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The FDA’s approval of Elevidys, the first gene therapy for Duchenne muscular dystrophy (DMD) brings hopes and concerns for families in the MDA community.

When a neuromuscular disease impairs chewing and swallowing, consider a feeding tube for good nutrition.

Packing for vacation when you live with a disability requires a little extra planning and preparation. Travel often demands additional considerations to provide easy access to essentials and ensure that…

Charlotte and Elizabeth Madole. For many individuals living with a rare disease, the road to diagnosis can be extremely challenging, especially when it involves two co-existing diseases where two parts…

I feel like our mental health is something we don’t discuss enough. I want to share how Muscular Dystrophy has affected my mental health, because honestly speaking, there have been…

Adults with disabilities who want to live independently are finding that community services and self-advocacy can help them get their own place.

MDA-supported research at different stages of drug development is directly linked to life-changing therapies for neuromuscular diseases.

It’s normal to feel grief after being diagnosed with a neuromuscular disease or losing physical function to a progressive disease. Here’s how to handle it.

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

In order to prepare for drug development in the neuromuscular disease (NMD) field, some researchers are focusing on natural history studies to better understand these rare diseases. Natural history studies…