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Kickstart accelerates gene therapies for ultra-rare neuromuscular diseases, bridging gaps in research and drug development.

Wheelchair-accessible vehicles (WAV) through rideshares and taxis fill a critical transportation gap for passengers with disabilities.

Stressed about policy and funding changes? Prioritize self-care and follow these strategies to build your resilience in times of uncertainty.

The Muscular Dystrophy Association (MDA) provides a significant number of research grants each year to scientists working in the field of neuromuscular diseases. But what many may not know is…

In late March, the U.S. Department of Health and Human Services (HHS) announced a ‘dramatic restructuring’ of the Department, including reorganization of the Administration for Community Living (ACL), an agency…

Advocacy doesn’t always look bold or dramatic. Most of the time, it’s quiet, messy, and uncomfortable. Long before the first time I ever walked into a Congressional office to lobby…

As the cost of living continues to rise in the United States, many individuals and families are re-evaluating their budgets. Typically, vacations are among the first things to get cut…

Greg Dodson lives in Tennessee with his wife, Mona. He is a US Army Veteran who has logged 3,862 jumps from airplanes! He received a diagnosis of ALS in 2019,…

At the Muscular Dystrophy Association (MDA), we’re marking a major moment in our history. Dr. Donald S. Wood, who has led MDA as President and CEO since 2020, has announced…

Jaylin Hsu, from San Marino, California, is senior at the University of California, Los Angeles studying Molecular, Cell, & Developmental Biology. Since his freshman year, he has been involved in…