals with disabilities and chronic illnesses. Alexa and Jacqueline Child have devoted their…
Tags: Relationships
Disability Benefits and the Marriage Penalty
Getting married may mean losing vital disability benefits. Hereβs whatβs being done to erase the marriage penalty.
Tags: Featured Content, Finance, Relationships
Raising Resilient Kids with Neuromuscular Diseases
People living with neuromuscular diseases share their upbringing and how their parents instilled resilience from a young age.
Tags: Featured Content, MDA Advocacy, MDA Ambassadors, MDA Let's Play, MDA Mentorship, MDA Resource Center, MDA Summer Camp, Mental Health, Parenting, Young Adults
Former MDA Summer Campers Reunite After 14 Years
Former MDA Summer Campers get together after 14 years to reunite and continue their lasting connections.
ReelAbilities Co-Founder Talks Representation on the Big Screen
ReelAbilities Film Festival co-founder Isaac Zablocki talks about disability representation in the entertainment industry.
Tags: A Look Inside, Community, Featured Content
How MDA Can Support You
Read about the many ways MDA engages with and supports families in the neuromuscular disease community.
Tags: Featured Content, Golf Outings, MDA Advocacy, MDA Ambassador Program, MDA Care Centers, MDA Community Education, MDA Connect, MDA Let's Play, MDA Resource Center, MDA Summer Camp, Muscle Walk, Thrive 365, volunteer
What Is the Drug Development Pipeline?
Thousands of potentially beneficial therapies for neuromuscular diseases are being researched and tested in the drug development pipeline.
Tags: Antisense Oligonucleotide, Clinical Trials, Drug Development, Exon Skipping, Featured Content, Gene Therapy, Innovation, Research
Connecting Over Diagnosis Leads to Lifelong Friendships
Melissa Grove discovers the silver lining of her limb-girdle muscular dystrophy (LGMD) is making friends with others with the same diagnosis.