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Charcot-Marie-Tooth disease (CMT) is a diverse group of inherited disorders that affect movement and sensation in the arms, legs, hands, and feet. People affected by CMT commonly experience lower leg…

Tamara Blackwell, Ms. Wheelchair Kansas 2024, lives in Bel-Aire, KS, where she started an in-home daycare in 2010 that is still in operation. Diagnosed with limb-girdle muscular dystrophy (LGMD), she advocates…

Doug and Angela Britton Doug Britton has been a dedicated MDA volunteer since 2011 when he spent his first summer as a counselor at MDA Summer Camp. His commitment to…

Once again, MDA and its grassroots advocates came together in Washington D.C. and ensured that lawmakers heard their voices during MDA on the Hill. This multi-day event from September 8-10…

A writer with Charcot-Marie-Tooth disease (CMT) shares what she learned from her affordable accessible bathroom remodel.

The next generation of exon skipping-therapies for Duchenne muscular dystrophy promises to be more effective at restoring muscle-building dystrophin protein.

Anthony DeVergillo Anthony DeVergillo is passionate about video games – and inclusion. The 31-year-old from Bedminster, NJ, brought that passion to the creation of Overjoyed About Inclusion, a platform that…

At the Muscular Dystrophy Association (MDA), we’re always striving to break new ground in the fight against neuromuscular diseases. Today, we’re thrilled to share an exciting new initiative that brings…

Thornton Blease wants to live in a world where horses and dragons roam free, and everyone can reach their fullest potential. He lives with myotonic muscular dystrophy and resides in Stewartsville,…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…