Archives




Blog Post | Advocacy, Health, Independence, Lifestyle, Personal Stories

MDA Guest Ambassador Blog: Resetting Priorities: A PhD’s Journey

Dr. Tye Martin is a digital creator, influencer, and disability advocate living with muscular dystrophy. He earned a PhD in Biomedical Engineering from the University of New Mexico in 2019.…

Tags: Ambassador Guest Blog, Ambassadors, Mental Health, Relationships, Young Adults


Blog Post | Health, Lifestyle

Adaptive Exercises for People with Neuromuscular Diseases

Understand the variety of adaptive exercises available to choose a physical activity that works for your body and mobility.

Tags: Featured Content, Staying Active


Featured Article | Health, Lifestyle

6 Tips for Living Well as a Senior with Neuromuscular Disease

Strategies for seniors with neuromuscular diseases to manage a progressive disease while dealing with common challenges that come with aging.

Tags: Caregiving, Community, Featured Content, Finance, Insurance, MDA Resource Center, Mental Health, Personal Care Attendants, Staying Active, Volunteers


Featured Article | Advocacy, Get Involved, Inclusion, News

Your Vote Matters: Disability Advocates Can Help Change Legislation for the Better

Voters and advocates with disabilities can influence legislation and make positive change—every voice counts.

Tags: Accessible Air Travel, Advocacy Updates, Featured Content


Blog Post | Inclusion, Independence, Lifestyle, Personal Stories

MDA Ambassador Guest Blog: How Technology Changed My Life – and Future

Luke Hennessy lives in Prior Lake, Minnesota, and has SMA Type 2. He is studying Pre-Law with a major in Computer Information Systems and a minor in Political Science at…

Tags: Ambassador Guest Blog, Ambassadors, College, Community, Employment, Relationships, Young Adults


Blog Post | Health, Independence

Preparing for College Life with a Disability

Your healthcare team can help your student prepare for a healthy college experience with a disability.

Tags: College, Education, Featured Content, Parenting, Young Adults


Blog Post | Health, Personal Stories

Coping with Grief After Losing a Loved One to a Neuromuscular Disease

Losing a loved one can be overwhelming. That’s why it’s important to know how to manage the emotions of grief.

Tags: Caregiving, Featured Content, Mental Health


Blog Post | Get Involved, Health, Inclusion, Independence, Lifestyle, Science + Research

MDA Engage Symposiums are Back in Full Swing

MDA Engage Symposiums returned in 2023 offering the neuromuscular disease community an opportunity to connect with one another in person and learn directly from expert clinicians about topics related to…

Tags: Community, Education


Blog Post | Health, Personal Stories

My Gene Therapy Journey: The Bafus Family

Jada and Bryan Bafus The Bafus family’s YouTube Channel started as a means to provide updates with close friends and family regarding their two sons’ Duchenne muscular dystrophy (DMD)), but…

Tags: Gene Therapy, Healthcare, MDA Care Centers, My Gene Therapy Journey, Parenting


Blog Post | Get Involved, Inclusion, Independence, Lifestyle, News, Personal Stories

Episode 43- Disrupting the Narrative

In this Quest Podcast episode, we chat with the director, executive producer, and leading character of the movie Good Bad Things: Shane Stanger, Steve Way, and Danny Kurtzman respectively. This…

Tags: Community, Mental Health, Relationships, Young Adults