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Skye Anderson lives in North Carolina, and is an advocate living with facioscapulohumeral muscular dystrophy (FSHD). She is passionate about accessibility, spreading awareness, and empowering others with disabilities to use…

For the neuromuscular disease community, the ADA provides protections for people with disabilities to work and participate fully in their communities.

Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Tina Vassar lives in Durham, North Carolina with her dog Milo. She is 69 years young and has lived with myasthenia gravis for over 30 years. Like many people living…

It’s no secret that MDA advocates are a force on Capitol Hill and have routinely commanded the hall of Congress during MDA on the Hill over the years. Jennifer Lane…

Researchers at Vor Bio are conducting a global phase 3 clinical study (UPSTREAM MG) for adults with generalized myasthenia gravis (gMG) who are AChR or MuSK+. The study will evaluate…

Morimoto–Ryu–Malicdan neuromuscular syndrome (MRMNS) is an inherited condition that was first reported on in late 2024. It is caused by variants in the RFC4 gene and is classified as a…

The MDA Quest Media Product Guide is designed to help you find the products you need to live a more independent, stylish, fun, and all-around great life. All the products…

Accommodations at the dentist’s office, adaptive tools for brushing and flossing, and more tips for hygiene and overall health.

Q&A with Priyanka Kakkar about ADSS1 myopathy, founding Cure ADSSL1, and driving research and care for rare diseases.