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Researchers at Rare Disease Research, LLC are seeking boys between the ages of 7-years-old and 13-years-old who are living with Duchenne muscular dystrophy (DMD) to participate in the phase 3 MIS51ON…

Researchers at Rare Disease Research, LLC are seeking boys between the ages of 6 months and 2 years who are living with Duchenne muscular dystrophy caused by a nonsense mutation (nmDMD)…

Like many middle-school kids, 11-year-old Callen, of Emmaus, Pennsylvania, has turned his mom, Jamie Moulthrop, into a chauffeur, she jokes. He participates in karate, baseball, hockey, and surfing, and he…

With age often comes the maturity and grace to accept the world and oneself. That’s a good thing, because it takes every bit of that maturity to differentiate the aging…

A Q&A with Anita Corbett, PhD

While there are still challenges to researching therapies for ultra-rare neuromuscular diseases, many in the field see reasons for hope

Chris Benyo With the help of Team Momentum, a racing wheelchair connected and impacted multiple MDA families

Releasing my first album took a lifetime of imagination and determination

Finding accessible employment in the work-from-home era

Access Workshop helps families overcome barriers to school