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Featured Article | Independence, Personal Stories

One Day at a Time

Being diagnosed with myotonic dystrophy changed my life, and I had to change with it On my 28th birthday, I recognized that something was wrong. I used to be able…

Tags: Ambassadors, Featured Content, From Where I Sit, Staying Active


Featured Article | Independence, Lifestyle, Personal Stories

Service With a Smile and a Wag

Here’s what you need to know about what service dogs do and how to get one At Payton Rule’s high school in Missouri, the school year always ended with field…

Tags: Featured Content, Resources, Staying Active


Featured Article | Health, News

MDA’s Care Center Network Expands

More than 150 hospitals and healthcare institutions provide specialized neuromuscular disease care   We’re welcoming 13 new hospitals and healthcare institutions to the MDA Care Center Network. These Care Centers…

Tags: Access MDA, MDA Care Centers


Featured Article | Independence, Lifestyle, Personal Stories

What You Should Know about the Smart Homes and Accessibility

Today, the smart home is a reality. Its story, meanwhile, is less about the latest products and capabilities and more about the ways users are accessing those products and channeling…

Tags: Featured Content, Innovation, Resources


Featured Article | Independence, Lifestyle, Personal Stories

Funding Accessible Vehicles

Passing on lessons I learned from buying an accessible van When my mom and I had to purchase a new accessible van about two years ago, we were not in…

Tags: Featured Content, Resources, Staying Active, Thrive 365


Featured Article | Research, Science + Research

Understanding Amyotrophic Lateral Sclerosis

A Q&A with Stanley Appel, MD   Amyotrophic lateral sclerosis (ALS) is a degenerative motor neuron disease typically diagnosed in adults in middle age or later. About 18,000 people in…

Tags: Antisense Oligonucleotide, Clinical Trials, Drug Development, Featured Content, Research, Spotlight


Blog Post | Health, News

FDA Approves MTPA’s RADICAVA ORS for Treatment of ALS

FDA grants approval to an oral suspension of edaravone (RADICAVA ORS) for the treatment of amyotrophic lateral sclerosis (ALS).

Tags: Drug Approval, Healthcare, Research


Featured Article | News, Research, Science + Research

A Successful In-Person Conference

MDA’s 2022 Clinical & Scientific Conference was the world’s largest meeting on neuromuscular disease care In mid-March, more than 1,000 people gathered in Nashville, Tennessee, for MDA’s 2022 Clinical &…

Tags: Access MDA, Ambassadors, Amy, Clinical Trials, Drug Approval, Drug Development, Exon Skipping, Gene Therapy, MDA Clinical and Scientific Conference, Research, Research Advances


Blog Post | Independence, Lifestyle

Outdoor Recreation Opportunities for Everyone

A growing number of parks and recreation areas accommodate people with disabilities who are looking for adventure with accessibility.

Tags: Community, Resources, Staying Active, Travel


Blog Post | Science + Research

Brain-Computer Interface Technology Could Improve Life for Millions

It’s been half a century since University of California, Los Angeles, computer science professor Jacques Vidal coined the term “brain-computer interface” (BCI) and produced the first peer-reviewed papers on the…

Tags: Healthcare, Innovation, MDA Clinical and Scientific Conference, Research, Research Advances