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A young bioengineer shares how living with Emery-Dreifuss muscular dystrophy shaped his curiosity and career in medical technology.

Learn the signs you might need breathing support, and how testing, equipment costs, and insurance can guide informed decisions about starting ventilation.

Ventilators and other respiratory support devices can protect lungs, improve sleep, and help people with neuromuscular diseases maintain independence.

Researchers find that proteomics, the study of proteins, offers hope for earlier diagnosis and treatment for ALS and other neuromuscular diseases.

Madison Helaire is an 18-year-old, upcoming nursing major from Baton Rouge, Louisiana. Madison has congenital muscular dystrophy and enjoys reading and baking for fun. As a teenage girl living with…

James (Jimmy) Grammig is a 23-year-old from Tampa, Florida. He was diagnosed with limb-girdle muscular dystrophy (LGMD) and has used a wheelchair since he was about 13 years old. He…

Researchers at argenx are conducting a phase 2 clinical trial (SPARKLE) for children and teenagers with spinal muscular atrophy (SMA). The study is designed to determine the appropriate dose of…

Researchers hope a gene therapy with a new adeno-associated virus (AAV) will deliver disease-modifying benefits without endangering the liver.

Quest Media is an innovative, adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

How the Fair Housing Act makes disability discrimination illegal in renting or buying a home and promotes access to permanent and temporary housing.