Archives

Accommodations at the dentist’s office, adaptive tools for brushing and flossing, and more tips for hygiene and overall health.

Q&A with Priyanka Kakkar about ADSS1 myopathy, founding Cure ADSSL1, and driving research and care for rare diseases.

Sharon Townsend, living with limb-girdle muscular dystrophy, found renewed confidence and purpose in a second-act career.

Current clinical trials enrolling, recent study results, new drug approvals, and more across MDA diseases.

Moms living with neuromuscular diseases and maternal-fetal medicine specialists share experiences and expert guidance for pregnancy, delivery, and postpartum.

MDA’s DME Grant Program helps people access essential durable medical equipment for greater independence and daily support.

Headlining comedian Fiona Cauley uses humor and honesty to raise awareness about Friedreich ataxia and living with disability.

For people living with disabilities, adoption, surrogacy, and foster care may be meaningful ways to build a family or parent kids who need stability.

Researchers are learning more about how neuromuscular diseases affect the heart, leading to earlier cardiac screening and better management.

Understanding IEP and 504 plan eligibility, accommodations, how to request support, and how they work in real-world examples of students with disabilities.