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As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to present the final instalment in our 2022 blog series: “Quest…

On Nov. 15, the US Food and Drug Administration (FDA)’s Center for Biologics Evaluation and Research (CBER) Office of Tissues and Advanced Therapies (OTAT) hosted a patient-focused drug development (PFDD)…

Researchers at Brandeis University are seeking adults living with spinal muscular atrophy (SMA) to participate in a survey about their experiences with transition planning and transfers of care between pediatric and adult…

Researchers at Synchron are seeking individuals living with paralysis due to various causes, including muscular dystrophy, stroke, spinal cord injury, amyotrophic lateral sclerosis, and spinal muscular atrophy, to participate in a…

Researchers at Ohio State University are seeking individuals living with neuromuscular diseases, including muscular dystrophy, facioscapulohumeral muscular dystrophy (FSHD), and limb-girdle muscular dystrophy (LGMD), to participate in a phase 2 clinical…

Throughout 2022 MDA’s impact continued to grow as we advanced our mission to empower the people we serve to live longer, more independent lives while building on our legacy of…

Learn how international organizations advocate for neuromuscular diseases around the world.

As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to present our 2022 blog series: “Quest for Success”. Success looks…

How neuromuscular disease affects target health numbers: blood pressure, blood sugar, cholesterol, and BMI.

As the need for increased diversity in STEM education and careers gains more attention, the Smithsonian Science Education Center (SSEC) is leading the way in making meaningful change in our…