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David Daw is 56 years old and lives in Kingston New York with his wife of 36 years. They have one daughter and four grandchildren. David was diagnosed with myofibrillar myopathy…

In 2025, MDA’s advocacy team has focused on protecting Medicaid from Congressional budget cuts. We know many in the MDA community have questions about why Medicaid is important, current threats…

Multidisciplinary care for amyotrophic lateral sclerosis (ALS) and other neuromuscular diseases leads to better outcomes.

Researchers at Natera are seeking female carriers of spinal muscular atrophy (SMA) and their affected or unaffected biological children for an observational study (DYADS study). This study will collect blood…

Jessica and Mark Lennox live in Jupiter, Florida with their two sons, four-year-old William, and two-year-old old Paul. Mark is a US Army veteran and works in renewable energy. Jess,…

In this Quest Podcast episode, we chat with Joel Cartner, MDA’s Director of Access Policy, and Jori Houck, MDA’s Manager of Advocacy Engagement. They join us to share the most…

Travel with a disability is unpredictable. Here are tips to plan and prepare for a smoother trip with a wheelchair.

Dwayne Wilson is 57 years old. He is originally from Southern California and lived in Spokane, WA. for 20 years until moving back home to Irvine, Ca, in 2017. Dwayne…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Craig Helget and his brother, Terry Helget, at MDA Summer Camp in 1985. The Helget family has been volunteering at MDA Summer Camp for more than four decades. It all…