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Featured Article | Get Involved

MDA Milestone: How ‘Fill the Boot’ Was Born

In 1952, fire fighters first joined forces with MDA to fight muscular dystrophy — and 70+ years later, the mission continues.

Tags: Featured Content, Fill the Boot, Lasting Impression, MDA 75th


Featured Article | Inclusion, Lifestyle, Personal Stories

How We’re Changing the Narrative on Disability in Hollywood

“Good Bad Things” actor Danny Kurtzman tells how he reclaimed his story and challenged Hollywood’s portrayal of disability.

Tags: Featured Content, From Where I Sit


Featured Article | News, Science + Research

Why MDA’s Kickstart Program Is a Game-changer for Gene Therapies

Kickstart accelerates gene therapies for ultra-rare neuromuscular diseases, bridging gaps in research and drug development.

Tags: Clinical Trials, Drug Development, Featured Content, Gene Therapy, Innovation, Research


Featured Article | Advocacy, Independence, Lifestyle

WAV Taxis and Rideshares Open Doors for Inclusive Transportation

Wheelchair-accessible vehicles (WAV) through rideshares and taxis fill a critical transportation gap for passengers with disabilities.

Tags: Featured Content, Travel


Blog Post | Advocacy, Health, News

How to Manage Stress and Fear in Uncertain Times

Stressed about policy and funding changes? Prioritize self-care and follow these strategies to build your resilience in times of uncertainty.

Tags: Advocacy Updates, Community, Featured Content, Mental Health


Blog Post | Advocacy, Health, Science + Research, Tools& Resources

MDA Conference Grants Support Resources to the Community

The Muscular Dystrophy Association (MDA) provides a significant number of research grants each year to scientists working in the field of neuromuscular diseases. But what many may not know is…

Tags: Community, Grants, Healthcare, Innovation, MDA Clinical and Scientific Conference, Research Advances, Resources


Blog Post | Advocacy, Get Involved, Health, Independence, News, Tools& Resources

Understanding the Threats to the ACL – and What It Means for You

In late March, the U.S. Department of Health and Human Services (HHS) announced a ‘dramatic restructuring’ of the Department, including reorganization of the Administration for Community Living (ACL), an agency…

Tags: Advocacy Updates, Caregiving, Community, Healthcare, MDA Advocacy, Resources


Blog Post | Advocacy, Lifestyle, Personal Stories, Tools& Resources

Life with Lily #2: Advocating for Disability Rights

Advocacy doesn’t always look bold or dramatic. Most of the time, it’s quiet, messy, and uncomfortable. Long before the first time I ever walked into a Congressional office to lobby…

Tags: Advocacy Updates, Ambassadors, Community, Life with Lily, Lily, MDA Ambassadors, MDA National Ambassador Blog, Young Adults


Blog Post | Lifestyle

How to Plan the Perfect Summer Staycation

As the cost of living continues to rise in the United States, many individuals and families are re-evaluating their budgets. Typically, vacations are among the first things to get cut…

Tags: Community


Blog Post | Advocacy, Get Involved, Health, Inclusion, Independence, Lifestyle, Personal Stories

MDA Ambassador Guest Blog: A Life of Service

Greg Dodson lives in Tennessee with his wife, Mona. He is a US Army Veteran who has logged 3,862 jumps from airplanes! He received a diagnosis of ALS in 2019,…

Tags: Ambassador Guest Blog, Ambassadors, Caregiving, Community, Relationships