Archives
5 Ways to Manage Back-to-School Stress
The start of a new school year can be stressful for the whole family, especially when juggling healthcare appointments, IEP plan meetings, school supply shopping, and assembling a back-to-school wardrobe.…
Tags: Amy, Featured Content, Mental Health, Web Exclusive
Research Grants Create a Path to Progress
MDA plays a crucial role in funding research to develop new treatments for neuromuscular diseases.
Tags: Antisense Oligonucleotide, Exon Skipping, Featured Content, Grants, Innovation, Research, Research Advances
Who You Gonna Call?
A 9-year-old with muscular dystrophy receives a Ghostbusters wheelchair from MDA and Magic Wheelchair.
Tags: Fill the Boot, Lasting Impression
Ask the Resource Center: IEPs and DMD in Women
Q: My son has an individualized education program (IEP) and is in a school that does not meet his needs. What equipment and services should the school provide? — Enis,…
Tags: Education, Genetic Testing, Healthcare, MDA Care Centers, MDA Q and A, MDA Resource Center, Resources
Q&A on Facioscapulohumeral Muscular Dystrophy
Facioscapulohumeral muscular dystrophy treatment and research advances and updates.
Tags: Clinical Trials, Drug Development, Gene Therapy, Healthcare, MDA Care Centers, Research, Research Advances, Spotlight
After-School Activities for All
How to create opportunities at your school to get kids with disabilities involved in extracurricular activities.
4 Lessons I Learned From Adaptive Sports
Playing adaptive sports has a positive impact on a man with Becker muscular dystrophy.
Tags: From Where I Sit, Staying Active
MDA Announces Advocacy Collaboration Grants Funding Opportunity
There is so much to do to help improve the lives of the neuromuscular community and their families. Although MDA works tirelessly to change and improve public policy to truly…
Tags: Advocacy Updates, Grants
Clinical Trial Alert: Phase 3 Study of IgPro20 in Adults with Dermatomyositis
Researchers partnering with CSL Behring, are seeking adults living with dermatomyositis to participate in a phase 3 clinical trial to evaluate the safety, efficacy, and duration of effect of IgPro20 (human…
Back-to-(Grad)-School
Is it back to school already? It feels like almost yesterday that I graduated from Worcester Polytechnic Institute (WPI), but even so, I’ll soon be attending Boston University (BU) in…
Tags: Ambassadors, College, College Experience, Education, Personal Care Attendants, Staying Active, Young Adults