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Progress Now: Research Updates and Breakthroughs
Tracking research updates and breakthroughs that help accelerate treatments and cures across MDA diseases.
Tags: Research, Research Advances
MDA Clinical & Scientific Conference Sessions Drive Innovation in Neuromuscular Care
Discoveries presented at the MDA Clinical & Scientific Conference can shape the future of neuromuscular care.
Community Members Share Their Everyday Milestones
MDA community members share meaningful moments and everyday milestones from the past year.
Sports, Disability, and Perseverance: How I Adapt to Stay in the Game
Trained sports broadcaster Michael Chamberlain has spent his career showing that people with disabilities belong in the sports world.
Tags: Employment, From Where I Sit, Young Adults
The New Diagnostic Journey: Advances in Genetic Testing Speed Rare Disease Diagnosis
New gene sequencing technologies mean better genetic testing, fewer delays in diagnosis, and more access to gene therapies.
Tags: Drug Development, Featured Content, Gene Therapy, Genetic Testing, Healthcare, Insurance, MDA Care Centers, Research, Technology
MDA Ambassador Guest Blog: The Secret to Navigating Life with a Rare Disease? Say Yes.
Charlotte is 11 years old and lives with LGMD2C, which was diagnosed when she was two and a half. When she grows up, Charlotte wants to get a law degree…
Tags: Ambassador Guest Blog, Ambassadors, Caregiving, Community, Mental Health, Relationships, Young Adults
Everything You Need to Know About the Upcoming 2026 MDA Clinical & Scientific Conference
The 2026 MDA Clinical & Scientific Conference is quickly approaching. Taking place March 8-11, 2026, at the Hilton Orlando in Orlando Florida, this year’s conference will explore the latest research…
MDA Ambassador Guest Blog: Grateful for the One by My Side on Valentine’s Day (and Every Day)
Jeff Thomas resides in beautiful Boise, Idaho with his partner in crime, Christine, and their precious fur-babies, Tito, Flora, and Fred. Their love and support motivate him in the fight…
Recent Updates with Section 504
In January, nine states led by Texas revised their challenge to Section 504 of the Rehabilitation Act and the integration mandate required by both Section 504 and the Americans with Disabilities Act…
Tags: Advocacy Updates
International Day of Women and Girls in Science: MDA Spotlight on Elizabeth Madole
International Women and Girls in Science Day, February 11, endeavors to acknowledge and celebrate the invaluable role that women and girls play in accelerating change and discovery in the professional…