Archives

Neuromuscular neurologist, Tahseen Mozaffar, MD, provides insight on understanding the complexities of the disease, Myositis.

A.J. Bardzilowski, who lives with a rare double diagnosis, shares how he adapted to physical challenges in his career.

Patricia Perez made an award-winning wheelchair Halloween costume with a little help from her husband and friends.

Olivia Holler’s experiences made her want to embrace her differences and help others understand life with a disability.

MDA’s Ambassador Program brings authentic voices and lived experiences from the neuromuscular disease community to the forefront.

Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…

Kody Graves and Sydney Knobel-Graves When Sydney Knobel-Graves and Kody Graves became first-time parents in July of 2019, they quickly realized that the timing of their daughter Kenzie’s birth would…

Luke Hennessy lives in Prior Lake, Minnesota, and has SMA Type 2. He is studying Pre-Law with a major in Computer Information Systems and a minor in Political Science at…

What? When? Where? Exciting news! The 2025 MDA Clinical & Scientific Conference prospectus is now available, and registration is open! Join us from March 16-19, 2025, at the Hilton Anatole…

Over the last eight years, there has been an unprecedented transformation in the spinal muscular atrophy (SMA) treatment space, with the approval of multiple new treatment options that have changed…