Archives




Featured Article | Inclusion

Vocational Training as an Alternative to Traditional College

Gain a better understanding of vocational training as an alternative route to the workplace instead of traditional college for those living with a neuromuscular disease.

Tags: Ambassadors, College Experience, Education, Employment, Featured Content


Featured Article | Lifestyle

Photo Contest Winner: Love in Motion

Meet the 2024 Quest Media photo contest winner and see the winning photo, as well as the runners-up.

Tags: Community, Featured Content, Lasting Impression, Relationships


Featured Article | Inclusion, Independence

Finding a New Career Path Suited for Your Needs

A new outlook of acceptance helped Scott Conger find a career path best suited for his needs living with RYR1 myopathy.

Tags: Employment, Featured Content, Quest for Success


Featured Article | Independence, Lifestyle

Winter Weather Safety Tips for Neuromuscular Diseases

Tips for staying safe in the extreme winter weather months living with a neuromuscular disease.

Tags: Featured Content, Resources, Thrive 365


Featured Article | Lifestyle

Coping with Loneliness at the Holidays

Experts and community members offer 10 ways to help ease holiday loneliness.

Tags: Community, Featured Content, Relationships


Featured Article | Lifestyle

2024 Quest Media Photo Contest Winners

Meet the runners-up of the 2024 Quest Media Photo Contest and see their entries.

Tags: Community, Featured Content, Lasting Impression, Relationships


Blog Post | Lifestyle

Seven Easy and Effective Ways to Increase Gratitude in Your Life

The Thanksgiving season serves as a reminder to focus on gratitude and appreciation, but practicing gratitude habits year-round has serious benefits to your well-being. Intentionally prioritizing time and creating space…

Tags: Community


Blog Post | Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

Ambassador Guest Blog: How Fostering Dogs Despite Living with a Disability Gives Me Joy and Purpose

Nora Ramirez lives in California, and was diagnosed with Selenon (SEPN1)-related myopathy (RM) at the age of 9 years old. She is one of four siblings with SEPN1-RM; the other…

Tags: Ambassador Guest Blog, Ambassadors, Caregiving


Blog Post | Health, Science + Research

Behind the Drug: Tofersen (Qalsody) for ALS

Tofersen, marketed by Biogen under the brand name Qalsody, is a targeted therapy for SOD1-associated ALS. Learn about the development of the drug and if it might be right for…

Tags: Drug Development, Featured Content, Research, Research Advances


Blog Post | Independence, Lifestyle

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tags: Advocacy Updates, Community, Employment, Relationships, Research, inclusion