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Learn the signs you might need breathing support, and how testing, equipment costs, and insurance can guide informed decisions about starting ventilation.

Researchers find that proteomics, the study of proteins, offers hope for earlier diagnosis and treatment for ALS and other neuromuscular diseases.

Researchers hope a gene therapy with a new adeno-associated virus (AAV) will deliver disease-modifying benefits without endangering the liver.

How the Fair Housing Act makes disability discrimination illegal in renting or buying a home and promotes access to permanent and temporary housing.

Researchers at Carle Foundation Hospital in Urbana, IL are seeking individuals living with Becker or Duchenne muscular dystrophy (BMD/DMD) to participate in an observational study using Diffusion Tensor MRI to…

Walker-Warburg syndrome (WWS) is a rare, inherited disorder that significantly affects the muscles, brain, and eyes. It is a form of congenital muscular dystrophy (CMD), a group of genetic muscle…

Community members who use breathing devices say their ventilators support their freedom, mobility, and energy and improve respiratory health.

More than 50 years ago, the Rehabilitation Act first outlawed disability discrimination and established a foundation for disability rights.

The ACA, or Obamacare, improves access to affordable health insurance for people with preexisting conditions like neuromuscular diseases.

For the neuromuscular disease community, the ADA provides protections for people with disabilities to work and participate fully in their communities.