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Neuromuscular diseases are a diverse group of rare, mostly genetic conditions. This has made developing treatments challenging. However, investments in rare disease research by private and public agencies, including MDA,…

We are excited to start a new year talking about new mindsets, especially when it comes to adversity. On our first episode of 2023, Mindy talks mindset with Jose Flores,…

Expert tips for healthy eating on a budget in a time of rising food costs and deepening food shortages.

A look at equity in treatment and access to care for Blacks and other people of color in the neuromuscular disease community.

Oculopharyngeal muscular dystrophy (OPMD) is a rare, slowly progressive muscle disease that is characterized by weakness of the eyelids (ocular) and throat (pharyngeal) muscles. In some cases, OPMD also causes…

It’s a new year with a new Congress. But what hasn’t changed is MDA’s commitment to improving the lives of people living with neuromuscular diseases. We accomplished a lot last…

Bethlem myopathy, also called Bethlem muscular dystrophy, is a rare disease affecting skeletal muscles and connective tissue. Considered a type of congenital muscular dystrophy, it was initially recognized in the…

As the autumn leaves start to fall, the holiday season is upon us. And between the hustle and bustle of decorating, shopping, food preparation, and social gatherings, the holidays can…

Researchers at Virginia Commonwealth University are seeking boys living with Duchenne muscular dystrophy (DMD), as well their biological mothers who may or may not carry DMD-causing genetic variants, to participate in a…

These 10 tips help family caregivers manage stress and avoid burnout.