Archives

People from across the neuromuscular field gather to learn and collaborate at the 2026 MDA Clinical & Scientific Conference.

Meet the 2026 MDA Legacy and Momentum award winners who are making a lasting impact on research and care for the neuromuscular community.

Tips for participating in neuromuscular clinical trials and research studies, from MDA community members who have been there.

Follow these steps to appeal insurance denials for gene therapy, or any neuromuscular disease treatment, and improve your chances for approval.

Tracking research updates and breakthroughs that help accelerate treatments and cures across MDA diseases.

Gabrielle Runyon is a graduate student in the Master’s Counseling Program at the illustrious Tennessee State University. She is from Louisville, Kentucky. Gabrielle was diagnosed with spinal muscular atrophy (SMA)…

For over 70 years, MDA’s National Ambassadors have been an intrinsic part of championing for our mission to empower people living with neuromuscular disease and increase care, research, and advocacy…

Rebecca Gregg has limb-girdle muscular dystrophy (LGMD2B), is a board member of the LGMD Awareness Foundation, and is an MDA Ambassador. She lives in Edmond, OK, with her husband, David,…

Clinical trials are key to advancing research for neuromuscular disease treatment. Here’s what you need to know why to get involved and how to enroll.

The idiopathic inflammatory myopathies (IIMs) are a group of rare autoimmune muscle diseases that include dermatomyositis, polymyositis, immune-mediated necrotizing myopathy (IMNM), antisynthetase syndrome, and inclusion body myositis (IBM). These disorders…