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Crème Brulee Prepared by Ira Walker Crème Brulee. It’s a creamy French dessert custard that is presented commonly in a small round ramekin. That’s the crème…but what about the brulee?  To…

As we embark on a new year, MDA’s commitment to changing public policy and truly empowering the neuromuscular community remains the same. MDA advocates accomplished a lot last year,  and…

In this Quest Podcast episode, we chat with one of Muscular Dystrophy Association’s Ambassadors, Isaac Banks about finding fulfillment in our lives as we skyrocket into 2024. As a certified…

Graphic Designer and MDA Board of Directors member, Matt Plummer Increased awareness, the dedication of advocates, and innovations in research have brought progress to the treatment landscape of rare disease.…

The 2024 MDA Clinical & Scientific Conference is just around the corner. We’re looking forward to you joining us, as we showcase groundbreaking research and clinical accomplishments by dedicated professionals…

Experts recommend asking these nine questions before joining a clinical trial so you know what to expect.

In this Quest Podcast episode, we chat with Muscular Dystrophy Association’s National Ambassadors, Leah Z., and Amy Shinneman. Amy feels that connecting and sharing her story with others through MDA…

Leigh syndrome is a rare, neurodegenerative disorder caused by defects in the mitochondria, the energy-producing structures within our cells. This disorder often begins in infancy or early childhood and causes…

When doctors don’t know what you have, ask your healthcare providers these important questions to help them get to a diagnosis.

What you need to know to make a smooth transition from pediatric to adult healthcare for muscular dystrophy and other neuromuscular diseases.