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Access to Neuromuscular Disease Care for Black People and People of Color
A look at equity in treatment and access to care for Blacks and other people of color in the neuromuscular disease community.
Inclusion, Expression, and Advocacy in the Art World
The last few years have presented small steps in the right direction for a long overdue societal shift in mindset when it comes to inclusion for those living with disabilities.…
Tags: Community, Employment
Simply Stated: Updates in Oculopharyngeal Muscular Dystrophy (OPMD)
Oculopharyngeal muscular dystrophy (OPMD) is a rare, slowly progressive muscle disease that is characterized by weakness of the eyelids (ocular) and throat (pharyngeal) muscles. In some cases, OPMD also causes…
To Tilt or Not to Tilt: The Benefits of Tilt in Space Wheelchairs
Three signs that you might need a tilt-in-space wheelchair and how to choose the right one for your mobility.
MDA Welcomes its 2023 National Ambassadors
MDA’s ambassadors are pivotal to our mission: empowering people living with neuromuscular disease to live longer, more independent lives. We do that through care, research, and advocacy. Our ambassadors are…
Tags: Ambassadors, Amy, Leah, Volunteers
MDA’s 2023 Advocacy Plan
It’s a new year with a new Congress. But what hasn’t changed is MDA’s commitment to improving the lives of people living with neuromuscular diseases. We accomplished a lot last…
The Value of Volunteerism
Volunteerism affords individuals an opportunity to progress the mission of organizations that they are passionate about. Without the valuable time and talent of volunteers, most nonprofit organizations would not be…
Tags: Community, Volunteers, Year of the Volunteer
Navigating the Long Journey to a Rare Disease Diagnosis
Misdiagnoses are common in the neuromuscular disease community. Here are tips for navigating the journey to a rare disease diagnosis.
Tags: Amy, Featured Content, Healthcare, MDA Care Centers, MDA Peer Connections, MDA Resource Center
2023 MDA Clinical & Scientific Conference Keynote Speaker – FDA’s Peter Marks, M.D., Ph.D.
The Muscular Dystrophy Association (MDA) is excited to welcome Peter Marks, M.D., Ph.D. as the Keynote Speaker at the MDA 2023 Clinical & Scientific Conference. His presentation will take place…
Introducing MDA Connect
At MDA, we are proud and excited to announce the launch of a new service that will bring us closer to our community. Through our Resource Center and our team…
Tags: Community, MDA Resource Center, Resources