Archives
MDA Milestone: How ‘Fill the Boot’ Was Born
In 1952, fire fighters first joined forces with MDA to fight muscular dystrophy — and 70+ years later, the mission continues.
How We’re Changing the Narrative on Disability in Hollywood
“Good Bad Things” actor Danny Kurtzman tells how he reclaimed his story and challenged Hollywood’s portrayal of disability.
Tags: Featured Content, From Where I Sit
Why MDA’s Kickstart Program Is a Game-changer for Gene Therapies
Kickstart accelerates gene therapies for ultra-rare neuromuscular diseases, bridging gaps in research and drug development.
WAV Taxis and Rideshares Open Doors for Inclusive Transportation
Wheelchair-accessible vehicles (WAV) through rideshares and taxis fill a critical transportation gap for passengers with disabilities.
Tags: Featured Content, Travel
How to Manage Stress and Fear in Uncertain Times
Stressed about policy and funding changes? Prioritize self-care and follow these strategies to build your resilience in times of uncertainty.
MDA Conference Grants Support Resources to the Community
The Muscular Dystrophy Association (MDA) provides a significant number of research grants each year to scientists working in the field of neuromuscular diseases. But what many may not know is…
Tags: Community, Grants, Healthcare, Innovation, MDA Clinical and Scientific Conference, Research Advances, Resources
Understanding the Threats to the ACL – and What It Means for You
In late March, the U.S. Department of Health and Human Services (HHS) announced a ‘dramatic restructuring’ of the Department, including reorganization of the Administration for Community Living (ACL), an agency…
Life with Lily #2: Advocating for Disability Rights
Advocacy doesn’t always look bold or dramatic. Most of the time, it’s quiet, messy, and uncomfortable. Long before the first time I ever walked into a Congressional office to lobby…
Tags: Advocacy Updates, Ambassadors, Community, Life with Lily, Lily, MDA Ambassadors, MDA National Ambassador Blog, Young Adults
How to Plan the Perfect Summer Staycation
As the cost of living continues to rise in the United States, many individuals and families are re-evaluating their budgets. Typically, vacations are among the first things to get cut…
Tags: Community
MDA Ambassador Guest Blog: A Life of Service
Greg Dodson lives in Tennessee with his wife, Mona. He is a US Army Veteran who has logged 3,862 jumps from airplanes! He received a diagnosis of ALS in 2019,…