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Understanding IEP and 504 plan eligibility, accommodations, how to request support, and how they work in real-world examples of students with disabilities.

A woman living with muscular dystrophy shares how listening to her body and recording her symptoms led to a second diagnosis

A birder with muscular dystrophy shares his story, adaptive equipment journey, and how birdwatching can improve your health and well-being.

In this episode of the Quest Podcast, we chat with Nicole Lucas, a devoted family caregiver and dental hygienist who stepped away from her career so that her daughter could…

Critical ALS Legislation You Need to Know About As we near the end of ALS Awareness Month, the work is just beginning to get critical legislation for those with ALS…

Since her diagnosis with ALS at age 32, Gwen Petersen has poured her energy into advancing the science of her disease through participation in clinical and observational research. Gwen works…

Researchers at the University of Rochester are seeking adults with myotonic dystrophy type 2 (DM2) for a longitudinal natural history study (LEOPARD-DM2: Longitudinal Endpoint Optimization Providing an Assessment of Relevant Drugs…

Joshua Vinson enjoys rain, camping, and cooking. Joshua works as a Quality Assurance Specialist in medical records processing. Their NMD diagnosis is Laing Distal Muscular Myopathy.  I think about fire…

For many people living with generalized myasthenia gravis (gMG), the journey is not just defined by symptoms—it’s shaped by uncertainty. Uncertainty in diagnosis. Uncertainty in treatment. And for a significant…

Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…