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Kody Graves and Sydney Knobel-Graves When Sydney Knobel-Graves and Kody Graves became first-time parents in July of 2019, they quickly realized that the timing of their daughter Kenzie’s birth would…

Luke Hennessy lives in Prior Lake, Minnesota, and has SMA Type 2. He is studying Pre-Law with a major in Computer Information Systems and a minor in Political Science at…

What? When? Where? Exciting news! The 2025 MDA Clinical & Scientific Conference prospectus is now available, and registration is open! Join us from March 16-19, 2025, at the Hilton Anatole…

Over the last eight years, there has been an unprecedented transformation in the spinal muscular atrophy (SMA) treatment space, with the approval of multiple new treatment options that have changed…

Over the last decade, there has been a boom in the development of exon skipping therapies to treat people living with the rare neuromuscular disease Duchenne muscular dystrophy (DMD). Treatment…

Your healthcare team can help your student prepare for a healthy college experience with a disability.

Losing a loved one can be overwhelming. That’s why it’s important to know how to manage the emotions of grief.

Lilly F. is a 15-year-old rising junior from New York.  Lilly was diagnosed with CMT1a when she was 4 years old.  With no approved treatments for CMT, Lilly follows a…

August Johnson, more commonly known as A.J., was diagnosed with spinal muscular atrophy (SMA) when he was nine months old. He recently graduated from high school and will be attending…

Summer has finally arrived! Schools are out, parks and beaches are in. The majority of us wear a more summer-appropriate style, while others feel the need to cover what makes…