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Blog Post | Lifestyle, News

In Case You Missed It…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tags: Community, In Case You Missed It


Featured Article | Inclusion, Personal Stories

How to Help Your Child Make Friends in School

Learn how to develop your child’s ability to make friends in school

Tags: Community, Education, Featured Content, Parenting, Relationships, Young Adults


Featured Article | Advocacy, News

MDA Advocates Return to Capitol Hill

MDA advocates returned to Washington to fight for accessible air travel

Tags: Accessible Air Travel, Advocacy Updates, Ambassadors, Featured Content, Lasting Impression


Featured Article | Independence, Lifestyle, Personal Stories

Jonathan Piacentino: How I’m Navigating Life After College

Jonathan Piacentino was diagnosed with DMD in 1998. Learn how he’s navigating life after college.

Tags: Ambassadors, College, Education, Featured Content, From Where I Sit, Young Adults


Featured Article | Health, Independence

Smart Steps to Take in a Medical Emergency

When you live with rare a neuromuscular disease, you should know what steps to take in a medical emergency with first responders and in the hospital.

Tags: Featured Content, Healthcare


Blog Post | Advocacy, Get Involved, Health, Science + Research

MDA’s Legislative Efforts to Increase Access to Genetic Medicine

Too many people living with a neuromuscular disease (NMD) have difficulty obtaining an accurate diagnosis. This β€œdiagnostic odyssey” can take years or decades to resolve and leads to frustration and…

Tags: Advocacy Updates, Gene Therapy, Genetic Testing, Healthcare


Blog Post | Inclusion, Independence

Three Community Resources You Need to Know

For those living with a physical disability, it is not uncommon to encounter barriers or challenges in the pursuit for independence, education, and employment. Accessing appropriate and effective programs and…

Tags: Community, Education, Employment, MDA Resource Center, Resources


Blog Post | Finding a Diagnosis, Health, Science + Research

Simply Stated: Research Updates in Spinal-Bulbar Muscular Atrophy (SBMA)

Spinal-bulbar muscular atrophy (SBMA) is a genetic disorder in which degeneration of lower motor neurons, the nerve cells that connect the spinal cord and brainstem to the muscles, causes slow,…

Tags: Clinical Trials, Fundraising, Grants, Healthcare, Innovation, Research, Research Advances, Simply Stated


Blog Post | Science + Research

DMD Gene Therapy Approval Ignites Hope

The FDA’s approval of Elevidys, the first gene therapy for Duchenne muscular dystrophy (DMD) brings hopes and concerns for families in the MDA community.

Tags: Drug Approval, Exon Skipping, Featured Content, Gene Therapy, Research


Blog Post | Get Involved, Independence

Not JUST a Volunteer: The Powerful Impact of MDA Volunteers

While many volunteers undoubtedly recognize the multitude of valuable benefits gained by volunteering, they often minimize the incredible value that they bring. MDA’s Senior Director of Volunteer Programs, Wendi Dressen,…

Tags: Community, Fundraising, Research, Volunteers, Year of the Volunteer