Search Results: team momentum
MDA’s Guide to the Fair Housing Act
How the Fair Housing Act makes disability discrimination illegal in renting or buying a home and promotes access to permanent and temporary housing.
Quest Podcast: Your Difference Is Your Superpower: A Conversation with Cerys Davage
In this episode of the Quest Podcast, we chat with Cerys Davage, a Welsh podcaster and content creator living with limb-girdle muscular dystrophy (LGMD), who has turned her diagnosis into…
Clinical Research Alert: Observational Study of Muscle Function and Structure in Individuals with BMD/DMD
Researchers at Carle Foundation Hospital in Urbana, IL are seeking individuals living with Becker or Duchenne muscular dystrophy (BMD/DMD) to participate in an observational study using Diffusion Tensor MRI to…
MDA Ambassador Guest Blog: Life Beyond the Ramp
Chloe Crabb lives in Colorado with spinal muscular atrophy (SMA). She is a high school freshman and absolutely loves all things related to education and advocacy. Chloe lives with her…
Access, Impact, and Connection at the MDA Clinical & Scientific Conference
MDA National Ambassador Lily Sander at the 2026 MDA Clinical & Scientific Conference The annual MDA Clinical & Scientific Conference is the largest global gathering of leading experts dedicated to…
Tags: Ambassadors, Community, Innovation, Lily, MDA Clinical and Scientific Conference, Research Advances
MDA Ambassador Guest Blog: The Power of Lasting Friendships
Cassidy Nilles is a 36-year-old living with LGMD 2J who lives in the suburbs of Chicago. Diagnosed at age 20, she started using a wheelchair after the birth of her…
Simply Stated: Updates in Walker-Warburg Syndrome
Walker-Warburg syndrome (WWS) is a rare, inherited disorder that significantly affects the muscles, brain, and eyes. It is a form of congenital muscular dystrophy (CMD), a group of genetic muscle…
Tags: Simply Stated
Clinical Research Alert: Phase 3 Study of Salanersen in Older Teens and Adults with SMA
Researchers at Biogen are conducting the phase 3 SOLAR study to learn more about spinal muscular atrophy (SMA) and to evaluate salanersen, an investigational therapy being studied for the treatment of…
MDA Ambassador Guest Blog: What the Disability Movement Means to Me
Callie Hall lives in Orlando Florida and lives with a unique neuromuscular disability. She is passionate about disability rights, bluegrass mandolin, and being outdoors. RIIIIIIIING the school bell signals the…
Respiratory Support Makes a Big Difference: Community Perspectives on Using a Ventilator
Community members who use breathing devices say their ventilators support their freedom, mobility, and energy and improve respiratory health.