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Researchers at Biogen are seeking adults with a certain confirmed mutation in the superoxide dismutase 1 (SOD1) gene, who are not yet experiencing symptoms of ALS, to participate in a phase…

More than ever, people with neuromuscular diseases can be optimistic about finding a career path after high school. Here are top strategies for thinking about what’s next.

Limited range of mobility, muscle weakness, contractures, and general muscle fatigue can often introduce challenges when it comes to independently completing daily tasks. Individuals living with neuromuscular disease are sometimes…

There is so much to do to help improve the lives of the neuromuscular community and their families. Although MDA works tirelessly to change and improve public policy to truly…

A look at various neuromuscular diseases that can cause hypotonia, or floppy infant syndrome, in babies and how to get a diagnosis.

MDA is committed to providing program options for teens and young adults that build independence and confidence while fostering lifelong relationships. The MDA Mentorship Program provides a unique opportunity for…

What? When? Where? MDA is pleased to share that registration for the 2024 MDA Clinical & Scientific Conference being held March 3-6, 2024, at the Hilton Orlando in Orlando, FL…

In this Quest Podcast episode, we chat with Mark Fisher, MDA’s Director of Advocacy Engagement and Michael Lewis, MDA’s Director of Disability Policy, an advocate who lives with physical disabilities.…

It feels like just yesterday that I was meeting my husband Jamie for the first time in the science hall of our high school. That was over 30 years ago!…

Researchers at Cumberland Pharmaceuticals Inc. are seeking boys and men living with Duchenne muscular dystrophy (DMD) to participate in a phase 2 clinical trial to evaluate the safety and efficacy of…