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Blog Post | Lifestyle, Personal Stories, Tools& Resources

My Father’s Journey with ALS

Father’s Day can be a beautiful celebration — but also a tender time for many. For those whose fathers are no longer with us, this day may carry sorrow along…

Tags: Caregiving, Community, MDA Care Centers, Mental Health, Relationships


Blog Post | Finding a Diagnosis, Health, Science + Research, Tools& Resources

Simply Stated: Updates in Ryanodine Receptor 1-Related Disorders (RYR-1-RD)

RYR-1-Related Disorders (RYR-1-RD) are a group of rare, inherited muscle disorders caused by variants in the RYR1 gene. This gene encodes the ryanodine receptor type-1 (RyR1) protein, which is important for…

Tags: Clinical Trials, Gene Therapy, MDA Resource Center, Simply Stated


Blog Post | Health, Independence

Speech Devices Improve Communication When ALS Affects the Voice

Communication devices are crucial technology for people with ALS, or Lou Gehrig’s disease, when their speech declines.

Tags: Equipment and Assistive Devices, Featured Content, Technology


Featured Article | Inclusion, Lifestyle

Accessible Travel on a Budget: Smart Tips for Exploring Affordably

Travel with a disability doesn’t have to be expensive. Follow this guide to discover accessible, budget-friendly adventures worldwide.

Tags: Accessible Air Travel, Featured Content, Thrive 365, Travel


Featured Article | Finding a Diagnosis, Science + Research

Understanding Congenital Myasthenic Syndrome: Causes and Treatments

Are new therapies on the horizon for the weakness and fatigue of CMS? Researcher Hanns Lochmüller, MD, PhD, answers questions.

Tags: Drug Development, Featured Content, Gene Therapy, Genetic Testing, Research, Spotlight


Featured Article | Independence, Lifestyle

Is Train Travel a Wheelchair-Friendly Alternative to Flying or Driving?

Train travel may offer a more accessible option for people with disabilities frustrated by airline mishandling of mobility devices.

Tags: Featured Content, Travel


Featured Article | Inclusion, Lifestyle, Personal Stories

Advocating for Himself Helps Matt Curcio Serve Others

Matt Curcio turned a lifetime of disability self-advocacy into a career helping others find inclusion in employment and travel.

Tags: Employment, Featured Content, Quest for Success, Travel


Featured Article | Health, Inclusion

Navigating Life with MDA Community Education Programs

MDA Community Education offers free expert-led learning, practical resources, and opportunities for connection in the community.

Tags: A Look Inside, Community, Community Education, Featured Content, Resources


Featured Article | Get Involved

MDA Milestone: How ‘Fill the Boot’ Was Born

In 1952, fire fighters first joined forces with MDA to fight muscular dystrophy — and 70+ years later, the mission continues.

Tags: Featured Content, Fill the Boot, Lasting Impression, MDA 75th


Featured Article | Inclusion, Lifestyle, Personal Stories

How We’re Changing the Narrative on Disability in Hollywood

“Good Bad Things” actor Danny Kurtzman tells how he reclaimed his story and challenged Hollywood’s portrayal of disability.

Tags: Featured Content, From Where I Sit