Archives
MDA Guest Ambassador Blog: Resetting Priorities: A PhD’s Journey
Dr. Tye Martin is a digital creator, influencer, and disability advocate living with muscular dystrophy. He earned a PhD in Biomedical Engineering from the University of New Mexico in 2019.…
Adaptive Exercises for People with Neuromuscular Diseases
Understand the variety of adaptive exercises available to choose a physical activity that works for your body and mobility.
Tags: Featured Content, Staying Active
6 Tips for Living Well as a Senior with Neuromuscular Disease
Strategies for seniors with neuromuscular diseases to manage a progressive disease while dealing with common challenges that come with aging.
Tags: Caregiving, Community, Featured Content, Finance, Insurance, MDA Resource Center, Mental Health, Personal Care Attendants, Staying Active, Volunteers
Your Vote Matters: Disability Advocates Can Help Change Legislation for the Better
Voters and advocates with disabilities can influence legislation and make positive change—every voice counts.
MDA Ambassador Guest Blog: How Technology Changed My Life – and Future
Luke Hennessy lives in Prior Lake, Minnesota, and has SMA Type 2. He is studying Pre-Law with a major in Computer Information Systems and a minor in Political Science at…
Tags: Ambassador Guest Blog, Ambassadors, College, Community, Employment, Relationships, Young Adults
Preparing for College Life with a Disability
Your healthcare team can help your student prepare for a healthy college experience with a disability.
Tags: College, Education, Featured Content, Parenting, Young Adults
Coping with Grief After Losing a Loved One to a Neuromuscular Disease
Losing a loved one can be overwhelming. That’s why it’s important to know how to manage the emotions of grief.
Tags: Caregiving, Featured Content, Mental Health
MDA Engage Symposiums are Back in Full Swing
MDA Engage Symposiums returned in 2023 offering the neuromuscular disease community an opportunity to connect with one another in person and learn directly from expert clinicians about topics related to…
My Gene Therapy Journey: The Bafus Family
Jada and Bryan Bafus The Bafus family’s YouTube Channel started as a means to provide updates with close friends and family regarding their two sons’ Duchenne muscular dystrophy (DMD)), but…
Episode 43- Disrupting the Narrative
In this Quest Podcast episode, we chat with the director, executive producer, and leading character of the movie Good Bad Things: Shane Stanger, Steve Way, and Danny Kurtzman respectively. This…
Tags: Community, Mental Health, Relationships, Young Adults