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In this Quest Podcast episode, we chat with Shaun Hill, MDA’s Manager of Public Policy & Advocacy and Mark Fisher, MDA’s Director of Advocacy Engagement. They join us to share…

For nearly 75 years, the Muscular Dystrophy Association (MDA) has led the way in accelerating research, advancing care, and advocating for the support of our families. The MDA Atlanta Night…

Nayeem Amin is working hard to ensure that all individuals living with disabilities know their worth – and their capabilities. The 43-year-old job recruiter and entrepreneur has gained skills and…

Charcot-Marie-Tooth disease (CMT) is a diverse group of inherited disorders that affect movement and sensation in the arms, legs, hands, and feet. People affected by CMT commonly experience lower leg…

Tamara Blackwell, Ms. Wheelchair Kansas 2024, lives in Bel-Aire, KS, where she started an in-home daycare in 2010 that is still in operation. Diagnosed with limb-girdle muscular dystrophy (LGMD), she advocates…

Doug and Angela Britton Doug Britton has been a dedicated MDA volunteer since 2011 when he spent his first summer as a counselor at MDA Summer Camp. His commitment to…

Once again, MDA and its grassroots advocates came together in Washington D.C. and ensured that lawmakers heard their voices during MDA on the Hill. This multi-day event from September 8-10…

A writer with Charcot-Marie-Tooth disease (CMT) shares what she learned from her affordable accessible bathroom remodel.

The next generation of exon skipping-therapies for Duchenne muscular dystrophy promises to be more effective at restoring muscle-building dystrophin protein.

Anthony DeVergillo Anthony DeVergillo is passionate about video games – and inclusion. The 31-year-old from Bedminster, NJ, brought that passion to the creation of Overjoyed About Inclusion, a platform that…