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Blog Post | Get Involved, Inclusion, Independence, Lifestyle, Personal Stories

MDA National Ambassador Blog- Insights by Ira on Summers of Friendship & Growth: Life Lessons from MDA Camp

I remember the magic of MDA Summer Camp like it was yesterday, especially taking a swim with all of my friends on a scorching summer day! It is one of…

Tags: Ambassadors, Caregiving, Community, Insights by Ira, Ira, MDA Summer Camp, Mental Health, Relationships, Staying Active, Summer Camp, Young Adults


Featured Article | Inclusion, Independence, Lifestyle

Building With Universal Design Is Good for Everyone

How building with universal design creates spaces that are inclusive and enjoyable for everyone, and how to find accessible places.

Tags: Community, Featured Content


Featured Article | Inclusion, Lifestyle, Personal Stories

A Guide to Getting Involved in Adaptive Sports

There is an adaptive sport for every ability. Read this guide to get started and find programs, resources, and equipment.

Tags: Ambassadors, Equipment and Assistive Devices, Featured Content, Leah, Resources, Staying Active, Young Adults


Featured Article | Health

Can Neuromuscular Disease Affect Your Bones?

Learn the three factors that contribute to bone loss, low bone density, and osteoporosis for people with neuromuscular diseases.

Tags: Featured Content, Healthcare, Nutrition, Web Exclusive


Featured Article | Lifestyle, Personal Stories

Writing About Adversity Leads to Unexpected Benefits

Chris Anselmo, who lives with limb-girdle muscular dystrophy (LGMD), shares why he started writing about handling adversity.

Tags: From Where I Sit, Mental Health


Featured Article | Lifestyle, Personal Stories

Nature Lover With Myotonic Dystrophy Paints a Room With a View

Heather Nightingale lives with myotonic dystrophy type 1 (DM1) and painted a mural to heal and reconnect with nature in her home.

Tags: Lasting Impression, Staying Active


Featured Article | Get Involved, Health, News

How to Get One-on-One Support From MDA

MDA offers many opportunities to connect with a specialist on our team to get one-on-one support.

Tags: A Look Inside, Community, Equipment and Assistive Devices, Gene Therapy, Healthcare, MDA Care Centers, MDA Connect, MDA Peer Connections, MDA Resource Center


Featured Article | Lifestyle, Personal Stories

Managing Myasthenia Gravis With Grace

Professional dancer Carol Alvarez manages myasthenia gravis (MG) and a career in the performing arts.

Tags: Ambassadors, Quest for Success, Staying Active


Featured Article | Science + Research

Can Wearables and Smartphones Make Clinical Trials Better?

New digital health technologies and wearables can improve research and access to clinical trials for people with neuromuscular diseases.

Tags: Clinical Trials, Drug Development, Innovation, MOVR, Research Advances, Technology


Featured Article | Science + Research

Understanding Titinopathies

Titinopathies researcher Bjarne Udd, MD, PhD, details progress on neuromuscular disorders associated with the Titin (TTN) gene.

Tags: Drug Development, Exon Skipping, Gene Therapy, Genetic Testing, Research, Spotlight