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Civil rights attorney and musician Ed Barocas shares how disability advocacy, creativity, and embracing mobility equipment shaped his success.

Explore enrolling clinical trials for ALS, DMD, Friedreich ataxia, myasthenia gravis, myotonic dystrophy, and Pompe disease.

MDA funding supports researchers at different career stages as they explore better gene therapies and possible treatments for neuromuscular diseases.

Federal disability rights laws that support accessibility in buildings, air travel, technology, education, work, healthcare, housing, and voting.

When Sandy Gilbreath’s son, who lives with spinal muscular atrophy (SMA), started school in the 1990s, she noticed how his classmates reacted. “Some of the kids didn’t see him; they…

A young bioengineer shares how living with Emery-Dreifuss muscular dystrophy shaped his curiosity and career in medical technology.

Learn the signs you might need breathing support, and how testing, equipment costs, and insurance can guide informed decisions about starting ventilation.

Ventilators and other respiratory support devices can protect lungs, improve sleep, and help people with neuromuscular diseases maintain independence.

Researchers find that proteomics, the study of proteins, offers hope for earlier diagnosis and treatment for ALS and other neuromuscular diseases.

Madison Helaire is an 18-year-old, upcoming nursing major from Baton Rouge, Louisiana. Madison has congenital muscular dystrophy and enjoys reading and baking for fun. As a teenage girl living with…