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For more than 70 years, the Muscular Dystrophy Association (MDA) has been committed to empowering people living with muscular dystrophy, ALS, and related neuromuscular diseases to reach their potential.  Through…

2021 was another challenging year for many, but once again, MDA’s grassroots advocates were relentless in ensuring lawmakers heard their voices. Throughout the year, our volunteers emailed, called, and met…

On Dec. 17, the US Food and Drug Administration (FDA) granted approval to efgartigimod (Vyvgart) for the treatment of generalized myasthenia gravis (gMG) in adults who test positive for the…

It’s no secret that alcohol consumption can have an impact on one’s health. Some studies have shown benefits for the heart and circulatory system from moderate drinking. On the other…

Here at MDA, we are working to ensure all contact information is up-to-date for those who are registered in order to serve you as well as we possibly can. If…

Michio Hirano, MD (fourth from right), and his research team gather with the Coiculescu family, whose sons received an experimental treatment for TK2 deficient myopathy through a compassionate use study.…

Erasing stigma and finding support for mental health

The Resource Center answers readers’ questions

Joanna Buoniconti has known she would be a writer since she was 8 years old. Writing helps me process emotions about living with a progressive disease

Todd Kelly’s strong support system includes his wife, Laurie. Acknowledging loss with laughter helps me maintain emotional balance