Archives
Preparing for College Life with a Disability
Your healthcare team can help your student prepare for a healthy college experience with a disability.
Coping with Grief After Losing a Loved One to a Neuromuscular Disease
Losing a loved one can be overwhelming. That’s why it’s important to know how to manage the emotions of grief.
Tags: Caregiving, Featured Content, Mental Health
MDA Engage Symposiums are Back in Full Swing
MDA Engage Symposiums returned in 2023 offering the neuromuscular disease community an opportunity to connect with one another in person and learn directly from expert clinicians about topics related to…
My Gene Therapy Journey: The Bafus Family
Jada and Bryan Bafus The Bafus family’s YouTube Channel started as a means to provide updates with close friends and family regarding their two sons’ Duchenne muscular dystrophy (DMD), but…
Episode 43- Disrupting the Narrative
In this Quest Podcast episode, we chat with the director, executive producer, and leading character of the movie Good Bad Things: Shane Stanger, Steve Way, and Danny Kurtzman respectively. This…
Tags: Community, Mental Health, Relationships, Young Adults
Celebrating Recent Significant Milestones in Disability Rights
Over the past few months, we’ve witnessed two significant milestones in the history of disability rights law. In May, we were invited to attend an announcement marking the finalization of…
Tags: Advocacy Updates
Splash Into Accessible Swimming This Summer
Summertime often brings to mind sunshine, blue skies, cook-outs, yard games…and swimming! Having fun in the pool is a refreshing way to get exercise, socialize or relax, and cool off…
Tags: Community, Resources, Staying Active
Federal Appropriations: MDA and Neuromuscular Disease Community Priorities
Each year, Congress must create and pass legislation to fund the government’s operations and programs. This process is called the federal appropriations process and is a complex and often hard-to-predict…
A Family Legacy of Philanthropy Shapes Price Chopper/Market 32’s Commitment to Community
Price Chopper/Market 32’s commitment to serving and supporting the neuromuscular disease community is undeniable. Through a variety of fundraising campaigns over the last 39 years, they have raised more than…
Tags: Community, Fundraising, MDA Care Centers
Former Collegiate Athlete Shares How to Stay Positive When Plans Change
To say that life does not always go as planned is an understatement. Unexpected changes during life’s journey often require individuals to make difficult decisions, sacrifices, and adjustments. And due…
Tags: College, Community, Mental Health, Staying Active, Transitions