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Researchers at Edgewise Therapeutics are seeking adults and adolescents living with Becker muscular dystrophy (BMD) to participate in a Phase 2 clinical trial (CANYON) to evaluate the safety and efficacy of…

A look at equity in treatment and access to care for Blacks and other people of color in the neuromuscular disease community.

The last few years have presented small steps in the right direction for a long overdue societal shift in mindset when it comes to inclusion for those living with disabilities.…

Oculopharyngeal muscular dystrophy (OPMD) is a rare, slowly progressive muscle disease that is characterized by weakness of the eyelids (ocular) and throat (pharyngeal) muscles. In some cases, OPMD also causes…

Three signs that you might need a tilt-in-space wheelchair and how to choose the right one for your mobility.

MDA’s ambassadors are pivotal to our mission: empowering people living with neuromuscular disease to live longer, more independent lives. We do that through care, research, and advocacy. Our ambassadors are…

It’s a new year with a new Congress. But what hasn’t changed is MDA’s commitment to improving the lives of people living with neuromuscular diseases. We accomplished a lot last…

Volunteerism affords individuals an opportunity to progress the mission of organizations that they are passionate about. Without the valuable time and talent of volunteers, most nonprofit organizations would not be…

Misdiagnoses are common in the neuromuscular disease community. Here are tips for navigating the journey to a rare disease diagnosis.

The Muscular Dystrophy Association (MDA) is excited to welcome Peter Marks, M.D., Ph.D. as the Keynote Speaker at the MDA 2023 Clinical & Scientific Conference. His presentation will take place…