Archives

MDA Family and Clinical Support Specialist, Jordann Hager There are exciting transitions happening at the Muscular Dystrophy Association! As we move to being in-person at MDA Care Centers again, there…

At the MDA Clinical & Scientific Conference, researchers discussed how therapy advances make newborn screening for Pompe disease even more important.

MDA Ambassador Amy Curran MDA Ambassador Amy Curran lives with GNE Myopathy. She resides in the suburbs of Philadelphia, Pennsylvania with her partner, Jon, and her dog, Lexi. She holds…

April is National Volunteer Month! As MDA celebrates a month honoring the incredible volunteers who make our mission possible, we are excited to spotlight four dedicated individuals and families from…

Elevated enzymes are a frequently encountered problem in general medical practice, but their meaning often isn’t so simple to discern. When they’re found with a neuromuscular disease, the situation can…

For those living with physical disabilities, accessibility is a cornerstone of inclusion. While a focus on inclusivity and diversity has become more prevalent in the last ten years, with many…

Pompe disease (also called acid maltase deficiency) is a rare, metabolic muscle disorder that causes slow, progressive muscle weakness, especially of the respiratory (breathing) muscles and those of the hips,…

The MDA Peer Connections Program provides an opportunity for members of the neuromuscular disease community to build bonds with one another, both across the country and in their own neighborhoods.…

The first day of the 2023 MDA Clinical & Scientific Conference covered FDA approval, gene therapy, ultra-rare diseases, and more.

MDA Ambassador Leticia Tatum MDA Ambassador Leticia Tatum, 42, of Birmingham, Alabama was diagnosed with SMA at the age of two. She currently serves as the Vice President of Human…