Archives
Research Study Alert: Survey of Pain Self-Management and Well-Being in People with General Pain or with Myotonic Dystrophy
Researchers at Newcastle University are seeking adults living with general pain or with myotonic dystrophy (DM) to participate in a survey.
Tags: Research Study Alert
View From the Top
Hiker Skye Lemmen raised funds for MDA while trekking the Pacific Crest Trail When Skye Lemmen, of Grand Rapids, Michigan, decided to hike the Pacific Crest Trail, she knew she…
Family Inheritance
Most neuromuscular diseases are genetic disorders, we share how genetic neuromuscular diseases are inherited.
Life-Saving PJ’s Protocol Was Inspired by a Person With DMD
PJ’s Protocol outlines procedures that healthcare providers should follow for patients who depend on corticosteroids.
Simply Stated: What is Duchenne Muscular Dystrophy?
Research advances and the promise of better therapeutics on the horizon offer hope for people living with Duchenne muscular dystrophy.
Tags: Clinical Trials, Community Education, Drug Approval, Drug Development, Exon Skipping, Gene Therapy, Genetic Testing, Healthcare, Innovations, Research, Simply Stated
Working Together
How to establish and maintain good relationships with personal care attendants Anyone who lives with a neuromuscular disease that affects mobility knows that it often takes a village of caregivers…
Positive Relationships
How adults with neuromuscular disease can form and nurture healthy romantic relationships Trust. Honesty. Mutual respect. Affection. The key elements of a healthy romantic relationship are the same for…
A New Direction for Charcot-Marie-Tooth Disease
To learn more about Charcot-Marie Tooth, we speak with Stephan Zuchner, MD, PhD, a professor and chair of the department of Human Genetics at the University of Miami.
Leading the Quest for Change
For years, MDA has worked to empower people living with muscular dystrophy, ALS, and related neuromuscular diseases to reach their fullest potential. And while strides have been made through innovations…
The Hidden Benefits of Volunteering
Helping others can help you build valuable skills Blaine, a 6-year-old black lab, is assistance dog extraordinaire to Bella Andrade, 19, who lives with spinal muscular atrophy (SMA) and uses…
Tags: Community, Education, Employment, Resources, Thrive 365, Volunteers