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Bethlem myopathy, also called Bethlem muscular dystrophy, is a rare disease affecting skeletal muscles and connective tissue. Considered a type of congenital muscular dystrophy, it was initially recognized in the…

Thank you to everybody who entered the 2022 Quest Reader Photo Contest. We received so many great photos from all around the neuromuscular disease community and are excited to share…

I was once on the go all the time, but in recent years, I have found myself slowing down and trying to pace myself. I do not push the limits…

In September 2022, American Airlines stranded passenger Xavi Santiago for more than five hours at the Orlando airport after misplacing their power wheelchair. One month earlier, Lufthansa stopped Rhode Island…

As the autumn leaves start to fall, the holiday season is upon us. And between the hustle and bustle of decorating, shopping, food preparation, and social gatherings, the holidays can…

How to search the internet to find reliable information about neuromuscular diseases and the latest research.

Knowing how to effectively communicate your wishes and needs to doctors in offices and hospitals results in better healthcare.

With natural disasters on the rise, here’s how people with disabilities can prepare and increase awareness of their needs in their communities.

MDA On the Road launches a journey to advocate for the neuromuscular disease community with appearances at high-impact conferences.

When you join MDA, you become a member of an active, broader, and supported neuromuscular community. One way that MDA stays connected with our families through every step of their…