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Blog Post | Get Involved

Commitment and Passion for Volunteering: A Family Affair

Doug and Angela Britton Doug Britton has been a dedicated MDA volunteer since 2011 when he spent his first summer as a counselor at MDA Summer Camp. His commitment to…

Tags: Community, Fundraising, Parenting, Summer Camp, Volunteers


Blog Post | Advocacy, Get Involved, News

Everything You Need to Know About MDA Hill Day 2024

Once again, MDA and its grassroots advocates came together in Washington D.C. and ensured that lawmakers heard their voices during MDA on the Hill. This multi-day event from September 8-10…

Tags: Advocacy Updates, Hill Day, MDA Advocacy, MDA on the Hill


Blog Post | Independence, Lifestyle, Personal Stories

Our Affordable Accessible Bathroom Renovation

A writer with Charcot-Marie-Tooth disease (CMT) shares what she learned from her affordable accessible bathroom remodel.

Tags: Featured Content


Blog Post | Health, Science + Research

Next-Generation Exon-Skipping Therapies May Change the DMD Landscape

The next generation of exon skipping-therapies for Duchenne muscular dystrophy promises to be more effective at restoring muscle-building dystrophin protein.

Tags: Antisense Oligonucleotide, Clinical Trials, Drug Development, Exon Skipping, Featured Content, Grants, Research


Blog Post | Inclusion, Lifestyle

Overjoyed About Inclusion’s Accessible Controller is Taking Video Gaming to the Next Level

Anthony DeVergillo Anthony DeVergillo is passionate about video games – and inclusion. The 31-year-old from Bedminster, NJ, brought that passion to the creation of Overjoyed About Inclusion, a platform that…

Tags: Community, Innovation, Let's Play, Technology


Blog Post | Advocacy, Get Involved, News, Science + Research

Remote ALS Research Study Expansion

The MDA MOVR program has paired with Mitsubishi Tanabe Pharma America, Inc. (MTPA) to collaborate on a remote observational research study focusing on amyotrophic lateral sclerosis (ALS). Study Details &…

Tags: Research, Research Study, Research Study Alert


Blog Post | Advocacy, Health, News, Science + Research

MDA Kickstart: A New Hope for Ultra-Rare Neuromuscular Disease Treatments

At the Muscular Dystrophy Association (MDA), we’re always striving to break new ground in the fight against neuromuscular diseases. Today, we’re thrilled to share an exciting new initiative that brings…

Tags: Drug Development, Gene Therapy, Healthcare, Innovation, Research, Research Advances, mda


Blog Post | Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

MDA Ambassador Guest Blog: Increasing Representation of Disabilities in Children’s Literature is My Life’s Goal

Thornton BleaseΒ wants to live in a world where horses and dragons roam free, and everyone can reach their fullest potential. He lives with myotonic muscular dystrophy and resides in Stewartsville,…

Tags: Ambassador Guest Blog, Ambassadors, College, Community, Young Adults


Blog Post | Independence, Lifestyle

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tags: College, Community, Drug Development, Education, Gene Therapy, In Case You Missed It, Research, Staying Active, Transitions


Blog Post | Independence, Lifestyle, Personal Stories

Good Bad Things Virtual Premiere Event

Watch. Donate. Feel.

Movies have always been an escape, and a world of fantasy moviegoers can get lost in. However, movies also have an irrefutable impact on our culture. The music, the clothes,…

Tags: Community, Good Bad Things, Mental Health, Relationships, Young Adults