Archives
A Shift in Perspective: Person-First Language and Identity-First Language
When the disability rights movement began in the 1970s, the disability community started forging the path for those living with disabilities to have access to equal rights, inclusion, and the…
Tags: Ambassadors, Community
Navigating College Scholarships and Financial Assistance with a Disability
Tips for finding funding—from scholarships to financial aid—to help students with disabilities start and finish college.
Tags: College, Education, Featured Content, Finance, MDA College Scholarships, Resources, Transitions, Young Adults
Insights by Ira: Mission Complete
Just four days prior to my inaugural public engagement as National Ambassador in 2024, I began not feeling well. Confronted with this situation, I was faced with two options: notify…
Tags: Ambassador Guest Blog, Ambassadors, Community, Insights by Ira, Ira, MDA Ambassador Program, MDA National Ambassador Blog, MDA National Ambassadors, Mental Health, Relationships
In Case You Missed It…
Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…
Tags: Ambassador Guest Blog, Ambassadors, Caregiving, Community, Drug Approval, Drug Development, Employment, Finance, Genetic Testing, Healthcare, In Case You Missed It, Ira, Lily, Parenting, Research
Clinical Research Alert: Phase 1b Study of SRD-001 in Adults with DMD-Related Cardiomyopathy
Researchers at Sardocor Corp are seeking adults with cardiomyopathy (heart disease) secondary to Duchenne muscular dystrophy (DMD) to participate in a phase 1b clinical trial to evaluate the safety and explore…
Holiday Gift Wrapping Made Easier: Accessible Tips & Tricks
As the holidays approach, ‘tis the season for holiday hacks and tips. One key (and sometimes daunting) task on many people’s holiday to-do list after the busy hustle and bustle…
Tags: Community
Progress Through Partnership: MDA’s Collaborative Research Grants Drive Neuromuscular Science Forward
Progress in neuromuscular research has always depended on collaboration — scientists, families, advocates, and organizations uniting to accelerate the path to treatments. This spirit is at the heart of the…
Tags: Grants, Innovation, Research
MDA Updates on Air Travel Advocacy
With the busy holiday travel season, many members of the neuromuscular community may be wondering about the latest policy developments in accessible air travel. This blog provides a round-up of…
Tags: Advocacy Updates, Community, Travel
Community Voices: Finding Connection in the Shared Language of Living with a Disability
Bio: Sonali Gupta is an essayist, journalist, and audio producer. She holds a master’s degree in journalism from New York University and previously worked as an audio producer in Mumbai,…
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Quest Podcast: Wrapping Up 2025 with Ira and Lily
In this Quest Podcast episode, we chat with Muscular Dystrophy Association’s National Ambassadors, Lily S. and Ira Walker. Lily is a dedicated advocate finishing her first year as a National…
Tags: Ambassadors, Community, MDA Ambassador Program, MDA Ambassadors, MDA National Ambassadors, Mental Health, Relationships, Young Adults