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Blog Post | Advocacy, Inclusion, Independence

MDA’s Guide to the Fair Housing Act

How the Fair Housing Act makes disability discrimination illegal in renting or buying a home and promotes access to permanent and temporary housing.

Tags: Disability Legislation, Featured Content, MDA Resource Center, Resources


Blog Post | Health, Science + Research, Tools& Resources

Clinical Research Alert: Observational Study of Muscle Function and Structure in Individuals with BMD/DMD

Researchers at Carle Foundation Hospital in Urbana, IL are seeking individuals living with Becker or Duchenne muscular dystrophy (BMD/DMD) to participate in an observational study using Diffusion Tensor MRI to…

Tags: Clinical Trial Alert, Clinical Trials


Blog Post | Health, Science + Research, Tools& Resources

Simply Stated: Updates in Walker-Warburg Syndrome

Walker-Warburg syndrome (WWS) is a rare, inherited disorder that significantly affects the muscles, brain, and eyes. It is a form of congenital muscular dystrophy (CMD), a group of genetic muscle…

Tags: Simply Stated


Blog Post | Health, Independence, Lifestyle, Personal Stories

Respiratory Support Makes a Big Difference: Community Perspectives on Using a Ventilator

Community members who use breathing devices say their ventilators support their freedom, mobility, and energy and improve respiratory health.

Tags: DME, Equipment and Assistive Devices, Featured Content


Blog Post | Advocacy, Inclusion, Independence, Tools& Resources

MDA’s Guide to the Rehabilitation Act of 1973

More than 50 years ago, the Rehabilitation Act first outlawed disability discrimination and established a foundation for disability rights.

Tags: Disability Legislation, Education, Employment, Featured Content, MDA Resource Center, Resources, Technology


Blog Post | Advocacy, Health, Inclusion, Independence

MDA’s Guide to the Affordable Care Act (ACA)

The ACA, or Obamacare, improves access to affordable health insurance for people with preexisting conditions like neuromuscular diseases.

Tags: Disability Legislation, Featured Content, Healthcare, Insurance, MDA Resource Center, Resources


Blog Post | Advocacy, Inclusion, Independence, Tools& Resources

MDA’s Guide to the Americans with Disabilities Act (ADA)

For the neuromuscular disease community, the ADA provides protections for people with disabilities to work and participate fully in their communities.

Tags: Disability Legislation, Employment, Featured Content, MDA Resource Center, Resources


Featured Article | Science + Research

Progress Now: Drug Approvals and Clinical Trial Updates

Current clinical trials enrolling, recent study results, new drug approvals, and more across MDA diseases.

Tags: Clinical Trials, Drug Approval, Research, Research Advances


Blog Post | Inclusion, Lifestyle, Personal Stories

Accessible Birding: An Inclusive Window to Nature and Wildlife

A birder with muscular dystrophy shares his story, adaptive equipment journey, and how birdwatching can improve your health and well-being.

Tags: Community, Equipment and Assistive Devices, Featured Content, Mental Health, Staying Active


Blog Post | Advocacy, Health, Independence, Lifestyle, Personal Stories, Tools& Resources

Quest Podcast: The People Behind the People: Family Caregiving, Policy, and the Power of Showing Up

In this episode of the Quest Podcast, we chat with Nicole Lucas, a devoted family caregiver and dental hygienist who stepped away from her career so that her daughter could…

Tags: Caregiving, Parenting, Relationships