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Hello! For those of you who don’t already know me, my name is Lily and I live with Charcot-Marie-Tooth disease (CMT). While I am not a parent, these recommendations come…

Researchers at Genentech Inc. are seeking adult males treated with risdiplam (Evrysdi) for spinal muscular atrophy (SMA) to participate in an observational study (MARLIN) to assess the effects of treatment on…

Here are the programs and benefits you should know about to ease the financial burden of living with a disability and build economic security.

For some, the holiday season means the hustle and bustle of hosting, traveling, gift giving, and gatherings. For others, the end of the year is a time to slow down,…

November is National Family Caregivers Month, and it is important to MDA to uplift the importance of family caregivers in the neuromuscular community. Due to decades of underinvestment in paid…

Four family caregivers share the everyday ways they incorporate self-care into their lives, so they can care for their loved ones.

People living with neuromuscular diseases shared their meaningful moments in the Quest Media photo contest. Here are this year’s winner and three runners-up.

Naomi Hess pursues a lifetime of education in college and beyond to learn about her interests and progress in her career.

Follow these tips to save money in your budget when you’re balancing health and disability-related expenses.

Q&A with an expert on spinal-bulbar muscular atrophy (SBMA), or Kennedy’s disease