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Blog Post | Health, Independence

Preparing for College Life with a Disability

Your healthcare team can help your student prepare for a healthy college experience with a disability.

Tags: College, College Experience, Education, Featured Content, Parenting, Young Adults


Blog Post | Health, Personal Stories

Coping with Grief After Losing a Loved One to a Neuromuscular Disease

Losing a loved one can be overwhelming. That’s why it’s important to know how to manage the emotions of grief.

Tags: Caregiving, Featured Content, Mental Health


Blog Post | Get Involved, Health, Inclusion, Independence, Lifestyle, Science + Research

MDA Engage Symposiums are Back in Full Swing

MDA Engage Symposiums returned in 2023 offering the neuromuscular disease community an opportunity to connect with one another in person and learn directly from expert clinicians about topics related to…

Tags: Community, Education


Blog Post | Health, Personal Stories

My Gene Therapy Journey: The Bafus Family

Jada and Bryan Bafus The Bafus family’s YouTube Channel started as a means to provide updates with close friends and family regarding their two sons’ Duchenne muscular dystrophy (DMD), but…

Tags: Gene Therapy, Healthcare, MDA Care Centers, My Gene Therapy Journey, Parenting


Blog Post | Get Involved, Inclusion, Independence, Lifestyle, News, Personal Stories

Episode 43- Disrupting the Narrative

In this Quest Podcast episode, we chat with the director, executive producer, and leading character of the movie Good Bad Things: Shane Stanger, Steve Way, and Danny Kurtzman respectively. This…

Tags: Community, Mental Health, Relationships, Young Adults


Blog Post | Advocacy, Inclusion, Independence

Celebrating Recent Significant Milestones in Disability Rights

Over the past few months, we’ve witnessed two significant milestones in the history of disability rights law. In May, we were invited to attend an announcement marking the finalization of…

Tags: Advocacy Updates


Blog Post | Inclusion, Lifestyle

Splash Into Accessible Swimming This Summer

Summertime often brings to mind sunshine, blue skies, cook-outs, yard games…and swimming! Having fun in the pool is a refreshing way to get exercise, socialize or relax, and cool off…

Tags: Community, Resources, Staying Active


Blog Post | Advocacy, News, Research

Federal Appropriations: MDA and Neuromuscular Disease Community Priorities

Each year, Congress must create and pass legislation to fund the government’s operations and programs. This process is called the federal appropriations process and is a complex and often hard-to-predict…

Tags: Advocacy Updates, Newborn Screening, Research


Blog Post | Personal Stories

A Family Legacy of Philanthropy Shapes Price Chopper/Market 32’s Commitment to Community

Price Chopper/Market 32’s commitment to serving and supporting the neuromuscular disease community is undeniable. Through a variety of fundraising campaigns over the last 39 years, they have raised more than…

Tags: Community, Fundraising, MDA Care Centers


Blog Post | Independence, Lifestyle, Personal Stories

Former Collegiate Athlete Shares How to Stay Positive When Plans Change

To say that life does not always go as planned is an understatement. Unexpected changes during life’s journey often require individuals to make difficult decisions, sacrifices, and adjustments. And due…

Tags: College, Community, Mental Health, Staying Active, Transitions