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Heather Nightingale lives with myotonic dystrophy type 1 (DM1) and painted a mural to heal and reconnect with nature in her home.

MDA offers many opportunities to connect with a specialist on our team to get one-on-one support.

Professional dancer Carol Alvarez manages myasthenia gravis (MG) and a career in the performing arts.

New digital health technologies and wearables can improve research and access to clinical trials for people with neuromuscular diseases.

Titinopathies researcher Bjarne Udd, MD, PhD, details progress on neuromuscular disorders associated with the Titin (TTN) gene.

Advice on how to plan ahead for long-term care needs and a stable financial future with a progressive neuromuscular disease.

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Cassidy Nilles is 34 years old and lives in Illinois. Cassidy lives with Limb Girdle muscular dystrophy (LGMD) type 2J. She lives with her daughter, Capri, and their 9-year-old maltipoo,…

SELENON (SEPN1)-related myopathy (SELENON-RM) is a rare congenital neuromuscular condition characterized by slowly progressive axial (trunk and head) muscle weakness, early-onset rigidity of the spine, scoliosis (sideways curve of the spine),…

Branden Leimbach is 26 years old. He is a born and raised Nebraskan. Branden was diagnosed with Mitochondrial Myopathy at the young age of 6. He has a degree in…