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Do You Know ALS? Meet Dr. Cudkowicz.
Dr. Merit Cudkowicz, chief of Neurology at Massachusetts General Hospital, where the ALS Multidisciplinary Clinic in the Healey Center for ALS is associated with MDA, is dedicated to performing academic-led…
Tags: Drug Development, Grants, MDA Care Centers, Research
Do You Know ALS? Meet Tim.
In 2016, former NFL player Tim Green was diagnosed with amyotrophic lateral sclerosis (ALS) and was private about his new life at first. Over time, Tim has become an advocate…
Tags: Clinical Trials, Community, Drug Development
FDA Approves AveXis’ Zolgensma for Treatment of Spinal Muscular Atrophy in Pediatric Patients
Today, the U.S. Food and Drug Administration (FDA) approved Zolgensma (onasemnogene abeparvovac-xioi), the first gene therapy for a neuromuscular disease. Zolgensma is a one-time intravenous (into the vein) infusion for the…
JAMA Neurology Publishes Article on Newborn Screening and Neuromuscular Disorders
Earlier this week, JAMA Neurology published an article co-authored by Muscular Dystrophy Association (MDA) staff members that addresses the role of newborn screening (NBS) in the field of neuromuscular disease.…
Tags: Newborn Screening
Do You Know ALS? Meet Sunny.
Just two weeks before her 28th birthday, and after a long search for an explanation for a series of symptoms, Sunny Brous was diagnosed with amyotrophic lateral sclerosis (ALS). Sunny…
Tags: MDA Care Centers, Relationships
Support ALS Patients: Tell Congress to Pass the ALS Disability Insurance Act Today
Amyotrophic lateral sclerosis (ALS) is a neuromuscular degenerative disease that causes rapid muscular atrophy. It progresses quickly, and patients need access to all available support as soon as possible. Currently,…
Do You Know ALS? Meet Dr. Glass.
Dr. Jonathan Glass is the director of the Emory ALS Center, co-chair of the Northeast ALS Consortium, and professor of Neurology and Pathology at Emory University in Atlanta. Dr. Glass’…
Tags: Gene Therapy, MDA Care Centers, Research
Do You Know ALS? Meet Jim.
In 2015, Karen Condron was honored with MDA’s prestigious Wings Over Wall Street Spirit Award in recognition of her passion for life — while fighting amyotrophic lateral sclerosis (ALS). It…
Tags: Fundraising, Relationships
Do You Know ALS? Diagnosing the Disease is an Odyssey.
While most visits to the doctor lead to a quick diagnosis, the same is not so for amyotrophic lateral sclerosis (ALS). On average, getting an ALS diagnosis takes 12 months…
Tags: Clinical Trials, MDA Care Centers
Do You Know ALS? Meet Anthony, Alicia, and Erin.
Team Momentum is a team of runners who dedicate their miles to help our community raise critical dollars that help MDA fund research breakthroughs and provide families living with muscle…
Tags: Community, Fundraising, Team Momentum