Archives
Tis the Season for Holiday Hacks and Tips
For some, the holiday season means the hustle and bustle of hosting, traveling, gift giving, and gatherings. For others, the end of the year is a time to slow down,…
Tags: Ambassadors, Community, Resources
5 Things Advocates Should Know: The Alleviating Barriers for Caregivers Act
November is National Family Caregivers Month, and it is important to MDA to uplift the importance of family caregivers in the neuromuscular community. Due to decades of underinvestment in paid…
Tags: Advocacy Updates, Caregiving, Healthcare
The Hidden Power of Self-Care in Caregiving
Four family caregivers share the everyday ways they incorporate self-care into their lives, so they can care for their loved ones.
Meet Our 2025 MDA Quest Photo Contest Winners
People living with neuromuscular diseases shared their meaningful moments in the Quest Media photo contest. Here are this year’s winner and three runners-up.
A Lifetime of Learning: From College to a Career in Disability Advocacy
Naomi Hess pursues a lifetime of education in college and beyond to learn about her interests and progress in her career.
Tags: College, Education, From Where I Sit, Young Adults
New Year, New Financial Plan: Tips to Get Your Budget Back On Track
Follow these tips to save money in your budget when you’re balancing health and disability-related expenses.
Understanding Spinal-Bulbar Muscular Atrophy
Q&A with an expert on spinal-bulbar muscular atrophy (SBMA), or Kennedy’s disease
From Classroom to Courtroom: How Eric Arnold Navigated Accessibility in His Education and Career
How Eric Arnold, an attorney living with spinal muscular atrophy (SMA), built an accessible career and lives independently.
Progress Now: Immunotherapy Study Recruiting, Drug Cleared for Expanded Access, and More
Tracking research updates and breakthroughs that help accelerate treatments and cures across MDA diseases
Say Yes to Gene Therapy? Factors to Consider When Gene Therapy Is an Option
When you have access to gene therapy for a neuromuscular disease, weigh the risks and benefits for yourself or your child in your decision-making.
Tags: Clinical Trials, Drug Development, Featured Content, Gene Therapy, Healthcare, My Gene Therapy Journey, Research