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Blog Post | Advocacy, Get Involved, Health, Independence, Lifestyle, Personal Stories, Tools& Resources

MDA Ambassador Guest Blog: Embracing Resilience and Navigating Life’s Unexpected Turns

Sorayda Rivera is a 37-year-old, first-generation Mexican American woman from Texas living with spinal muscular atrophy (SMA) type 3. Diagnosed at age three, Sorayda has defied expectations, building a life…

Tags: Ambassador Guest Blog, Ambassadors, Community, Education, Employment, Mental Health, Relationships, Young Adults


Blog Post | Get Involved, Health, Inclusion, Independence, Lifestyle, Personal Stories

Ambassador Guest Blog: Prioritizing Mental Health to Beat the Winter Blues

Ally Pack-Adair is 21 years old. She lives in Arizona and was diagnosed with a mitochondrial disease when she was a few weeks old. Ally enjoys arts and crafts, reading,…

Tags: Ambassador Guest Blog, Ambassadors, Community, Mental Health, Relationships, Staying Active, Travel, Young Adults


Featured Article | Inclusion, Independence

Finding a new Career Path Suited for Your Needs

A new outlook of acceptance helped Scott Conger find a career path best suited for his needs living with RYR1 myopathy.

Tags: Employment, Featured Content, Quest for Success


Featured Article | Independence, Lifestyle

Winter Weather Safety Tips for Neuromuscular Diseases

Tips for staying safe in the extreme winter weather months living with a neuromuscular disease.

Tags: Featured Content, Resources, Thrive 365


Featured Article | Lifestyle

Coping with Loneliness at the Holidays

Experts and community members offer 10 ways to help ease holiday loneliness.

Tags: Community, Featured Content, Relationships


Blog Post | Lifestyle

Seven Easy and Effective Ways to Increase Gratitude in Your Life

The Thanksgiving season serves as a reminder to focus on gratitude and appreciation, but practicing gratitude habits year-round has serious benefits to your well-being. Intentionally prioritizing time and creating space…

Tags: Community


Blog Post | Finding a Diagnosis, Get Involved, Health, News, Science + Research

Simply Stated: Updates in Amyotrophic Lateral Sclerosis (ALS)

Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disorder that causes muscle weakness, disability, and eventually death, often within three to five years from when the symptoms first appear. In ALS,…

Tags: Clinical Trials, Community, Drug Development, Healthcare, Innovation, MDA Care Centers, MDA Resource Center, Research, Research Advances, Resources, Simply Stated


Blog Post | Advocacy, Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

Episode 45- Making Space and Creating Pathways with Keely Cat-Wells

In this Quest Podcast episode, we chat with world-renowned advocate, entrepreneur, public speaker and educator, Keely Cat-Wells. She devotes her time and expertise to creating education and employment opportunities and…

Tags: College, Community, Education, Employment, Innovation, Relationships, Year of Independence, Young Adults


Blog Post | Advocacy, Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

National Disability Employment Awareness Month (NDEAM) Panel for Jobseekers and Employers

In this Quest webinar, we chat with esteemed panelists including: Donna Bungard, Senior Marketing Accessibility Program Manager, Indeed Nicholas Iadevio, Jr., Vice President Diversity, Equity and Inclusion, L’Oréal Stephane Leblois,…

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Blog Post | Lifestyle

Domestic Violence Awareness Month: Know Your Risk and Resources

People with disabilities are at higher risk for all types of domestic abuse. Learn how to recognize abuse and what to do about it.

Tags: Featured Content, Mental Health, Relationships