Archives

Similar to other forms of muscular dystrophy, Myotonic Dystrophy (DM) is characterized by progressive muscle loss and weakness.

Specific and trackable goals give you a roadmap to your destination, and working toward a goal can help you grow and improve wellbeing.

The three major themes of the second day of MDA’s Clinical & Scientific Conference sessions were (1) therapeutic strategies to treat NMDs, (2) clinical trial design and implementation, and (3)…

Research advances and the promise of better therapeutics on the horizon offer hope for people living with Duchenne muscular dystrophy.

How adults with neuromuscular disease can form and nurture healthy romantic relationships   Trust. Honesty. Mutual respect. Affection. The key elements of a healthy romantic relationship are the same for…

As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to kick off our 2022 blog series: “Quest for Success”. Success…

When psychotherapist and disability advocate, Lauren Presutti, needs to recenter with a little self-care, she focuses on taking the time to tune into her feelings.  Lauren, who lives with congenital…

Here at MDA, we are working to ensure all contact information is up-to-date for those who are registered in order to serve you as well as we possibly can. If…

Michio Hirano, MD (fourth from right), and his research team gather with the Coiculescu family, whose sons received an experimental treatment for TK2 deficient myopathy through a compassionate use study.…

Erasing stigma and finding support for mental health