Archives
9 Questions to Ask Before Joining a Clinical Trial
Experts recommend asking these nine questions before joining a clinical trial so you know what to expect.
Research Study Alert: Noninterventional Study in People with DMD and BMD
Study Coordinators at CureDuchenne Link® are seeking individuals living with Duchenne or Becker muscular dystrophy (DMD or BMD) or carriers to participate in a noninterventional study. The objective of this study is…
In Case You Missed It
Quest Media is an innovative adaptive lifestyle platform from MDA. With the power of this platform, we foster awareness and empowerment and have important conversations with experts, thought leaders, and…
Tags: Advocacy Updates, Ambassadors, Amy, Community, Leah
Simply Stated: Updates in Collagen VI-Related Dystrophy
Collagen VI-related dystrophy (COL6-RD) is a rare genetic muscle disease caused by defects in one of three genes that form a triple helix protein (collagen VI) found in the extracellular…
Tags: Clinical Trials, Drug Development, Genetic Testing, Healthcare, Innovation, MDA Care Centers, MDA Resource Center, Research, Research Advances, Simply Stated
Getting to Know Your 2024 MDA National Ambassadors
MDA’s Ambassadors are pivotal to our mission: empowering people living with neuromuscular disease to live longer, more independent lives. We strive to fulfill our mission through care, research, and advocacy.…
Tags: Ira, Leah, National Ambassadors
Remote Digital Technology Research Study for ALS Seeking Participants
The MDA MOVR program has paired with Mitsubishi Tanabe Pharma America, Inc. (MTPA) to collaborate on a remote observational research study focusing on Amyotrophic Lateral Sclerosis (ALS). The newly developed…
Tags: MOVR, Research Study Alert
Clinical Trial Alert: Medical Device Feasibility Study for People with ALS
Researchers at PathMaker Neurosystems Inc. are seeking individuals living with amyotrophic lateral sclerosis (ALS) to participate in a feasibility study to evaluate the safety and tolerability of an investigational neuromodulation…
Tags: Clinical Trial Alert
Celebrating Our 2023 Advocacy Accomplishments
From major legislative and regulatory progress on crucial issues, to our in-person Hill Day in Washington, D.C., 2023 has truly been a landmark year for MDA advocates. Because of your…
Mark Your Calendar: Upcoming MDA Events
MDA Events bring community members, advocates, volunteers, sponsors, and MDA staff together as they gather for a cause and celebrate community. In-person events offer attendees and volunteers a powerful opportunity…
Tags: Community, Fundraising
Key Diagnostic Tests for Neuromuscular Diseases
A guide to diagnostic tests most commonly used when there are symptoms of a neuromuscular disease.
Tags: Featured Content, Genetic Testing