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Tips for staying safe in the extreme winter weather months living with a neuromuscular disease.

Experts and community members offer 10 ways to help ease holiday loneliness.

Meet the runners-up of the 2024 Quest Media Photo Contest and see their entries.

The Thanksgiving season serves as a reminder to focus on gratitude and appreciation, but practicing gratitude habits year-round has serious benefits to your well-being. Intentionally prioritizing time and creating space…

Nora Ramirez lives in California, and was diagnosed with Selenon (SEPN1)-related myopathy (RM) at the age of 9 years old. She is one of four siblings with SEPN1-RM; the other…

Tofersen, marketed by Biogen under the brand name Qalsody, is a targeted therapy for SOD1-associated ALS. Learn about the development of the drug and if it might be right for…

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Caregivers, whether formal or informal, are often an intrinsic part of day-to-day life for individuals living with disabilities. As we celebrate National Caregiver Appreciation Month this November and prepare to…

The 2025 MDA Clinical & Scientific Conference is coming up! Each year, MDA hosts visionary leaders in neuromuscular disease research and treatment, creating an opportunity for the research and medical…

Ira J Walker III During the recent pandemic, I created a written nest of emotional solace by constructing a daily gratitude journal.  This was a journal that I diligently spent…