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Blog Post | Independence, Lifestyle, Personal Stories

Back-to-(Grad)-School

Is it back to school already? It feels like almost yesterday that I graduated from Worcester Polytechnic Institute (WPI), but even so, I’ll soon be attending Boston University (BU) in…

Tags: Ambassadors, College, Education, Personal Care Attendants, Staying Active, Young Adults


Blog Post | Advocacy, Lifestyle

Ethan LyBrand and Ben Schwartz Share a Laugh for National Tell a Joke Day

Ethan LyBrand loves a good joke. During the start of the COVID-19 pandemic, Ethan embarked on a virtual crusade to bring happiness to the world by sharing a joke a…

Tags: Ambassadors, Community


Blog Post | Advocacy, Finding a Diagnosis, Health, Independence

What is the MDA Resource Center? An Executive Q&A

What is an MDA Care Center?Β  I’m having symptoms of a muscle disease and I’m not sure what to do or who to talk to.Β  My child was diagnosed with…

Tags: MDA Care Centers, MDA Resource Center, Resources


Blog Post | Lifestyle

Back-to-School Beauty Hacks with Wheelchair Barbie

Madison Lawson is passionate about hair, make-up, and fashion, and the importance of inclusivity in the fashion and beauty industry. Born with spinal muscular atrophy (SMA), she became interested in…

Tags: Community, Year of Independence, Young Adults


Blog Post | Health, Science + Research

Clinical Trial Alert: Phase 2 Study of Oral Ifetroban in Individuals with DMD

Researchers at Cumberland Pharmaceuticals Inc. areΒ seeking boys and men living with Duchenne muscular dystrophy (DMD) to participate in a phase 2 clinical trial to evaluate the safety, and efficacy of…

Tags: Clinical Trial Alert, Clinical Trials, Drug Development, Exon Skipping, Research


Blog Post | Health, Independence, Lifestyle, Personal Stories

August is National Make-a-Will Month

When most people think of August, they think of the end of summer and back to school, but did you know that August is also National Make-a-Will month?Β  Whether you’re…

Tags: Mental Health, Relationships


Blog Post | Independence, Lifestyle, Personal Stories

Quest for Success: Jason Morgan

As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to share our 2022 blog series: β€œQuest for Success”. Success looks…

Tags: College, Community, Education, Quest for Success, Summer Camp, Year of Independence


Blog Post | Lifestyle, Personal Stories

National Ambassador Shares the Value of Friendship

Amy and Shelli It’s an honor to be able to share my thoughts on friendship and what that means to me to celebrate friendship day! For those of you who…

Tags: Ambassadors, Community, Relationships, Staying Active


Blog Post | Advocacy, Independence, Lifestyle

Navigating School Supports with MDA

As the days become longer and the fireflies come out to play, it might be hard to start thinking about the new school year right around the corner. Β But when…

Tags: Education, MDA Resource Center, Parenting, Resources


Blog Post | Get Involved

Trans-NH Bike Ride’s 35th Anniversary Event Makes an Impact

The Muscular Dystrophy Association (MDA) today announced that the 35th Annual Trans New Hampshire Bike RideΒ (TNHBR) held on June 25, starting and ending at the Portsmouth Senior Center in Portsmouth,…

Tags: Community, Fundraising, Staying Active, Volunteers