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Researchers at Edgewise Therapeutics are seeking adults living with Becker muscular dystrophy to participate in a global Phase 2 pivotal study, GRAND CANYON, to evaluate the safety and efficacy of sevasemten…

Each year, Congress must create and pass legislation to fund the government’s operations and programs. This process is called the federal appropriations process and is a complex and often hard-to-predict…

Matt Curcio is a writer, speaker, and advocate. Matt lives in New Jersey with his wife, cats, and children. He lives with Collagen 6 Related Dystrophy. He specializes in traveling…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

In this Quest Podcast episode, we chat with the Executive Director of Open Style Lab (OSL), a non-profit organization that is on a mission to make style accessible for everyone,…

For many youths living with neuromuscular disease, MDA Summer Camp is the highlight of the summer. The free, week-long, sleep-away camp provides a place for campers to participate in accessible…

Chase Rankin was diagnosed with Friedreich’s ataxia in 7th grade. He is now majoring in Communication Studies at the University of North Carolina at Charlotte. Chase Rankin I’ll be completely…

MDA Advocacy has some exciting and impactful news to share out of Washington, DC! The recent passage of the FAA Reauthorization Act marks a significant milestone in making air travel…

Price Chopper/Market 32’s commitment to serving and supporting the neuromuscular disease community is undeniable. Through a variety of fundraising campaigns over the last 39 years, they have raised more than…

Endocrine myopathies are muscle disorders caused by abnormal activity of the endocrine (hormone-producing) glands, which include the thyroid, adrenal, parathyroid, pituitary, and gonadal glands. Too much or too little hormone…