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2024 has already brought several exciting developments throughout MDA’s advocacy priorities and policy areas, but one of the biggest victories for the MDA community so far this year is the…

Juliette is 17 years old and lives in Florida. She is a senior in high school and will be attending FAU next fall to begin her career in social work.…

LAMA2-related muscular dystrophy (LAMA2-RD) is a rare neuromuscular condition characterized by proximal (close to the body center), axial (head and trunk), and facial weakness, elevated creatine kinase (CK), central and…

In this Quest Podcast episode, we chat with the founders of DateAbility, a dating application geared towards individuals with disabilities and chronic illnesses. Alexa and Jacqueline Child have devoted their…

Getting married may mean losing vital disability benefits. Here’s what’s being done to erase the marriage penalty.

People living with neuromuscular diseases share their upbringing and how their parents instilled resilience from a young age.

Former MDA Summer Campers get together after 14 years to reunite and continue their lasting connections.

ReelAbilities Film Festival co-founder Isaac Zablocki talks about disability representation in the entertainment industry.

Read about the many ways MDA engages with and supports families in the neuromuscular disease community.

Thousands of potentially beneficial therapies for neuromuscular diseases are being researched and tested in the drug development pipeline.