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Cassidy Nilles is 35 years old and lives in Illinois. Cassidy lives with Limb Girdle muscular dystrophy (LGMD) type 2J. She lives with her daughter, Capri, and their maltipoo, Mila,…

Sydney Bryant lives in Illinois with her parents. She loves to travel and plans to work as an air traffic controller. A few years ago, Sydney had the honor of…

Sean Marihugh found his calling as an adaptive ski instructor who reminds people that the outdoors is for everybody.

Practicing shared decision-making with your healthcare provider helps you steer your care journey with confidence

In 2006, MDA funded the first gene therapy trial for Duchenne muscular dystrophy, paving the way for more neuromuscular disease treatments.

MDA has always received vital support from volunteers, with almost 2,000 people volunteering at MDA events in the past year.

MDA plays a key role in a new frontier of medicine looking into how to regenerate muscles lost to neuromuscular disease.

Leading researchers on GNE myopathy discuss what is known about this neuromuscular disease and the search for effective therapies.

Mashauna Black, who lives with limb-girdle muscular dystrophy (LGMD), found a new path to pursue her dream of working in healthcare.

How disability benefits are affected by employment and how to work with eligibility and income restrictions.