Archives




Blog Post | Science + Research

Research Study Alert: Survey of Pain Self-Management and Well-Being in People with General Pain or with Myotonic Dystrophy

Researchers at Newcastle University are seeking adults living with general pain or with myotonic dystrophy (DM) to participate in a survey.

Tags: Research Study Alert


Featured Article | Lifestyle

View From the Top

Hiker Skye Lemmen raised funds for MDA while trekking the Pacific Crest Trail When Skye Lemmen, of Grand Rapids, Michigan, decided to hike the Pacific Crest Trail, she knew she…

Tags: Community, Featured Content, Fundraising, Lasting Impression, Relationships


Featured Article | Health, Research

Family Inheritance

Most neuromuscular diseases are genetic disorders, we share how genetic neuromuscular diseases are inherited.

Tags: Featured Content, Gene Therapy, Genetic Testing, Healthcare, Research


Blog Post | Personal Stories, Science + Research

Life-Saving PJ’s Protocol Was Inspired by a Person With DMD

PJ’s Protocol outlines procedures that healthcare providers should follow for patients who depend on corticosteroids.

Tags: Community Education, Healthcare, Parenting, Relationships, Research


Blog Post | Science + Research

Simply Stated: What is Duchenne Muscular Dystrophy?

Research advances and the promise of better therapeutics on the horizon offer hope for people living with Duchenne muscular dystrophy.

Tags: Clinical Trials, Community Education, Drug Approval, Drug Development, Exon Skipping, Gene Therapy, Genetic Testing, Healthcare, Innovations, Research, Simply Stated


Featured Article | Independence, Lifestyle

Working Together

How to establish and maintain good relationships with personal care attendants Anyone who lives with a neuromuscular disease that affects mobility knows that it often takes a village of caregivers…

Tags: Featured Content, Personal Care Attendants, Relationships, Resources, Staying Active


Featured Article | Lifestyle

Positive Relationships

How adults with neuromuscular disease can form and nurture healthy romantic relationships   Trust. Honesty. Mutual respect. Affection. The key elements of a healthy romantic relationship are the same for…

Tags: Featured Content, Mental Health, Relationships


Featured Article | Health, News, Science + Research

A New Direction for Charcot-Marie-Tooth Disease

To learn more about Charcot-Marie Tooth, we speak with Stephan Zuchner, MD, PhD, a professor and chair of the department of Human Genetics at the University of Miami.

Tags: Clinical Trials, Gene Therapy, Healthcare, Innovation, MDA Q and A, Spotlight


Featured Article | Get Involved

Leading the Quest for Change

For years, MDA has worked to empower people living with muscular dystrophy, ALS, and related neuromuscular diseases to reach their fullest potential. And while strides have been made through innovations…

Tags: Community Education, Summer Camp, Year of Independence


Featured Article | Independence, Lifestyle, Personal Stories

The Hidden Benefits of Volunteering

Helping others can help you build valuable skills Blaine, a 6-year-old black lab, is assistance dog extraordinaire to Bella Andrade, 19, who lives with spinal muscular atrophy (SMA) and uses…

Tags: Community, Education, Employment, Resources, Thrive 365, Volunteers