Archives
MDA’s DME Grant Program Helps Get Essential Equipment to Live Well
MDA’s DME Grant Program helps people access essential durable medical equipment for greater independence and daily support.
Tags: A Look Inside, DME, Equipment and Assistive Devices, Insurance, MDA Care Centers, MDA Resource Center
Finding the Funny: Fiona Cauley Uses Comedy to Raise Disability Awareness
Headlining comedian Fiona Cauley uses humor and honesty to raise awareness about Friedreich ataxia and living with disability.
Tags: Lasting Impression
Foster Care, Adoption, and Surrogacy Considerations for Parents with Neuromuscular Diseases
For people living with disabilities, adoption, surrogacy, and foster care may be meaningful ways to build a family or parent kids who need stability.
Tags: Community, Featured Content, Parenting, Web Exclusive
New Cardiac Insights Show How Neuromuscular Diseases Affect the Heart
Researchers are learning more about how neuromuscular diseases affect the heart, leading to earlier cardiac screening and better management.
Tags: Featured Content, Grants, Healthcare, Innovation, MDA Care Centers, Research, Research Advances
Guide to Navigating IEPs and 504 Plans for Kids with Neuromuscular Diseases
Understanding IEP and 504 plan eligibility, accommodations, how to request support, and how they work in real-world examples of students with disabilities.
Tags: Ambassadors, Education, Featured Content, Lily, Parenting, Resources, Young Adults
Stars in the Shower: How Listening to My Body Led Me to a Second Diagnosis
A woman living with muscular dystrophy shares how listening to her body and recording her symptoms led to a second diagnosis
Accessible Birding: An Inclusive Window to Nature and Wildlife
A birder with muscular dystrophy shares his story, adaptive equipment journey, and how birdwatching can improve your health and well-being.
Quest Podcast: The People Behind the People: Family Caregiving, Policy, and the Power of Showing Up
In this episode of the Quest Podcast, we chat with Nicole Lucas, a devoted family caregiver and dental hygienist who stepped away from her career so that her daughter could…
Tags: Caregiving, Parenting, Relationships
Critical ALS Legislation You Need to Know About
Critical ALS Legislation You Need to Know About As we near the end of ALS Awareness Month, the work is just beginning to get critical legislation for those with ALS…
Tags: Advocacy Updates, Community, Healthcare
MDA Ambassador Guest Blog: How to Find Community for Young People Living with Debilitating Diseases
Since her diagnosis with ALS at age 32, Gwen Petersen has poured her energy into advancing the science of her disease through participation in clinical and observational research. Gwen works…