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Here at MDA, we are working to ensure all contact information is up-to-date for those who are registered in order to serve you as well as we possibly can. If…

Michio Hirano, MD (fourth from right), and his research team gather with the Coiculescu family, whose sons received an experimental treatment for TK2 deficient myopathy through a compassionate use study.…

Erasing stigma and finding support for mental health

The Resource Center answers readers’ questions

Joanna Buoniconti has known she would be a writer since she was 8 years old. Writing helps me process emotions about living with a progressive disease

Todd Kelly’s strong support system includes his wife, Laurie. Acknowledging loss with laughter helps me maintain emotional balance

Queen, who lives with Bethlem myopathy When it comes to body positivity, perspective matters. These advocates are changing how the world sees them — and how they view themselves, too

Why are new therapies for neuromuscular diseases so expensive?

Jessica Stephan and her son, who is now 9 years old. I had to face my son’s diagnosis to take better care of my family and myself

MDA program brings STEM students and professionals together to discuss education and careers