Archives
To Tilt or Not to Tilt: The Benefits of Tilt in Space Wheelchairs
Three signs that you might need a tilt-in-space wheelchair and how to choose the right one for your mobility.
MDA Welcomes its 2023 National Ambassadors
MDA’s ambassadors are pivotal to our mission: empowering people living with neuromuscular disease to live longer, more independent lives. We do that through care, research, and advocacy. Our ambassadors are…
Tags: Ambassadors, Amy, Leah, Volunteers
MDA’s 2023 Advocacy Plan
It’s a new year with a new Congress. But what hasn’t changed is MDA’s commitment to improving the lives of people living with neuromuscular diseases. We accomplished a lot last…
The Value of Volunteerism
Volunteerism affords individuals an opportunity to progress the mission of organizations that they are passionate about. Without the valuable time and talent of volunteers, most nonprofit organizations would not be…
Tags: Community, Volunteers, Year of the Volunteer
Navigating the Long Journey to a Rare Disease Diagnosis
Misdiagnoses are common in the neuromuscular disease community. Here are tips for navigating the journey to a rare disease diagnosis.
Tags: Amy, Featured Content, Healthcare, MDA Care Centers, MDA Peer Connections, MDA Resource Center
2023 MDA Clinical & Scientific Conference Keynote Speaker – FDA’s Peter Marks, M.D., Ph.D.
The Muscular Dystrophy Association (MDA) is excited to welcome Peter Marks, M.D., Ph.D. as the Keynote Speaker at the MDA 2023 Clinical & Scientific Conference. His presentation will take place…
Introducing MDA Connect
At MDA, we are proud and excited to announce the launch of a new service that will bring us closer to our community. Through our Resource Center and our team…
Tags: Community, MDA Resource Center, Resources
2023: Year of the Volunteer
Leading the way as the #1 Voluntary Health Organization for over 70 years, at MDA volunteers are at the forefront of our legacy. Families are at the heart of our…
Tags: Volunteers, Year of the Volunteer
Celebrating Our 2022 Advocacy Accomplishments
From passing key legislation to our Virtual Summit and Hill Day, 2022 has been an exceptional year for MDA advocates. You raised your voices and key decisionmakers heard all of…
MDA Honors the Life and Legacy of Victor Wright
Victor Wright Hope for a longer, more independent life is now becoming a reality for patients with muscular dystrophy and related diseases. Many stakeholders have played a vital role over…
Tags: Community