Search Results: team momentum
How to Find an Accessible Obstetrician-Gynecologist (OB/GYN)
Questions about equipment, transfers, positioning, and telehealth can help women with neuromuscular diseases find accessible OB/GYN care that fits well.
Understanding Myotubular Myopathy (MTM)
Neurologist Perry Shieh, MD, PhD, answers questions about myotubular myopathy, its symptoms, diagnosis, and the search for safer gene therapy.
Attorney Ed Barocas Lives with a Sense of Justice and a Sense of Humor
Civil rights attorney and musician Ed Barocas shares how disability advocacy, creativity, and embracing mobility equipment shaped his success.
Tags: Employment, Quest for Success
Progress Now: Enrolling Clinical Trial Updates
Explore enrolling clinical trials for ALS, DMD, Friedreich ataxia, myasthenia gravis, myotonic dystrophy, and Pompe disease.
Tags: Clinical Trials, Research
From Research to Reality: Meet 2 Researchers Driving Drug Development Progress
MDA funding supports researchers at different career stages as they explore better gene therapies and possible treatments for neuromuscular diseases.
Tags: A Look Inside, Drug Development, Gene Therapy, Grants, Innovation, MDA Clinical and Scientific Conference, Research, Research Advances
Key Disability Rights Laws Shape Accessibility Across Daily Life
Federal disability rights laws that support accessibility in buildings, air travel, technology, education, work, healthcare, housing, and voting.
Tags: Accessible Air Travel, Disability Legislation, Education, Employment, Featured Content, Healthcare, Resources, Technology, Travel
Funny Pages: Comic Strip Helps Others See the Person in the Wheelchair
When Sandy Gilbreath’s son, who lives with spinal muscular atrophy (SMA), started school in the 1990s, she noticed how his classmates reacted. “Some of the kids didn’t see him; they…
Tags: Community, Lasting Impression, Parenting
The System Inside Me: Looking Into My Own Body Led Me to Bioengineering
A young bioengineer shares how living with Emery-Dreifuss muscular dystrophy shaped his curiosity and career in medical technology.
Tags: From Where I Sit, Research, Technology, Young Adults
Is It Time to Start Breathing Support or Ventilation? Here’s What to Consider
Learn the signs you might need breathing support, and how testing, equipment costs, and insurance can guide informed decisions about starting ventilation.
Tags: DME, Equipment and Assistive Devices, Featured Content, Healthcare, Insurance, MDA Care Centers, Web Exclusive
Breathe Easier: Advances in Respiratory Care and Ventilation Equipment
Ventilators and other respiratory support devices can protect lungs, improve sleep, and help people with neuromuscular diseases maintain independence.